New To Lyme?.......Start here!

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Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 8:24 AM (GMT -6)   
New members, welcome to the forum!
First of all, please, PLEASE do not post in this thread as your post will not get an answer here! The members that have been here for any amount of time are looking at the current posts to see if there is anyone new looking for help or suggestions!!

Also, Admin doesn't want us posting any doctor's names and contact info on the forums (all of them), so please don't post doctors names and contact information

Below, you will find some helpful information to get you started on your Lyme journey. We have some very knowledgeable members here so if you have any questions, please don't hesitate to ask. We will do whatever we can to help you.

If you need help finding a Lyme Literate Medical Doctor(LLMD), please start a new post that tells us what state you need a doctor in. We will do our best to find you an LLMD closest to you.

Please don't hesitate to post and tell us all about yourself and your situation. We are a very caring a friendly group and we will try to guide you as best as we can.

If you have any other questions, you can either start a new post or email Traveler or Girlie.

And always remember, we are here for you and you will get through this! It may just take a little time.


Post Edited By Moderator (Girlie) : 12/30/2017 3:33:05 PM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 8:25 AM (GMT -6)   
We thought that this information was very important to read, especially for new members:


Lyme disease is a world-wide infectious disease caused by microscopic bacteria carried by tiny ticks.

B. burgdorferi, a spiral bacteria (spirochete) that causes Lyme Disease, seen through a microscope.


There are several species of deer ticks across the US that become infected with the spiral bacterium, Borrelia burgdorferi.

Unsuspecting humans and animals walking through woodlands and brushy areas may be bitten by a tick and never know it. The tiny ticks, some the size of poppy seeds, may stay on your body for hours to days. The tick engorges itself with blood. If infected, the spirochete is transmitted to the bloodstream of the person or animal during the bite.


Early recognition is important. If you find a tiny tick attached to your skin, if you were in a known
tick-infested area, or if you have symptoms described herein, see your physician.


A characteristic red bulls-eye rash (EM) at the site of the bite is present in less than 40% of
patients. The rash may appear within days to weeks after the bite, but could be hidden in hairline
or underarms.

EM RASH - Rashes from other bacteria in the tick may show up immediately. Typically the rash from

Lyme bacteria appears days or weeks after the bite. Some patients report flu-like symptoms, fever, aches, fatigue, neck stiffness, jaw discomfort, muscle pain and stiffness, swollen glands, and red eyes. Symptoms may appear, disappear and reappear at various times.

Nervous system abnormalities include memory loss and partial facial paralysis (Bell’s palsy).
Migratory joint pains, and pains in the tendons, muscles and bones may occur later in the disease. Arthritic symptoms, if present, usually affect the large joints like the knees.


Lyme disease is a clinical diagnosis. This means that the physician makes the diagnosis using your
clinical history and symptoms. If a physician observes an EM rash, a diagnosis of Lyme disease will
be made. If a rash is not seen by a physician, laboratory tests are often needed to help with the


Not all ticks are infected with the spiral bacterium, B. burgdorferi. If the tick was saved, it can be
tested by our laboratory for the presence of the Lyme bacteria using a test called PCR. We also test
ticks for Babesia microti andor Babesia duncani (formerly WA-1), Ehrlichia, Bartonella henselae and
Rickettsia (Rocky Mountain Spotted Fever). These diseases are also carried by ticks.

A Nymph, which is a baby tick, can be as small as the dot at the end of this sentence.

Tick in Nymph stage is the size of a poppy seed.


The same tick that carries the bacteria that causes Lyme Disease, can also transmit other illnesses.
The most common are Babesiosis, Ehrlichiosis, and Bartonella henselae and Rocky Mountain
Spotted fever (Rickettsia). It is estimated that up to 20% of the ticks with Lyme disease may have
one of these other diseases. Babesiosis is like malaria with the symptoms of acute disease being
fever, chills, vomiting and fatigue. It is usually self-limiting except in Lyme patients and those who
have undergone splenectomy. There are two forms of Ehrlichiosis: Anaplasma phagocytophila
(HGE) and HME (Human Monocytic Ehrlichiosis). HGE is primarily on the East coast, upper Midwest
and California. HME is primarily in the Southeast, lower Midwest and Southwest, with cases reported
in CA, NJ, NY, and WI. These acute diseases may have symptoms of fever, chills, vomiting and
fatigue and require prompt antibiotics. Subclinical forms of these diseases may be present in
patients with Lyme disease.


A variety of tests is available. Many doctors who are unfamiliar with Lyme disease just use the
Lyme test available in their local laboratory. This is usually the Lyme ELISA. This tests measure a
patient’s antibody, IgM and/or IgG, in response to exposure to the Lyme bacteria. By today’s standards, these tests are not very sensitive. IGeneX, Inc. will only perform the ELISA test in
conjuction with Western Blots.

The Lyme IFA (performed as part of a Lyme Panel) detects IgG, IgM and IgA antibodies against
B. burgdorferi. IgM-specific titers usually persist in the presence of disease. Antibody levels tend to rise above background levels about 2-3 weeks after infection and may remain elevated in case of prolonged disease.

The WESTERN BLOT tests (IgG and/or IgM) can visualize the exact antibodies you are making to
the Lyme bacteria. In some cases the laboratory may be able to say that your “picture of Lyme
antibodies” is consistent with early disease or with persistent/recurrent disease. Not all patients
have antibodies at all times when tested. Antibodies are more commonly detected within the first
year after infection, although reinfection may cause a significant rebirth of antibodies. At most, only
60% of patients have antibodies early, and the presence of antibodies alone does not make a
diagnosis of disease.

The LYME DOT BLOT ASSAY (LDA) looks for the presence of pieces of the Lyme bacteria in urine. When compared to the Western Blot, , they both had similar sensitivities; however, the immunodot assay was more specific and had greater positive predictive value than the Western blot assay. The results obtained indicate that the immunodot assay performs as well as or better than the Western blot assay for diagnosing Lyme borreliosis. Furthermore, because it uses a limited panel (n = 5) of antigens, the immunodot is easier to read and interpret than standard Western blots.

The PCR (Polymerase Chain Reaction) Test, a highly specific and sensitive test detects the presence of the DNA of the Lyme bacteria. The PCR test is often the only marker that is positive in all stages of Lyme disease. The test can be performed on blood, serum, urine, CSF and miscellaneous fluids/tissues. Unfortunately, Lyme bacteria like to “hide” in the body, therefore, PCR can often be negative. Studies performed on different sample types suggest that performing PCR on multiple sample types improves assay sensitivity.


Lyme Disease is very complicated to diagnose because:

Lyme bacteria are not always detectable in the whole blood, even in active disease. The bacteria like to hide in joints, teeth, the heart, and the brain.
Every patient responds differently to an infection.
Antibodies may only be present for a short time.
For patients with clinical symptoms of Lyme Disease who test negative by the IFA Screen or IgG or IgM Western Blot, the Whole Blood PCR or the LDA/Multiplex PCR Panel on urine may be appropriate. There are physician developed antibiotic protocols to enhance the sensitivity of the LDA. In addition, there seems to be increased sensitivity of this test during the start of menses.

