Just diagnosed with Lyme Disease

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Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/3/2009 12:39 PM (GMT -7)   
Hi.  I am new to this site.  Last month I was diagnosed with Lyme disease, babesia, and two strains of bartonella.  Unfortunately, mine seems to be a typical story.  I've been sick for years, saw many doctors and specialists, had an ever increasing list of physical  maladies despite living a healthy lifestyle, underwent a multitude of tests, suffered more than I can ever adequately describe, spent every spare cent and then some pursuing the elusive goal of health, and failed to get properly diagnosed.  What saved me was an article about Lyme in a local newspaper.  That prompted me to see a GP and ask for a Western Blot test.  The doctor, who thankfully humored me even though he didn't think the test was necessary, gave me the lab slip and said I could take it to any local lab.  I didn't.  I took it to IgenX (lyme literate lab).  By that time I at least knew enough to find a LLMD and even though my appointment with him was still weeks away, I had the IgenX results sent to both the requesting physician and the LLMD.  Soon I heard back from the LLMD saying the test was positive but needed to be verified, and then two weeks later I heard from the GP who ordered the test that it was negative. 
 
Welcome to the world of Lyme disease.  Nothing about this disease seems straightforward. 
 
I am glad I found this site and have been reading the bulletin boards.  I look forward to learning more and, as I go through my journey to health, sharing my experience.  
 
LymeGirl55
 
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/3/2009 1:09 PM (GMT -7)   
Hi Willowrose,

Welcome to the forum! We usually have more information for new members to read but our server crashed a few days ago and we lost everything. We're trying to get everything back to normal again.

I'm terribly sorry you had to go through that with your GP. What is your next step to treating this disease?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 10/3/2009 1:30 PM (GMT -7)   
Wollowrose - Welcome to the hotel California.... you can check out any time you like, but you can never leave..... lol!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive
Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Invanz IV, possibly Gammaglobulin, Flagyl, HBOT  
 


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/3/2009 4:42 PM (GMT -7)   
Thanks for your replies - I didn't figure out until now that there was a space for a topic - so thanks for finding my post. In answer to your question, CajunGirl, I am seeing a LLMD in Sacramento (ILADS affiliate) who is currently treating the babesia. As I understand it, one of those medications also helps with the Lyme. There is a long-range treatment plan that will be altered as needed depending on how I'm doing. I know it isn't an easy or quick road, and that since I've been sick for so long and have so many coinfections and medical problems, down the road I may need IV antibiotics. That's okay. At least I'm doing something about it. It's been awful being stricken again and again with a mystery malady from which I always "got better" but that always returned. At least as bad as the frustration of not knowing what was wrong was the humiliation and sense of hopelessness stemming from doctor after doctor telling me my tests came out okay and I was probably suffering from stress. Or, when there was an abnormality, attributing that to stress. Although I am very unhappy to have Lyme and so many coinfections, I am relieved to FINALLY know what is actually wrong with me and to be taking steps to improve my quality of life and to regain my health.

Rose

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 10/3/2009 5:16 PM (GMT -7)   
Hi Willowrose,

Welcome! I hope you find this site as wonderful as I have- everyone here is amazing. It does suck to have Lyme- but as you say, it is a relief to finally know what's wrong. Hopefully you have lots of luck treating your babesia.

Nicky
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