Too tired to breathe???

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Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 10/7/2009 4:42 AM (GMT -7)   
Can this horrible fatigue really be from Lyme?  I've been feeling a strange sensation in my chest - as if I'm too tired to breathe, as if the effort required to take a breath is more than I can manage. sad
I'm not wheezing or coughing, so I doubt it is my Asthma...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


Willowrose
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Date Joined Oct 2009
Total Posts : 699
   Posted 10/7/2009 10:24 AM (GMT -7)   
Razzle,
I get similar symptoms including chest pain, chest heaviness, and shortness of breath. I feel like I can't get enough air. My LLMD said the babesia can cause those symptoms. When I feel like that, if it lasts more than 24 hours, I call my doctor to check in. Just because I have Lyme, et. al., doesn't mean I can't also develop a heart problem. Have you been checked out since you've been feeling this way?

Rose

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 10/7/2009 12:20 PM (GMT -7)   
Razzle this isn't fatigue-- have it checked out- so many things could cause it........
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 10/8/2009 1:41 AM (GMT -7)   
Doctors blow me off as a nutcase on stuff like this, since nothing ever shows up wrong on their lung or heart tests. So I really don't know what to do...
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 10/8/2009 8:31 AM (GMT -7)   
Razz, I don't know what you need to do either, but gosh, you gotta do something!? This sounds very serious! could it have anything to do w/ your lupus?

does it come and go? How long does it last when it comes on? Do you have anyone that could run you to the hospital when it comes on so that you can be seen like this?

Please keep us posted! I am sorry about everything you are suffering, while I sit and whine and want to give up and I don't suffer a fraction of what you do!

Please find someone to help you, somehow!


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause? 
CD57= 60, so we're in pretty good shape.
 


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 10/8/2009 11:48 AM (GMT -7)   
razzle, how are you now? I noticed you made this post yesterday. Just know that i posted similar symptoms and yes- nothing shows up on tests apparently- perhaps emotionally this disease is too hard to cope with? I have been debating whether i should go get my heart checked again for the zillionth time- i just don't want to hear them say nothing's there when obviously something is- i have the chest pain right now- and my feet keep going numb. blue toes sometimes too...

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4303
   Posted 10/8/2009 5:42 PM (GMT -7)   
Oh Razzle,
 
I really feel for you..   I hated when doctors looked at me like a nutcase!  But I hate it more that you are having problems breathing..
 
I was brought up with Vick's Vapor Rub in this antique Green Glass Thingy.   It worked when we had problems breathing (from colds or whatever we had as kids)...
 
Maybe the menthol from the Vicks would open up your passageways or something like that?
 
Just a thought,
Denise
 
P.S.:  Not affiliated with Vicks in any form or way yeah
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/8/2009 6:14 PM (GMT -7)   
My "Lupus-like syndrome" is from Lyme, but I have to call it a connective tissue disorder around non-LL doctors.

I still feel too tired to breathe. The only time I don't feel as exhausted is in the middle of the night (really major insomnia has been a big problem for months).
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/8/2009 6:22 PM (GMT -7)   
It's not my airway, I can breathe ok, just something in my chest feels tired & worn out & wants to take a break for a while. Thanks for the suggestion though.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/9/2009 6:12 AM (GMT -7)   
I had what you describe. I think its what my LLMD called air hunger. I remember being in a hospital ER concentrating on breathing. I felt like if I didn't mentally and physically concentrate on my breathing it would stop.

saxmar

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/9/2009 11:32 AM (GMT -7)   
Razzle,

Do you think air hunger sounds like what you are experiencing? I've had that too. Got tested for asthma twice - negative. I've been told air hunger is a symptom of babesia, but that doesn't make it any more comfortable. I found that air conditioning makes it worse. The things I found that helped: The doctor gave me an inhaler that helped some; maybe one of those would help you too. Also, chewing ice helped alleviate my symptoms.

Rose

saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/9/2009 3:32 PM (GMT -7)   
R

When I had air hunger my LLMD did talk to me about babesia being a cause.

saxmar

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/9/2009 4:05 PM (GMT -7)   
Doesn't feel like air hunger (I've had this in the past, too), feels more like tired muscles that are needed for breathing. I had a pleural effusion (fluid in the lining of the lung) in March of this year, and I'm starting to wonder if there is some scar tissue from the pleural effusion that is contributing and/or causing this tired muscle feeling...

Thanks everyone for your inputs. I think if I still feel this way on Monday, I'll talk to my LLND about it and see what he says...he's the only doctor I have who doesn't blow me off.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4303
   Posted 10/9/2009 4:20 PM (GMT -7)   
Hi Razzle,
 
I just want you to know that I am thinking of you and I hope you start feeling better....  I wish I had some really good advice for you but I don't... 
 