Lyme Disease Tests

IgG/IgM/IgA Screen (IFA)*
IgG/IgM and IgM Antibody ELISA
C6 Peptide
IgG Western Blot and IgM Western Blot
30/31 kDA Confirmation Test*
Lyme Dot Blot Assay (LDA)*
Reverse Western Blot (Confirmation test for LDA)*
Multiplex PCR for urine, whole blood, serum, CSF
Multiplex PCR for Miscellaneous samples (ex: Skin biopsy, breast milk, semen)
In addition to Lyme Disease, a co-infection may be suspected for Babesiosis, Ehrlichiosis, Bartonella or Rickettsia. We offer tests for these other tick-borne illnesses. The tests are IFA (fluorescent antibody) or direct tests by PCR. In the case of Babesia, we offer PCR tests for both B. microti and Babesia duncani (West Coast strain). In addition, we offer a Babesia FISH (fluorescent in situ hybridization) test that detects Babesia parasites directly on air-dried blood smears. The FISH test is highly specific for Babesia, unlike the standard test, the geimsa stain smear, which is neither sensitive or specific.

Babesiosis Tests

B. microti IgG/IgM Antibody
B duncani IgG/IgM Antibody*
Babesia PCR Screen
Babesia FISH (RNA)
Ehrlichiosis Tests

Anaplasma phagocytophila (HGE) IgG/IgM Ab
Anaplasma phagocytophila (HGE) PCR
Human Monocytic Ehrlichia (HME) IgG/IgM Ab
Human Monocytic Ehrlichia (HME) PCR
Bartonella Tests

Bartonella henselae IgG/IgM Antibody
Bartonella henselae PCR for Whole Blood, Serum*, or CSF
Rickettsia Tests

Rickettsia PCR for Whole Blood, Serum or CSF
There are Testing PANELS that have been put together to provide cost savings to the patient when more than one test is ordered. Please refer to the FORMS AND CODES Section. Our Patient Test Request Form lists all of the Panels available, including Panels for certain Regions of the Country you live in.


Lyme, Babesia microti and/or Babesia duncani (formerly WA-1), Ehrlichia,
Bartonella henselea, and Rickettsia by PCR.


It is reported that Lyme disease can be treated successfully with antibiotics if caught early in the infection. Prevention is the best cure for infection. Patients whose disease is caught late often need to be on antibiotics for longer periods of time. There is controversy between physicians as to the length of treatment. ILADS physicians’ feel treatment should continue for 2 months after patient feels better. Ehrlichiosis is often treated with many of the same antibiotics used for Lyme disease. Babesia is often treated with Metron and Zithromax. Many physicians believe that they need to treat the Babesiosis before treating Lyme disease to achieve clinical success.


Wear long sleeve shirts and long pants when going into tick country. Light colors are best - ticks can be seen easier. Tuck pants into socks and spray the clothes with a known tick repellent. After being in a tick area, check skin and all hair areas completely. Promptly remove all ticks after being in an area known to harbor Lyme ticks. Check pets carefully, they are a source of entry for ticks into the house. Deer hunters need to spend extra time checking their gear before bringing it into autos and home.


1. Use tweezers or forceps.
2. Grasp the tick mouthparts close to the skin.
3. Avoid squeezing the tick which may spread infected body fluids.
4 Pull the tick straight out. Do not twist. Do not attempt to burn the tick.
5. Save the tick (you may want to have it tested for B. burgdorferi or other tick-borne diseases)
6. Wash your hands with soap and water.
7. Apply antiseptic to bite site.

*Tests not available for New York Residents

Post Edited By Moderator (Traveler) : 1/7/2016 5:37:56 PM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 8:51 AM (GMT -6)   
Master Lyme Disease Symptom List:
Thanks Traveler!
For a more extensive list of not only Lyme symptoms, but the common co-infections symptoms, please see:
Lyme Disease Symptoms:

Abnormal sensitivity to hot or cold
Allergies (nasal, other; new, increased or worsening)
Canker sores (frequent)
Chills and/or shakes when hungry (may occur instead of feeling hungry)
Cold hands and feet
Extreme fatigue after minimal exertion
Feeling hot or cold often
Flu-like symptoms, on-going or recurrent after initial gradual or acute onset; includes mild fever (99.5-101.5 F / 37.5-38.6 C), chills
Hair loss (alopecia)
Herpes simplex or shingles rash
Increased susceptibility to infections
Low-grade fevers
Low blood pressure (below 110/70) 
Low body temperature (below 97.5)
Lymph nodes painful, swollen (in neck; under arms)
Night sweats (not related to menopause or fever)
Orthostatic Intolerance (neurally mediated hypotension)
Reactive hypoglycemia and insulin resistance
Thirst, increased
Temperature irregularities; often feeling hot or cold irrespective of actual ambient temperature and body temperature; low body temperature (below 97.6 F / 36.4 C)
Thyroid inflammation (acute thyroiditis; hypothyroidism; Hashimoto's thyroiditis)

Cardiac abnormalities (mitral valve prolapse; myocarditis; tachycardia; palpitations; dysrhythmia)
Dyspnea (out of breath) or shortness of breath (air hunger) after minimal or no exertion
Heart attack
Heart palpitations
Heart pounds so hard it shakes body, bed
Pulse skips
Serious rhythm disturbances of heart
Sighing, frequent, not related to mental/emotional state

Abnormal CAT, MRI and/or SPECT scans
Alcohol intolerance
Aseptic meningitis
"Brainfog"; inability to think clearly
Difficulty moving tongue to speak
Diminished or absent reflexes
Fainting or blackouts; feeling like you might faint
Headaches (frequent, severe, recurring)
Hearing fluctuations (sounds fade then return)
Hearing changes, often from day to day (need to turn up, then down, volume of radio, TV)
Joint or arthritic pain not relieved by NSAIDs (ie, ibuprofen)
Libido (decreased)
Light-headedness, feeling spaced-out
Migraine headaches
Muscle twitching
Noise intolerance
Paralysis or severe weakness of limb
Parasthesias (numbness, tingling, crawling, itching sensations) in face, head, torso, extremities
Seizures; seizure-like episodes
Sensory alterations (hyper- or hyposensitivity) - smell, taste, hearing (noise intolerance)
Severe muscle weakness
Syncope (fainting)
Tinnitus (ringing/noises in one or both ears)
Touch or weight of clothing on or against body causes discomfort or pain
Tremors, trembling

Becoming lost in familiar locations when driving
Difficulty with simple calculations (e.g., balancing checkbook)
Difficulty expressing ideas in words
Difficulty moving your mouth to speak
Difficulty making decisions
Difficulty following directions while driving
Difficulty remembering names of objects
Difficulty remembering names of people
Difficulty recognizing faces
Difficulty following simple written instructions
Difficulty following complicated written instructions
Difficulty following simple oral (spoken) instructions
Difficulty following complicated oral (spoken) instructions
Difficulty integrating information (putting ideas together to form a complete picture or concept)
Difficulty putting tasks or things in proper sequence
Difficulty paying attention
Difficulty following a conversation when background noise is present
Difficulty making and/or retrieving memories (long/short-term memory deficits)
Difficulty understanding what you read
Easily distracted during a task
Feeling too disoriented to drive
Forgetting how to do routine things
Forgetting the use of common objects (such as, what to do with the shampoo when you are standing in the shower)
Forgetting how to get to familiar places
Impaired ability to concentrate
Losing your train of thought in the middle of a sentence
Losing track in the middle of a task (remembering what to do next)
Poor judgment
Switching left and right
Slowed and/or slurred speech
Stuttering; stammering
Transposition (reversal) of numbers, words and/or letters when you speak and/or speak
Word-finding difficulty
Using the wrong word

Bloating; intestinal gas
Decreased appetite
Digestive chemicals (acid, enzymes) reduced or absent
Esophageal reflux; heartburn
Frequent constipation
Frequent diarrhea
Food cravings (especially carbohydrates, sweets)
Food/Substance intolerance
Liver function impaired; mild abnormalities
Increased appetite
Spleen tender or enlarged
Stomach ache, cramps
Weight gain or loss

