ILADS doctor in North Carolina, Dr. B?

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georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 9/25/2009 6:42 PM (GMT -7)   
Well I called ILADS today and they recomended that I go see Dr. B. in Hubert NC. So I called their office and actually got to talk to the doctor. She is a member of ILADS and seemed very knowledgeable about LD and co-infections. She is a family practice physician. She offered to consult with my pcp over the phone for treatment recomendations or to visit her once and become her patient?  I didn't really understand all of that but I will call back on mon. and get more info.  Has anyone ever been to this doctor? Should I go see her or just have my pcp call her? It would be an 8 hr drive. Please e-mail me if you have any info. on this doctor.
Thanks :-)

georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 9/27/2009 8:30 PM (GMT -7)   
maybe she is a new ILADS member? I have never herd of her.

georgiagirl
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Date Joined Oct 2007
Total Posts : 1172
   Posted 10/11/2009 1:38 PM (GMT -7)   
Well I have an appt. with this doctor in Nov.  Wish me luck.  It's going to be a long ride!   

Lymeymom
Regular Member


Date Joined Aug 2009
Total Posts : 33
   Posted 10/13/2009 8:44 PM (GMT -7)   
GeorgiaGirl;
 
  I haven't been 'on' in awhile so I just saw your post. I was diagnosed with Lyme this past August and have been researching NC and SC LLMD's. There is one located in Asheville and in Raleigh NC and also found one in Fort Mill SC which is only about an hour and a half from me. Don't know where in GA you are, but wouldn't one of these be closer for you instead of the one in Hubert? smilewinkgrin

Kristiana
Regular Member


Date Joined Jun 2009
Total Posts : 22
   Posted 10/13/2009 10:33 PM (GMT -7)   
The one in Fort Mill, SC, Dr. J. is moving to Georgetown, Washington D.C. in November, just so you know. He's my doc, so I thought I'd add that in there. I fly because it's too far to drive but with several of the airlines, it's actually cheaper to fly than to buy gas all the way for the car!!!
Kristiana

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 10/14/2009 6:37 AM (GMT -7)   
lymemom, will you e-mail me the doctors in Asheville and Raleigh? Thanks

Lymeymom
Regular Member


Date Joined Aug 2009
Total Posts : 33
   Posted 10/15/2009 4:29 AM (GMT -7)   
sure georgia...it'll be later tonite though - going to work and have to find the info on my home computer

Lymeymom
Regular Member


Date Joined Aug 2009
Total Posts : 33
   Posted 10/15/2009 9:31 PM (GMT -7)   
georgia...so sorry but computer had a crash recently and i just realized I lost alot of data...but i do remember where i got the info on those docs...info@turnthecorner.org

Douglnes
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/22/2013 5:58 PM (GMT -7)   
Can anyone help with a Lyme Dr. in Asheville? My wife has been suffering with Lyme for over a year and all we have managed to do was waste time and money on clueless Drs. or Drs. who have even told us, "There is no Lyme Disease in Florida."

peggster
Regular Member


Date Joined Aug 2011
Total Posts : 73
   Posted 6/6/2013 10:16 AM (GMT -7)   
Douglnes.....enable your email & I will send you info on the doc in NC. I am from FL (moved to GA)....apparently got lyme in FL....there is lyme in FL. My Aunt is in Tampa seeing an LLMD there.

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 30
   Posted 7/2/2017 4:40 PM (GMT -7)   
georgiagirl, Did you end up using Dr. B in Hubert, NC? I'm trying to find a doc who understands tick borne illnesses.

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 616
   Posted 7/2/2017 6:18 PM (GMT -7)   
Hi bleepitybleep!-

Welcome to our community. This is an older thread and I haven't seen these members post in the last couple of years.

For information on finding an ILADS (International Lyme and Associated Disease Society) trained Lyme Literate Medical Doctor (LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctors names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under "edit profile ". Be sure to click the submit button to actually save your preferences.

You can also start a new thread and ask: Looking for LLMD in/ around ______ (fill in the blank for your closest city or state that you are able to travel to).

You can email the Tick-Borne Disease Alliance at medicalinfo@tbdalliance.org for LLMD referrals and you can go to tbdalliance.org to learn more about these infections.

You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

ILADS has their own referral system as well: ilads.org/ilads_media/physician-referral/

And a new resource www.LymeDoc.org

You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf

You can also email Traveler. She is a moderator here. Just click on the blue envelope under her name. She might have a list of LLMD close to your area.

I hope that you stay around. There are a lot of knowledgeable and friendly people here. We all try our our best to help each other.

Also please take a look at the "New to Lyme?... Start Here!" thread. It is located at the top of the forum. There is a lot of helpful information located in the 2 pages.

Best Wishes!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 30
   Posted 7/2/2017 6:33 PM (GMT -7)   
Hi Little Bear. I'm looking for a doctor who deals more w/bartonella, but I suppose I should have more in-depth Lyme testing. Thanks for the link. Has anyone heard about the bartonella research being done at NC State? I am not sure if it's okay to post, but a DVM there has done extensive research on it being found in humans with various muskoskeletal & neuro symptoms. I emailed him a few weeks ago (our dog's DVM suggested - I know crazy I'm getting advice from a DVM, but so far it's been the most insightful on a possibility).

