Thank you all for your heartfelt thoughts and it brought treas to my eyes reading all your post.
to answer some of the things brought up. after i was sent to the ID. who doesnt believe in lyme in my book. i did talk to a lawyer. they told me to go back to him. what a joke that was.
and my PCP told me i was not aloud to talk about
lyme to him. its why he sent me to the ID. not in his field. another brush off.
in may i called all the news stations here to try to get the word out about
lyme disease and even the local news paper. not 1 gave a crap. i got 1 return call after my 3rd call to them. then they dropped it.
i even went so far as to wright into Oprah and wal-mart to try to get awareness about
LD out there. not 1 person i talked to cared enough.
i keep getting ( itsnt that from ticks, but you can get abx and be well) from them. makes me want to spit i get so mad.
yes everyone here fully understands. but until we are all well enough to stand up as a force to be reckoned with they will contuin to push us aside. turn a blind eye so to speak.
i even whent so far as to make up my own T-Shirts ( I Have Lyme Ask Me about
IT!!!) hot pink with lyme letters. you couldnt miss it if you tried.LOL but doesnt help here in Tx.
i am not scared nor am i afraid to go public. shot if it saved 1 life it would be worth it. and even if its not my own, but specially a childs. as they are the ones we need to really speak up for. in my heart i feel they are in the most danger from lyme.
they play outside without a care in the world. and rolling around in the grass is fun, climbing trees hikes in the woods. something to simple in life witch can cause so much harm. its a shame really.
like i have said b4 i do not know when or where i was bit by how many vector ticks, as i have spent most of my life outside in the woods and so on. and i have lived in all but 4 of the 50 states. and yes bit in almost every state too.
and if it wasnt for the lesion in my left eye, i wouldnt know i had lyme today. thats when i had a MRI showing 10 to 15 lesion in my brain. joy oh joy
i would keep on thinking this was all arthritis and who knows what later. but i do know its LD and i know it can kill. so is this my path. i do not know. but i do know i will not go down without a fight.
i cant even wait in line at the store without telling whomever is close by about
lyme. no i'm not shy at all, and if it helps 1 and i pray much more then 1 life then it is good to me. i will not crawl into a hole and hide. thats just how i am. i am up front and in your face.LOL
as for your email GG i did call them and am waiting to hear back from someone who i need there help. i will try calling again tomorrow. thank you for all the info.
as for trying sulpmets i cant afford them sorry to say, i have not worked in over 3 yrs now, and i'm trying to get SSI. last time i appealed it to go to court and was told it can take up to 2 yrs. i hope i'm still here by then..LOL yes its a racket if you ask me. everyone has to have a cut. its life and i'm used to it.
once again thank you all for your prayers and kindness, as your all in my prayers daily :)
still looking for answers.
Remember that advice is free, its your choice what you do with it. :)