Bite your cheeks or tongue frequently
Bump into things frequently 
Difficulty discriminating printed matter despite proper vision correction
Distances (difficulty judging when driving; when putting things down on surfaces)
Dizziness or vertigo
Dropping things frequently
Dysequilibrium (balance problems)
Impaired coordination
Loss of balance when standing with eyes closed
Perception (not quite seeing what you are looking at)
Some patterns (stripes, checks) cause dizziness
Spatial disorientation
Staggering gait (clumsy walking)
Words on printed page appear to jump off page or disappear when staring at them

Acuity changes not related to prescription changes
Blind spots
Blurred vision
Diminished visual acuity in absence of actual vision change
Drooping eyelid
Double vision
Eye pain
Flashes of light perceived peripherally
Optic neuritis or atrophy
Oscillopsia (image jiggles)
Prescription changes more frequently 
Pressure sensation behind eyes
Red and/or tearing eyes
Retinal damage
Slowed accommodation (switching focus from far to near, near to far)
Spots or floaters not related to migraines
Swelling around eyes
Uveitis and/or iritis
Wandering or lazy eye

Bell's palsy (facial paralysis, one or both sides)
Bruxism (grinding/clenching teeth)
Canker sores
Dizziness when you turn your head or move
Dry chronic cough
Dry eyes, nose and mouth (sicca syndrome)
Pain in ears, palate, gums
Periodontal disease
Prickling pain along skin of jaw
Problems swallowing, chewing
Runny nose in absence of cold, allergies
Sinus infections
Sore spot on the top of your head
Temperomandibular Joint Syndrome (TMJ)
Unexplained toothaches
Xerostoma (dry mouth)

Arthritic pain that migrates from joint to joint
Carpal tunnel syndrome
Frozen shoulder
Intermittent joint swelling
Joint aches (arthralgia)
Joint pain, without redness or swelling
Loss of tone
"Lumpy, bumpy" long muscles 
Morning stiffness
Muscle aches (myalgia)
Muscle pain, stiffness, weakness
Pyriform muscle syndrome
Reduced range of motion
Stiff neck
Writing causes pain in hand, arm shoulder

Abdominal pain
Chest pain
Generalized pain
Joint Pain
Pain that migrates from joint to joint
Pain/stiffness at C1-C2 (top two vertebrae)
Shooting or stabbing pains
Painful tender points (FMS: 11 out of 18 tender points)

Abrupt/Unpredictable mood swings
Anxiety or fear for no obvious reason
Appetite increase/decrease
Decreased self-esteem
Depression or depressed mood
Feeling helpless and/or hopeless
Feeling worthless
Frequent crying for no reason
Helpless/Hopeless feelings
Inability to enjoy previously enjoyed activities
Irritability; over-reaction
New phobias/irrational fears
Panic attacks
Personality changes (labile, irritable, anxious, confused, forgetful)
Phobias (irrational fears)
Rage attacks; anger outbursts for little or no reason
Suicidal thoughts or suicide attempts

Acute or abnormal reactions to medications
Alteration in taste, smell, and/or hearing
Chemicals (alcohol, medications; lower tolerance for)
Food sensitivities
Increased perception of and sensitivity to noise
Light sensitivity
Sensitivity to odors (able to detect and/or react in concentrations far lower than before and that healthy people cannot smell)

Abnormal scarring
Acrodermatitis Chronica Atrophician
Blotchy or mottled skin
Bruise easily
Bruises may take longer to appear, and/or longer to fade
Bull's-eye (Erythema migrans) on light skin (resembles a bruise on dark skin)
Dermographia (minor scratch pressure on skin leaves vivid red welts)
Dry, itchy skin
Easily scar
Eczema or psoriasis
Fragile nails
Frequent skin irritations
Lymphadenosis benigna cutis
Nails that curve under or downward
Overgrowing connective tissue (ingrown hair, adhesions, thickened/split cuticles, cysts, fibroids)
Painful skin (abnormal/excessive pain when scratched or rubbed)
"Paper" skin (feels fragile, tissue-thin when rubbed)
Rashes on body, face
Vertical ridges or beads in nails

Abnormal brain activity in stage 4 sleep
Altered sleep/wake patterns (alert/energetic late at night, sleepy during day
Difficulty falling asleep
Difficulty staying asleep (frequent and/or prolonged awakenings)
Hypersomnia (excessive sleeping)
Myclonus (restless leg syndrome; occasional jerking of entire body)
Nightmares (frequent, extremely vivid and/or disturbing)
Unrefreshing/Non-restorative sleep

Decreased libido
Discharge from breast or galactorrhea 
Frequent urination
Infant: premature; low birth weight; low muscle tone; failure to thrive
Interstitial cystitis
Miscarriage or stillbirth
Painful intercourse
Painful urination or bladder
Pelvic and/or rectal pain
Prostate pain
Swollen testicles
Other symptoms worsen before start of menstruation
Worsening of PMS

Abnormal or other changes in sweating
Activity level reduced to less than 50% of pre-onset level 
Burning sensation (internal and/or external)
Changed voice
Changes in sweat odor/body odor
Delayed reaction to overactivity/exertion (onset 24-48 hours after exertion)
Electromagnetic (EM) sensitivity (electrical storms, full moon, affect function of electrical devices)
Fatigue, prolonged, disabling, made worse by exertion or stress
Fibrocystic breasts
"Galloping" cholesterol and triglycerides
Hair loss (not related to age, hormones, diet, medication)
Hands hurt excessively when put in cold water
Handwriting changes, altering signature and/or other writing
Painful, weak grasp that gives way/lets go
Periods of concentrated thinking causes physical and mental exhaustion, increases pain
Sore throat
Swelling/Idiopathic edema (fluid retention syndrome)
Symptoms worsened by extremes of temperature (hot, cold), stress, and/or air travel
Symptoms change focus from time to time, like infection is moving through the body
Thickened mucus secretions (nose, bowel, vaginal)
Thickened "sleep" around eyes in mornings
Very attractive to biting flies and mosquitoes
Weight changes (usually gain)

Cytomegalovirus (CMV)
Epstein-Barr virus (EBV)
Iron deficiency
Mercury or other metal toxicity
Systemic mold and/or mold sensitivities



Fibromyalgia & Chronic Myofascial Pain. Devin Starlanyl & Mary Ellen Copeland. 2001. New Harbinger Publications Inc.

Chronic Fatigue Syndrome, Fibromyalgia and Other Invisible Illnesses. 2001. Katrina Berne. Hunter House Publishing.

The Interface of Chronic Lyme Disease, CFS and FM. Bonnie Gorman. In, The Update. Massachusetts CFIDS & FM Association. 18(3):1, 35-40. Fall 2002.

Arthritis Foundation

American College of Rheumatology

Fibromyalgia Network

Centers for Disease Control & Prevention: CFS

Jay Goldstein, MD.

Post Edited By Moderator (Traveler) : 7/13/2015 2:49:22 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 8:59 AM (GMT -6)   
Where Can I Find A Doctor To Treat Lyme Disease?

click on their names to get info, addresses, phone nos.

RATES WON'T SHOW unless you see otherwise.

those llmds/llnds who do NOT have websites, their names are NOT shown ... just those who have made their names/treating lyme/co-infections publicly!

Post Edited By Moderator (Traveler) : 3/1/2016 10:26:45 AM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 9:11 AM (GMT -6)   
this thread will likely remain under construction as new information become available to us ... please pardon our appearance!! :-)

Rowingmom's symptom charts for downloading:



When you click on the link it brings you to a "view" of the file;
Then you have to click "open" at the top of the screen to "open with Google Sheets"

YOU WILL NOT BE ABLE TO MODIFY/USE THE FILE WHILE IT IS IN GOOGLE DOCS—I'm indicating that it is readable only but once you download it to your hard drive, you will be able to use it normally.