Little Bear (LB)
Veteran Member


Date Joined Oct 2015
Total Posts : 616
   Posted 7/2/2017 6:54 PM (GMT -7)   
Hi bleepitybleep!-

There are a lot of people here that are also in treatment for Bartonella.

Bartonella and Babesia are two very common coinfections that a lot of us with Lyme Disease deal with.

A well trained LLMD would also be able to help you treat Bartonella.

Please do look into finding a LLMD.

Best Wishes!
Misdiagnosed for 27 years. Below is my first thread.
www.healingwell.com/community/default.aspx?f=30&m=3509506

Homozygous MTHFR a1298c
Started to talk normal again May 2016
Still dealing with other symptoms

Lyme Disease is a real MTHFR!!!

lpaiges23
Regular Member


Date Joined May 2017
Total Posts : 70
   Posted 7/3/2017 9:35 AM (GMT -7)   
Hey Bleepitybleep- There is an LLMD in Durham who i am seeing july 21. her name is J. F. and came highly recommended from a family friend who is also a physician. Dr F also has Lyme Disease and is wonderful. she offers a wide range of treatments and really knows the disease. Maybe give her a try? The only thing you may run into, (as with many LLMD), she doesnt accept insurance. the initial visit is near 500 dollars, but 2 hours long. if you happen to find anyone who takes insurance, would you please let me know!? i am hoping to find someone who will be less expensive....this is just such a long journey! We will all get through it though. #lymewarrior

Post Edited By Moderator (Traveler) : 7/3/2017 10:41:38 AM (GMT-6)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/3/2017 9:45 AM (GMT -7)   
Lpaiges, I edited your post to remove the doctors name and left only initials (we don't allow doctors names to be posted here unless they are openly doing tv interviews and writing books to help protect them).

And I removed your email address because this is an open forum, meaning that anyone can come here and read the posts without joining. Putting your email in a post will essentially invite more spam to your inbox! You can enable your email address through your profile (click on profile - then edit profile and fill in the email address, click "show my email" and then click on the submit button at the bottom to save it). That way only members have access to your email address. You should see the little envelop outlined in blue once it's working, like mine is.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 7/3/2017 9:46 AM (GMT -7)   
Hi Bleepitybleep!
Welcome to our community! I'm so glad you found us. You've been given a lot of good information, so I'm just stopping by to say welcome!

Please do let us know how we can be of help!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

BeReal8
New Member


Date Joined Sep 2017
Total Posts : 1
   Posted 9/29/2017 8:14 AM (GMT -7)   
Lpaiges....I hope you see this. I tried to get your email off of your profile but there isn't one listed. I also live in NC and am in need of a local LLMD. I see you have one in Durham! That's awesome. I used to live in Wake Forest now outside of Charlotte. I will try and make sure my email is in my profile. If you see this, could you please email me the docs info??? The doctors where I am have no clue how to help me 😭

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27920
   Posted 9/29/2017 9:42 AM (GMT -7)   
Welcome to our community, BeReal8!


I have a LLMD listed for Durham, NC. If you're interested in the contact info, send me an email.


We encourage our new members to read through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.


And..if you're like to share your 'story' with us, go ahead and start a new thread.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 75
   Posted 9/29/2017 10:40 AM (GMT -7)   
In case any of you didn't know Dr. F is not working right now. On leave to deal with her own health issues. Her office staff is not certain of exactly when she shall return. So if you are willing to wait she is a very good Dr. Very down to earth and can relate to what we are all experiencing. It may be quite a while before she comes back though. Call and leave a message and her staff will return your call within a couple days most likely. You may be able to give them your information and they will get back in touch with you with a appointment date once they know of her estimated return date.

lpaiges23
Regular Member


Date Joined May 2017
Total Posts : 70
   Posted 9/29/2017 1:42 PM (GMT -7)   
I am currently being treated by Dr. F in Raliegh. I will email you the info!

lpaiges23
Regular Member


Date Joined May 2017
Total Posts : 70
   Posted 9/29/2017 1:43 PM (GMT -7)   
Traveler...SORRY!!!! I totally forgot (can i blame it on the lyme brain?)


smile you guys are the best, Lyme Warriors!

Raleighgirlie
Regular Member


Date Joined May 2017
Total Posts : 39
   Posted 9/29/2017 6:36 PM (GMT -7)   
Can someone email me the Dr. F info as well? I am in Raleigh as well and would love to know someone who comes highly recommended and another name. I did find a Lyme doc in Raleigh I wanted to see that shows 'BCBS pending' so I have been waiting for her to take my insurance but man it's taking a while as i have been checking since earlier this year and it's still showing pending...I prefer to not come out of pocket when I already pay plenty for my health plan and it's too expensive to go out of network.

Loutucky
Regular Member


Date Joined Nov 2014
Total Posts : 380
   Posted 9/30/2017 5:01 AM (GMT -7)   
lpaiges23, is the Dr. F in Raleigh different from the Dr. F in Chapel Hill? Could you please email me the name?

Mojkce
Regular Member


Date Joined Apr 2016
Total Posts : 75
   Posted 10/1/2017 7:47 AM (GMT -7)   
ipaiges23,

Can you email me the name of the Dr. F here in Raleigh. I have BCBS and would love to have a LLMD or regular lyme literate PCP that takes BCBS! I haven't heard of that one. Our Dr F in Chapel Hill is not currently available.
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