3. Click on "File" at the top menu bar

4. Click on "Download As"

5. Then choose "Microsoft Excel (.xlsx)

6. And then once you find it on your local hard drive, you can use the file.

Post Edited By Moderator (Traveler) : 9/13/2014 1:03:47 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 10:03 AM (GMT -6)   

Detoxing is extremely important when you are using any anti-infective treatments to rid the body of the Lyme bacteria.

One of the most popular sites lately for information on detoxing for Lyme patients is: It's a wonderful listing of detoxing routines that has been built around recommendations from Lyme patients!!

Thanks to Deejavu for posting this.

Herxing is when bacteria dies - it creates toxins. Plain and simple.

Where do those toxins go? If a person does not detox on a daily basis, they stay in the blood, joints, tissues, colon, everywhere and cause so many problems. Thus below are detoxing instructions:
Edited to add from Traveler:
For a foot soak - which is sometimes easier to fit in your day, although it's not as effective. It's still better than not doing it at all -
I use 1 & 1/2 and up to 2 cups of Epsom salts and 16 ounces of peroxide and soak my feet for 20 minutes.

For the full bath, use 3 - 4 cups of Epsom Salt and 32 ounces of hydrogen peroxide and start with no more than 7 - 10 minutes in the water to start. You can build up to staying in the water for up to 20 minutes, but please start off very slowly!! This has the potential to make you herx if you rush it. smhair

Detoxing Instructions:


Natural Fiber Brush (for dry skin brushing to open up all the pores of the body)
Here is a link so that you can see what kind of brush is being spoken of:

Epsom Salts (the more the better)
Hydrogen Peroxide (bottles of them)
Ginger (fresh) 2 - 4 tablespoons wrapped in a cloth or tea ball (or nylon hose)
Mustard Powder
Cayenne Pepper
Supplements (I use Green Vibrance ~ can be bought at the Vitamin Shoppe)

1. Detox Bath: Put the thermometer in the water to make sure the temperature is around 98 degrees, NOT warmer. (You do not want HOT water as that can make you feel worse).

As the water is running, add 4 to 6 cups of Epsom Salts and entire bottle(s) of Hydrogen Peroxide (32 oz., food grade is 3%). Some use 2 bottles.

Before getting into the bath, you will need a Natural Fiber Brush and do a "dry skin brushing" to unclog your pores always brushing toward your heart, don't forget to brush the soles of your feet too! Deejavu is not in any way affiliated with this company. This link is only provided as a visual aide.

The Epsom Salts help draw out the toxins and at the same time the magnesium absorbs into your bloodstream, most people do NOT have enough magnesium. The Hydrogen Peroxide adds oxygen into your bloodstream which lyme spirochetes hate. Try to stay in the bath a minimum of 20 to 30 minutes, the longer, the better.

Detox Baths are NOT a one time thing. One must do them daily or start off slow and eventually build up to them. One bath will not accomplish much. NOTE: Most people feel "worse" during the first week of detox baths and eventually feel better since it is a cumulative effect.

Epsom Salts and Hydrogen Peroxide: Recent research has shown that one when soaks in a bath of magnesium sulfate, both magnesium and the sulfate independently increase measurably in the blood and urine. Magnesium sulfate helps stabilize Hydrogen Peroxide so that the ultimate breakdown into H2O and free oxygen is more gradual and functional to the process of benefiting the body. This research documents the very real beneficial aspects of this bath therapy.

Actions of Bath Ingredients:

Hydrogen Peroxide: a simple non-toxic molecule of H2O2 that is beneficial in oxidizing (breaking down) toxins as well as killing anaerobic microbes. It will also detoxify pesticides and petroleum-based toxins and oxidize metals. Hydrogen Peroxide is also naturally produced by macrophages in the body to kill harmful bacteria.

The Epsom Salt Council reports this:

Magnesium is the second most abundant element in human cells and the fourth-most positivity charged ion in the body.

The National Academy of Sciences reports: Most Americans are magnesium deficient helping to account for our society's high rate of heart disease, stroke, osteoporosis, arthritis and joint pain, digestive maladies and stress-related illnesses.

Raising magnesium levels may improve heart and circulatory health, reducing irregular heartbeats, preventing hardening of the arteries, lowering blood pressure. Flush toxins and heavy metals from the cells, easing muscle pain and helping the body to eliminate harmful substances.

Ginger: functions to open up pores of the skin and increase the blood flow at the surface of the skin so that the oxygen from the hydrogen peroxide can do its work in detoxifying poisons and kill bacteria and fungi. The pores open wider so that the magnesium sulfate can be more readily absorbed. Ginger is invigorating and can stimulate perspiration for the elimination of toxins.

2. Foot Bath: There are so many "recipes" for foot baths, you can have fun with them and I do them when I am sitting at my computer or knitting on my couch relaxing.

***The Soles of the Feet have the most pores compared to any other part of the body (about 2000 pores per foot)***

Do this 2 to 3 times a day or more if you can for at least 30 minutes.

Mustard/Pepper Bath: Mix the following ingredients in warm water: Dry Mustard Powder (1 tablespoon), Cayenne Pepper (1 teaspoon), 1/2 tsp. dry Ginger Powder, 1/2 tsp. Rosemary Powder and soak for at least 30 minutes. There should be enough water to cover just above the ankles.

This foot soak is used as relief from general aches and pains, toxic headaches, increase blood and lymph circulation as well as giving a sense of well-being.

3. Dry Skin Brush: Once again, a natural fiber brush (can be found at any drug store), brush your entire body toward your heart. Purpose: Getting rid of dead skin that are clogging your pores and keeping toxins inside.

4. Internal Cleansing: Paragone is a good product to get rid of parasites that come from drinking water, eating red meat, raw fish, and processed foods. I also like "living clay" or bentonite clay to drink internally but please read the instructions as it must be taken on an empty stomach. It is a fantastic binder of toxins and heavy metals and your body will not only eliminate them but also rid your body of parasites as well. I also take Aloe Master.

NOTE: People on antibiotics should NOT take any type of clay or activated charcoal closer than 2 hours (before and after) anything that they wish their body to absorb, as the clay or charcoal will bind to it and usher it out of the body just like it does with the toxins.

5. Building Immune System: I drink Green Vibrance Powder (contains billions of probiotics), very expensive but well worth every penny because of all the ingredients. I also take Vitamin C, B Complex, Omega-3 capsules, and other supplements.

Green Vibrance Super Food:

When a person is sick with any illness it robs the body of these much-needed nutrients.

When a person's immune system gets stronger, their body is more capable of fighting off bacteria and viruses on their own. Yes, Lyme disease brings along viruses too.

6. Diet: Avoid all sugar, alcohol, breads, carbs as they convert into sugar, try to eat healthy and avoid acidic foods (soda - any type is the worse thing a person could put into their body), very acidic. Drink as much filtered water as possible (adding fresh lemon is very good), at least 6 glasses a day (like the Brita Walter Filter Canister).

7. Stress: Stress is detrimental to anyone's health and to try to eliminate as much stresses from your life can only benefit you. Of course there are stresses one can not avoid but one can learn how to deal with it in a healthier fashion, having a stressful day? Learn deep breathing exercises, watch a funny movie.

Good book to buy for stress is 60-Second ****zu: The Natural Way to Energize, Erase Pain, and Conquer Tension in One Minute (Paperback) by Eva Shaw****zu-Natural-Energize-Conquer/dp/0805040684/ref=sr_1_1?ie=UTF8&s=books&qid=1202250143&sr=8-1

8. When you feel strong enough, try to start exercising even if it is only yoga as stretching is so good for you and also relaxing. There is meditation if you can't exercise. As you build up your immune system you will get strong enough to do whatever exercise of you like.

Purpose: you are getting oxygen into your bloodstream and lyme bacteria hate oxygen! Plus the extra benefits of exercise is it makes you feel good mentally because it naturally raises your serotonin levels and helps with depression.

9. Find a licensed Lymphatic Drainage Therapist, or learn to practice this on yourself. LDT is another fantastic way to rid your body of toxins.

If you can start doing some of these things, your body will love you for it and you will start feeling so good!

10. Positive thinking - It takes training of the mind but you if really want to do it, you can. We all have choices on how we view life, one can choose to be negative, angry or bitter or just accept that you are ill because acceptance is half the battle with any disease and leads to a more healthy way of life by dealing with it.

What this does for Lyme: By detoxing you are ridding your body of the toxins and ammonia that lyme bacteria cause. By building up your immune system, your body can start killing off the bacteria on it's own.


Juicing or Green Smoothies
detox foot pads
sauna (if you have access to one)
liver/gallbladder cleanse
coffee enema
lymph drainage
organic body products
water testing
parasite cleanse (paragone) or any other reputable product
candida cleanse
essential oils for detoxification
magnet therapy for electromagnetic stress

Some products that reduce toxic load (and even rid the body of toxins) is Dr. Jernigan's Neuro Antitox (there are 3 different formulas (I used the CNS/PNS Formula) and also Molybdenum is helpful.

Detoxifying is much like exercising, you need to do it regularly and in consistent doses in order to get results. You won't get miracle results from one-time use.

Here's to good Health!

Favorite Detox methods and the number of votes for each type of method are listed.

4 reasons why you still feel bad despite detoxing:


11 things that can make a person with Lyme disease feel worse besides treatment:

Shower (cold) - can be helpful for some

Jumping into a cold shower forces the muscles to contract, which in turn moves toxins along to be processed. It also opens the arteries allowing a fresh supply of blood to infiltrate the organs

Once jumping into a cold shower, it takes about a minute for the body to adjust and become comfortable. 3 minutes in the shower will suffice

Warning: Make sure the environment you'll endure after a cold shower allows the body temperature to rise."

Post Edited By Moderator (Traveler) : 4/21/2016 11:15:39 AM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 10:16 AM (GMT -6)   
Igenex Information:

You can order the Western Blot and Co-infections tests through Igenex. If you go to their site, there's information there that list what tests to order.

Here is their contact information:

IGeneX, Inc.
795 San Antonio Rd
Palo Alto, CA 94303

650.424.1196 Fax


Information about qualifying and applying for Disability and SSI:

Information for our Canada residents or for more good info:

Post Edited By Moderator (Traveler) : 3/1/2016 10:23:27 AM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 10:33 AM (GMT -6)   
Quoting Ticker (a former Moderator here):

Western Blot Bands description:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 cross reactive with other spirochetes/bacteria
23-25 outer surface protein C (OspC), specific for Bb(Lyme)
28 outer surface protein D (OspD), specific for Bb
30 outer surface protein A (OspA) (common in European and
one California strain?)
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
39 Bacterial membrane protein A (BmpA); specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane- specific for Bb
93 an immunodominant protoplasmic cylinder antigen associated with the flagellin. Specific to Bb.

Some of the above information may or may not be correct. I have located another source for understanding the bands of the Western Blot here - , which indicates that band 23 is not Lyme specific, and there may be other differences.

Post Edited By Moderator (Girlie) : 12/30/2017 3:34:19 PM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 11:18 AM (GMT -6)   
A shorter Lyme Disease symptom list courtesy of Ticker:

Lyme Disease is known as the great imitator because its symptoms mimic those of many other diseases. Many people who have Lyme, were first diagnosed with Fibromyalgia, Chronic Fatigue Syndrome, MS, ALS or other diseases. They suffered for years and then found out that they have Lyme Disease. Like the other diseases mentioned, tickborne illnesses are extremely debilitating on many levels. Prompt and proper treatment greatly reduces the possibility of long-term complications; however, many people go undiagnosed for long periods of time and the disease becomes very chronic. I am hoping this post may help.

Lyme Disease is a multi-system bacterial infection caused from the bite of an infected tick. It is the second fastest-growing infectious disease in the United States after AIDS. This is very significant, yet little is being done to educate people about its seriousness and prevalence. Many people who are bitten do not know it because ticks are tiny and they inject a numbing agent so you cannot feel them. Lyme Disease is difficult to diagnose because no test is completely reliable. As a result, it is grossly underreported. Many people have it and do not know it. Often, doctors falsely believe that Lyme exists only in the northeast, when in fact it has been reported in every state.

Below is a Lyme Disease symptom list:


Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

Ticks can also transmit several serious co-infections:

--Babesiosis is similar to malaria. It is caused by a protozoa that invades, infects and kills the red blood cells. Symptoms include chills, sweats, fatigue, headache, weakness, muscle aches and pains, dizziness and heart palpitations.

--Ehrlichiosis is an infection caused by a rickettsiae (a bacterial parasite) that invades and infects the white blood cells. There are two types of Ehrlichiosis--HME and HGE. Symptoms include fever, malaise, headaches, chills, sweating, severe muscle aches and pains, nonproductive cough, abdominal pain, nausea, vomiting, and diarrhea.

--Bartonella is also known as cat scratch fever and has recently been attributed to tick transmission

Many people who have Lyme Disease have one or more of the co-infections. These illnesses are treatable with high-dose antibiotics. It is very important to see a knowledgeable doctor because many doctors do not understand these illnesses and treat them with outdated protocols. A bullseye rash is a definite sign of Lyme Disease, but only about 50% of people who have Lyme ever get a rash. If you get a rash, it is a good idea to photograph it for documentation. Place something near it, like a coin or ruler, before photographing to give it size definition. That way you have evidence of it if needed later. Here are a couple of sites where you can see some, not all, examples of Lyme rashes:


The best defense against Lyme Disease and other tick-borne infections is prevention and education. There is a wonderful tick repellent you can buy for your clothing at Wal-Mart in the sporting goods section for about $5.00. It is called Repel Perma One. You spray your clothes and let them dry at least 2 hours before wearing (read the label entirely). If a tick even walks on them, it will die instantly. This is for your clothing only. It will last for up to two weeks or through five washings. You will still need a repellant for your skin. Research to determine which products are safe and best for children.

Wearing light-colored clothing allows ticks to be seen easier. Realize that ticks can be as small as the period at the end of this sentence. Long sleeve shirts and long pants with clothes tucked in properly, reduce the amount of skin exposed. Also wear a hat. When coming inside after outdoor activity, remove your clothes promptly and wash and dry them at the hottest temperatures possible. Check for ticks on yourself, your children, and your pets--including under arms, behind knees, behind ears, on scalp, bellybutton etc.

If you find a tick, the only safe way to remove it is with tweezers only. Bring tweezers as close to where it is attached to skin as possible, and grasp its mouthparts. Pull the tick straight back. Do not burn it with a match, do not put Vaseline or alcohol on it, and do not remove it with your fingers. Any of these methods will increase your risk of infection. Save it in a Ziploc bag, it can be tested for disease at IgeneX lab in Palo Alto, CA.

"Everything You Need To Know about Lyme Disease" by Karen Vanderhoof-Forschner. It gives a lot of information on the disease, symptoms, treatments, tick identification and prevention, managing your property etc. Most bookstores can order it if it is not in stock or you can buy it on-line.

Post Edited By Moderator (Traveler) : 7/7/2017 12:39:54 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 11:36 AM (GMT -6)   
Probiotic information shared by member, Healing98:

When I started taking abx, everyone here strongly encouraged me to take probiotics. Something called acidophilus. Well, I went to the store and looked around. I found some that I had seen advertised on TV which seemed expensive to me, and next to them, some generics for just a few bucks with like 9B cultures in it. Not being wealthy, I went for the cheap stuff.

Well, I started taking it but I didn't notice a difference. Because of this, I would take it sometimes, and other times, I was either too lazy or forgetful to take them.

But then, many months later I began to have digestive issues. How could I if I was taking probiotics? So like anything else, I began to do research. Wow! I could not believe what I was reading… there is a whole new world out there!

So After months and months of research, I thought that I would share my experience with you because I wish someone had told me this from the start. If someone did, maybe it went in one ear and out the other (grin).

There are lots and lots of probiotics, not just acidophilus. These probiotics come in bacteria and yeast form.
We have our guts filled with these bacteria and yeast. It is called microflora.

From what I have read, these micro flora make up to 70% of your immune system, they protect you from infections, bad bacteria and yeast and scour your food for nutrients which are then made available to your body. Have you heard of people who are lactose intolerant? There is a probiotic for that. Have you heard of someone who can’t extract vitamin B12 from food? There is a probiotic for that. Maybe someone you know doesn’t get enough fiber from food? There is a probiotic for that.

So as you can see, many of our digestive ailments could be because we lack a certain bacteria in our gut. As a matter of fact, probiotics are added to baby formula. I didn't know that!

And so what happens when we use antibiotics? Well, some are gentle enough that they don’t mess your gut too much. Some are horrific on your gut. One thing that they have in common is that they kill your bad bacteria but also your good bacteria, making you vulnerable to infections.

For me personally, I have found that Bactrim, Rifampin and Doxycyclin give me severe stomach issues. Are they worse than other antibiotics? I don't know, but my tummy seems to think so.

OK, so what am I am doing for it? Well, there are five major factors that I have found to take into account when choosing a probiotic.
1. Whether it is bacteria or yeast based.
2. The quantity of beneficial bacteria in it (in the billions)
3. How many different strains of bacteria are in the product
4. If the probiotic comes with enzymes, bile or other digestive aids
5. Whether the probiotic is shelf safe or if it needs to be refrigerated. Seems that the better probiotics are refrigerated.

I found a probiotic from NOW products that is doing great for me. Intestinal pains, bloating and ulcer pain have either gone away or diminished. I still have acid reflux from a weak LES but at least my other pains are gone.

One more thing, I used to go to the bathroom (number 2) once a day and after taking this, I now go two or three times (which is a good thing). I don't own stock on NOW brand and mention it here as a reference only. The probiotic is named “NOW Probiotic-10 50 Billion” and contains 10 strains of probiotics: Lactobacillus acidophilus (La-14), Bifidobacterium lactis (BI-04), Lactobacillus plantarum (Lp-115), Bifidobacterium lactis (BI-05), Lactobacillus rhamnosus (Lr-32), Strepto. thermophilus (St-21), Lactobacillus paracasei (Lp-37), Bifidobacterium breve (Bb-03), Lactobacillus salivarius (lS-33), Lactobacillus casei (Lc-11)

I also wanted to share with you a website ( that I use as reference and one that I use to find out what each probiotic does. It has great information and references if you want to search further.

For example:
-- Lactobacillus Rhamnosus prevents urinary tract infections, aids in dairy product digestion, decreases duration of diarrhea.
-- Strepto Thermophiles prevents transformation of nitrates into cancer-causing nitrites and helps with chemotherapy side effects.
-- Bifidobacterium breve inhibits e coli, produces lactic acid and acetic acid. It also breaks down fiber and other types of food that are considered non-digestible.
-- Lactobacillus salivarius is instrumental in reducing at least five bacteria associated with the formation of plaque. It also helps the immune system response to colitis and septic shock.
-- Lactobacillus casei: This one is especially good for crohn’s disease. It also produces lactic acid, helps control diarrhea, alleviates constipation, and modulates the immune system.

So there you go, next time someone tells me to get probiotics, I will know that not all probiotics are the same and that some research needs to be done to find out which are most beneficial for me.

I also just got some free kefir grains that I am going to use for making kefir and can't wait to try it.

In some website, they mention the following beneficial bacteria and yeast that are in kefir:Lactobacillus Caucasus, Leuconostoc, Acetobacter species, and Streptococcus species. Beneficial yeasts, such as Saccharomyces kefir and Torula kefir are also in it.

The thread that this originated from can be seen here:

Post Edited By Moderator (Traveler) : 11/21/2014 3:33:46 PM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 11:52 AM (GMT -6)   
Here is a list of Medical Abbreviations that are used on forums:

Abx = antibiotics
AB = antibody
Abd = abdomen
AC = before meals
Ad Lib = as much as needed
ANA = Anti Nuclear Antibody
ART = Autonomic Response Testing
Babs = babesiosis/babesia
Bart = bartonella
Bb = Borrelia burgdorferi
BBB = blood brain barrier
BID = twice a day
BIW = twice a week
BPM = beats per minute
BP = blood pressure
BPP = blood pressure and pulse
BUN = blood urea nitrogen
Bx = biopsy
CAT = computerized axial tomography
CBC = complete blood count
CC = chief complaint
CN = cranial nerves
CD-57 = Subset of NK cells
CNS = central nervous system
C&S =culture and sensitivity
C/O = complaining of
CRP = c-reactive protein
CSF = cerebrospinal fluid
DAW = dispense as written
DC = Discontinue
DDx = Differential Diagnosis
Dx = diagnosis
DTR = deep tendon reflexes
EEG = electroencephalogram
ELISA = enzyme-linked immunosorbent assay
EM = erythema migrans(Lyme rash)
ENT =Ear, nose, throat
EMG = electromyography
FISH = Fluorescent In-Situ Hybridization
GTT = Glucose tolerance test
Herx = Jarish-Herxheimer reaction
HBO = Hyperbaric Oxygen therapy
HBP =High Blood Pressure
HGE = Human Granulocytic Ehrlichiosis
HME = Human Monocytic Ehrlichiosis
HLA = Human leukocyte antigens
HDL = high density lipoprotein
HO = history of
Hx = history
HS = at bedtime
HPI = history of present illness
IC = between meals.
ILADS = International Lyme and Associated Diseases Society
ID = infectious disease
Inj = inject
IFA = immunofluorescent assay
IgE = Immunoglobulin E
IgG = Immunoglobulin G
IgM = Immunoglobulin M
IM = Intramuscular
IU = International units
IV = intravenous
LD = Lyme disease
LDF = Lyme Disease Foundation
LDA = Lyme Disease Association
LFT = Liver Function Test
LL = lyme literate
LLMD = Lyme Literate Medical Doctor
LP = lumbar puncture
MAC = maximum allowable concentration
MIC = minimum inhibitory concentration
MgD = magnesium-deficient
MRI = magnetic resonance imaging
MU = million units
NE = neurological examination
Neuro = neurology, neurological
NCS = nerve conduction study
NK = natural killer cells
NMH = neurally mediated hypotension
NP = nurse practitioner
NSAID = non-steroidal anti-inflammatory drug
N/V = nausea vomiting
OCD = obsessive compulsive disorder
QD = once daily
OTC = over the counter
OV = office visit
O&P = ova & parasites
PA = physician assistant
PCR = polymerase chain reaction
PO = by mouth
POTS = postural orthostatic tachycardia syndrome
PRN = as needed
PT = patient
PT = physical therapy
QAM = every morning
QID = four times a day
QM = every morning
QOD = every other day
RMSF = Rocky Mountain Spotted Fever
Rx = prescription
SC = subcutaneous (under the skin)
SOB = Shortness of breath
SPECT Scan = Single Photon Emission Computed Tomography
SX = symptom
TBD = Tick Bourne Disease
TBI = tick borne illness
TID = three times a day
TTT = tilt table test
TX = treatment
UA = urinalysis
UTI = urinary tract infection
VCS = visual contrast survey
WT = weight
WB = western blot
WBC = white blood cells
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:17 PM (GMT -6)   
Waterproof Picc Line Cover/Protector:

Many out there, look for quality

Cloth Picc Line Cover:

Post Edited By Moderator (Traveler) : 1/23/2014 3:59:44 PM (GMT-7)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:27 PM (GMT -6)   
Great Links To Read And Learn From:
New 2014 treatment guidelines from ILADS (International Lyme and Associated Diseases Society)!!

Under Our Skin DVD Information:

Great Doxycycline Information- Do's And Dont's

Everything you need to know about NK Striker CD57 Test:

Dr. Burrascano's diagnostic hints and treatment guidelines for Lyme and other Tick Borne Illnesses: "Advanced Topics in Lyme Disease"

The Lyme Disease Foundation- Get Tick removal kits here:

The Human Side Of Lyme:

"Late and Chronic Lyme Disease"
by Sam T. Donta

Psychological Effects Of Lyme

"The author describes the histories of three patients with panic-like episodes that turned out to be related to underlying, previously unsuspected tick-borne diseases."

"In a published study,one-third of psychiatric inpatients showed
signs of an infection with the Lyme spirochete, Borrelia burgdorferi. It has been found that that even severe neuropsychiatric behavioral symptoms in this population can often be reversed or ameliorated when a multi-system treatment program targeting Lyme disease is used."

Post Edited By Moderator (Traveler) : 4/21/2016 11:26:34 AM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:41 PM (GMT -6)   
Prescription Assistance Programs:

There are a ton of resources listed in this link covering all kinds of thing we may need as we go through treatments!! Please check it out~

Since some people may not have much experience with ordering item - specifically supplements and things we need for treating these infections online, here is a list of online companies that members have had good experiences with:


Monterey Bay Spice company - or Herbco

1st Chinese Herbs
Or, their new site:

Natural Healthy Concepts

Amazon smile - they will donate a small percentage of each purchase to your chosen charity - and they have several Lyme charities you can choose from as well!!

**One caution about purchasing supplements on - there is the potential for counterfeit products because 3rd party vendors can sell directly to consumers via Please be careful and research the seller and products (read reviews!) prior to making purchases.

Amazon for the UK:

Sage Woman Herbs (excellent place to buy tinctures. More affordable than some others and shipping is wicked fast)

Green Pasture (great place to get fermented cod liver oil, coconut oil, etc...)

Elk Mountain Herbs (other great place to buy tinctures)

Chris Kresser (I buy Prescript Probiotics here)

Green Dragon Botanicals

Mountain Rose Herbs (very high quality bulk herbs)


Although expensive, this site sells pure, high quality supplements (including cistus incanus and japanese knotweed, cilantro, neem, and samento) - not as low cost for everything as they used to be, but is a good back-up site for when something is out of stock at other websites... - for those in to homeopathic medicine, this is an excellent place to get a wider range of remedies and potencies than what is typically available in a health food store.

Essential Oils -

The Natural

I would NOT recommend Herbalcom. The herbs I bought from them weren't very good quality, and other people have had issues with them.

Good for lots of affordable Vitamins you may need in bulk:

Young Living Essential Oils - great products and excellent customer service.

Post Edited By Moderator (Traveler) : 9/27/2016 8:41:48 AM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:43 PM (GMT -6)   
Different Rashes And Tick Pictures:

Lyme Rash(EM Rash) Pictures:



Pictures of different kinds of Ticks:

Rocky Mountain Spotted Fever(RMSF) Pictures:
First 3 pictures

Bartonella Rashes(Cat Scratch Fever):

Bartonella rashes are near the bottom of the page - they look like scratches or varicose veins


Post Edited By Moderator (Traveler) : 7/7/2017 12:57:35 PM (GMT-6)

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Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:45 PM (GMT -6)

Anti-infective therapies or approaches that can feature the JH(Jarisch-Herxheimer):

Antibiotic/antifungal therapies < LI>Oxidative therapies
Ultraviolet Blood Irradiation 
Hydrogen Peroxide therapy 
High dose vitamin C therapy 
Induced Hyperthermia 
Sunlight exposure 
Various herbal therapies 
Bee sting reactions 
Iodine reactions

The Herxheimer reaction (also known as Jarisch-Herxheimer or Herx) occurs when large quantities of toxins released into the body as bacteria (typically Spirochetal bacteria) die, due to antibiotic treatment or rapid detoxification.

The more typical JH reactions to anti-infective therapies are: worsening of symptoms, febrile states such as night sweats, flu-like picture, hot swollen joints, mental depression and fatigue. I recommend home therapies designed to clear the blood and make the patient more comfortable. My routine calls for baths in hydrogen peroxide and Epsom salts. These baths are very effective and have tremendous anti-infective effects. They may work for only a short time at first and may need to be repeated. The peroxide easily enters the body through the skin and rapidly detoxifies and sterilizes the blood. There will be a marked reduction in tight muscles that can be a part of a JH reaction. Unfortunately peroxide can have a JH reaction of its own, but this is more pronounced when it is used IV rather than in a bath. Magnesium in the Epsom salts also passes easily systematically; it has a local anesthetic, antispasmodic effect and an overall improvement in the performance of most systems. Oral peroxide is available but not discussed here. The IV route for both peroxide and magnesium is used to stop the JH reaction in office management. The same benefit of blood detoxification and general enhanced clearing of tissue toxins and bacteria can be claimed for high dose ascorbic acid (20-50 GMs IV). Vitamin C can be given in oral form too. Ascorbic acid powder equals about 5 grams per level teaspoon. This dose can be taken with water or juice as often as needed or until there is GI intolerance such as diarrhea. The clinical effects are similar to peroxide. In fact, the two can be given to a patient on the same day with excellent results. It must be remembered however; the vitamin C will also neutralize peroxide and thus should always be given after the bath. Mild JH reactions are also seen with vitamin C therapy again mainly when given IV. Such therapies as peroxide baths and vitamin C are easy to do at home and extremely effective at helping patients make a quick, safe recovery from a JH reaction.


"FDA drug library screen to identify drugs that are effective against dormant B. burgdorferi persisters"

Post Edited By Moderator (Traveler) : 8/9/2014 11:30:56 AM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:49 PM (GMT -6)   
U.S. Helplines

National Suicide Hotline

1-800-SUICIDE (1-800-784-2433)

This is a combined network of the Amerian Association of Suicidology, the National Hopeline Network, CONTACT USA, and many other organizations. Call are automatically routed to the nearest crisis center to the phone from which the call for help is placed.

NDMDA Depression Hotline | Support Group. 800-826-3632

Suicide Prevention Services Crisis Hotline 800-784-2433

Suicide Prevention Services Depression Hotline 630-482-9696

AAA Crisis Pregnancy Center 800-560-0717

Child Abuse Hotline | Support & Information 800-792-5200

Crisis Help Line | For Any Kind of Crisis 800-233-4357

Domestic & Teen Dating Violence | English & Spanish 800-992-2600

Parental Stress Hotline | Help for Parents 800-632-8188

Runaway Hotline | All Calls are Confidential 800-231-6946

Sexual Assault Hotline | Up 24/7 - In English & Spanish 800-223-5001

Suicide & Depression Hotline | Covenant House 800-999-9999

-------USA National Hotlines-------

National Child Abuse Hotline 800-422-4453

National Domestic Violence Hotline 800-799-SAFE

National Domestic Violence Hotline (TDD) 800-787-3224

National Youth Crisis Hotline 800-448-4663

------Online Hotline Resources--------

Or go online for help:

------Online Hotline Resources--------


There's even a suicide prevention with texting!!!
Need Help? Text “CTL” to 741741.

CTL (Crisis Text Line) helps individuals in crisis by connecting them with a compassionate, trained listener through a toll-free texting service. CTL is available nationwide and 24/7 for more information about this option.

Please keep reaching out to people that can understand what you are dealing with. You can beat these feelings!!

Sex Addicts Anonymous website .

Metanoia : Online Therapists

U.K. Helplines

The Samaritans 0845 790 9090

Child line 0800 1111

National AIDS helpline 0800 567 123

Women’s Aid National Domestic Violence Helpline 0345 023 468

Sexual Abuse Centre 0117 935 1707

Counselling (Youth) - Maidenhead 01628 636 661

Youth Info Services - Milton Keynes 0173 334 9932

*** & Gay Switchboard 0121 622 6589

Lothian Gay & *** Switchboard - Scotland 0131 556 4049
Peter's links:
Helpful Web Sites:
Suicide Hotlines (listed by state) (includes Suicide Crisis Center and Depression and Suicide)

Post Edited By Moderator (Traveler) : 4/21/2016 1:43:06 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/5/2009 5:53 PM (GMT -6)   

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 10/5/2009 6:20 PM (GMT -6)   
Maybe this will help in understanding why some of don't (or more appropriately, can't) respond to one specific tx :

There are (quoting from Dr. Cowdens' writings);20 - 30 different species of Borrelia, besides Borrelia burgdorferi (which causes LD) - most labs look only look for the one (B.b) and they 'cycle' (meaning their life-cycle) every 3 -4 weeks.

There are more than 32 species of Bartonella that are pathological to humans.

Babesiosis - There are more than of 14 species of this little guy, and they cycle every 2 -3 weeks.

I'll spend some time searching around to find more info such as this - as long as I can remember what I"m looking for!!!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 10/5/2009 6:29 PM (GMT -6)   
In Dr. Schallers' writings on the Western Blot;

A W.B. is not either positive or negative. If a person has on "fingerprint band", they have Lyme Disease. These highly specific bands, widely accepted in the world literature, are 13, 14, 17, 21, 23, 24, 25, 28, 31, 34, 35, 37, 39, 47, 50, 54, 83, 93, & 94.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.
- Traveler
"Conditions": Lyme Disease, STARI, RMSF, Hashimoto's Thyroiditis, Neuro LD, FM, Chronic/acute EBV, IBS-C, Diverticulosis (& "itis") & now Lyme arthritis (?).

Veteran Member

Date Joined Aug 2005
Total Posts : 4441
   Posted 10/8/2009 7:54 PM (GMT -6)   
Many people prefer alternative medicine options and it may be a good idea to list some of the books are out there (some people may also be allergic to conventional antibiotics as well). Thus, I would put this in:

Lyme Alternative Medicine Books

The Homeopathic Treatment of Lyme Disease
by Peter Alex, translated by Doug Smith © 2007
Description: "This is one of our most exciting new books. Part of our excitement about this book arises from the fact that it was written by a German health care provider--we believe that healing from Lyme Disease requires a global perspective that looks beyond the borders of the United States. We are also excited because this book's subject is homeopath--a healing modality which is generally considered to be among the most powerful methodologies in the world."

Lyme Disease and Modern Chinese Medicine
by Dr. QingCai Zhang; © 2006
Description: "What is modern Chinese herbology and how does its phytopharmacology match with the pathophysiology of Lyme disease? What are the shortcomings of conventional Western approach in treating chronic Lyme disease? How does MCM treat Lyme disease with herbal remedies and what are the phytopharmacology of these herbal remedies? This book is a comprehensive discussion about traditional and Modern Chinese Medicine and aims to answer these questions in detail."

Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections
by Stephen Harrod Buhner; © 2005
Description: "Healing Lyme examines the leading, scientific research on Lyme infection, its tests and treatments, and outlines the most potent herbal medicines and supplements that offer help--either alone or in combination with antibiotics--for preventing and healing the disease."

Chronic Fatigue, Fibromyalgia, and Lyme Disease
by Burton Goldberg, Larry, Jr. Trivieri; © 2004
Description: Although there is only one chapter dedicated to Lyme disease, the entire book provides information that may be useful to Lyme patients. Anecdotal cases are presented.

The Top 10 Lyme Disease Treatments
by Bryan Rosner, James Schaller; © 2007
Description: "The practical guide to understanding modern treatments and building a comprehensive treatment plan."

Lyme Disease: How to avoid, detect and treat
by Ronald L. Hoffman; © 1994
Description: This booklet lists supplements that may be beneficial to Lyme patients.

Lyme Disease Alternative medicine can help
by Hannelore Helbing-Sheafe, Ph.D., Hannelore Helbing-Sheafe; © 2004
Description: The amazon review reveals that this book was written by a Lyme patient who also has a holistically oriented practice.

Beating Lyme Disease: Using Alternative Medicine and God-Designed Living
by David A. Jernigan, Sara Koch Jernigan © 2004
Description: This book focuses on takes a different route from the others is discussing lifestyle, bioresonance scanning, etc. Product recommendations include the Jernigan line of neutraceuticals.
Also See: Surviving Lyme Disease Using Alternative Medicine
And Jernigan Neutraceuticals

Actually, the above book is no longer in print. The newer book is called "Beating Lyme Disease" 2nd edition and the link is:

There are also Stephen Buhner's books. It's hard to find a single link for all of his books without using a site that is selling those books, so I chose to post Amazon's list:

And don't forget to check for "e-books" as well, as they are often lower in price than the print editions!

To order The Cowden Protocol, click on link below:

Free e-books explaining The Cowden Protocol:

for those that are interested in the "Chronic Tonic" that Traveler used:

Post Edited By Moderator (Traveler) : 4/21/2016 2:15:14 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 8/13/2010 4:31 PM (GMT -6)   
Lyme Disease Protocols: (Thanks Simela for these links)

I found an website with several protocols:

And a run down of some of the more popular treatments, and what antimicrobials (abx, herbs) are used (not doses though):

A run down of the different testing that may be used to diagnose Lyme and other tick-borne infections, and how they are used:

Post Edited By Moderator (Traveler) : 9/27/2016 9:23:44 AM (GMT-6)

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 11/15/2010 11:07 AM (GMT -6)   
Places where your local gp (or any other doc) can get educated about Lyme;

With so many of us having to find a way to get treatment & end up trying to educate the doc we end up using, I thought this would be a really good post to keep here in the "sticky".
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

Post Edited (Traveler) : 7/19/2015 5:31:30 PM (GMT-6)

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 3/31/2011 5:00 AM (GMT -6)   
Dr. Burrascano's Notes From March 21st Talk:
Very good information and I encourage everyone to read this. Thanks GWB(Gary)!
Co-Moderator- Lyme Disease Forum

Lyme Disease, Fibromyalgia, Hashimoto's Thyroiditis, Rheumatoid Arthritis
Prescription Meds:Sulfasalazine(RA), Medrol pack(Steroids), Cymbalta(Fibro),
Oxycodone(BT Pain), Tramadol

Supplements:Folic Acid, Probiotics, Vitamin D, Multi Vitamin

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 5/22/2011 9:43 AM (GMT -6)   
Hi All,
I just found a social network for teens with Lyme Disease! Please share this with any teens that you may know who need to be with other teens going through this ordeal with tick-borne infections.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.
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