Hang in there okay?
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


Kristiana
Regular Member


Date Joined Jun 2009
Total Posts : 22
   Posted 10/9/2009 10:03 PM (GMT -7)   
Hi Razzle,
That's exactly the way I explain it to the doctors and my family.  I usually say "my lungs are tired... they feel like they are too tired to breathe."  Being so physically exhausted and not sure how to fix it, makes it frustrating.  No one really knows what to do for you.  I went to the Cardiologist last week and he did an Echo and an EKG and said the heart looks fine.  But the unbelievable fatigue makes it feel like it's a huge effort just to breathe.  I'm glad to hear someone else who knows what I'm talking about.  I wish it wasn't happening to us but just know you aren't the only one. 
Kristiana

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/10/2009 5:12 AM (GMT -7)   
Thanks Deejavu and Kristiana.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 10/11/2009 4:14 PM (GMT -7)   
Hi Razzle,

Please talk to your llmd or llnd right away. The things I am thinking of that can cause this are nothing to fool around with. There are infections, fluid buildup, heart/lung issues, electrolyte imbalances etc. that can singly or as a group contribute to these symptoms. Please do check it out sooner than later. We will be thinking of you. Please let us know how you're doing and what the doc says. I hope this improves quickly.

Best wishes, bablylmers mom

rover
New Member


Date Joined Aug 2010
Total Posts : 1
   Posted 8/5/2010 8:09 AM (GMT -7)   
I know this thread is almost a year old, but I was wondering if the issue has been resolved?

I also suffer from feeling too tired to breathe at times. I've attributed it to a heart issue, which seems consistent with other symptoms (some dizziness, etc) but I've also not gone to a doctor as, whenever I do, I get the smirky "you're a hypochondriac" look and almost useless advice.

So, curious what has come of this. Please update if possible.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 8/5/2010 11:47 AM (GMT -7)   
Hi Rover, and welcome to the forum. Interesting to read this post after so much time. What struck me is the familiar sentiment that seeing a doctor won't work. My wonderful GP of many years moved out of the area eight months ago and I'm still trying out new doctors to replace him. Any doctor who thinks it's his/her job to reassure me that nothing is wrong with me when I'm there saying something is, fails. So far I still don't have a doctor.

Rover, I hope your symptoms are not from a heart issue, but if they are, pestering a doctor until you get an answer seems a wise if unpleasant course of action. I've been that tired; it's difficult to make it through the day in that condition. Another thing I can think of is maybe sleep apnea - have you been tested? Has anyone ever told you that you snore?

I hope you feel better soon.

Rose
I have Lyme; it doesn't have me.

Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 8/5/2010 12:38 PM (GMT -7)   
I have had exactly what you describe too. I had it years ago before I actually got my lyme diagnosis. I felt like I couldn't actually get a breathe in. It lasted a long time from what I can remember. I even joined a yoga class because I thought it would help me be able to breathe. It didn't and at the time I didn't yet know I had lyme. It should get better and eventually it will go away. Every now and again I feel like someone is sitting on my chest, but it always passes and nothing I worry about anymore.
 
I know for me too the more I thought about it and worried about it the worse it made it. It's hard to relax when you think you can't breathe, but the good news is you can and you are and you will continue to do so. It's more just a feeling than something actually going on other than the lyme. Just my opinion from my experiences, but of course as with anything, if it gets worse it can't hurt to get checked out for peace of mind.
 

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 8/5/2010 2:41 PM (GMT -7)   
Thanks for asking about this. I was put on Singulair for my Asthma, and that seems to have resolved this sensation (not sure why) -- we'll see how I do in October this year, because that is my bad Asthma time of the year usually.
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/6/2010 2:08 AM (GMT -7)   
Razzle:
I had went to the ER once, with breathing problems/pain. Nothing showed up. I thought I was going to have a heart attack! So, it may be just a musle torn or the Lyme--not sure, it seems you have other health problems. I don't have any other health problems except Hypothyroidism. It was sure scary and so unbearably painful! It went away on its own, after a few days.

Hope you'll feel better soon!

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 8/6/2010 9:26 PM (GMT -7)   
Hi Razzle,

How you doing?

I haven't had the elephant on my chest thing in a long time. have you beem shecked for parasites like stronglylides?
hep c , lyme
Dad has lyme

not again
Regular Member


Date Joined Jun 2008
Total Posts : 264
   Posted 8/7/2010 1:31 PM (GMT -7)   
wow I was just going to post about this today. I just started getting this two weeks ago. I was not sure if it was from starting another round of meds like a herx, or a symptom of one of my co infections. I have not taken the meds since, and than this week I took Fluconazol and it happened again the next day. So I just did a lot of detoxing and feel better today. So not sure what is was. BUT IF ITS A NEW SYMPTOM i HOPE IT STOPS. It is scary.

cupcakes
Regular Member


Date Joined Feb 2010
Total Posts : 34
   Posted 8/8/2010 12:42 AM (GMT -7)   
I have had this too, and especially before going to sleep. Sometimes I'm afraid of falling asleep because I tend to wake up from me not breathing and having to take a deep breath. And it is as it's hard to breathe in properly, as if it only goes to the bottom of my throat and not into my lungs. In the past supplements or iron have helped me, as I have been anemic and hard of breathing is common with this I believe. Also once I had this it was resolved when I let out a lot of emotion, as if it was built up bad emotions that were making my chest tight.

Hope it gets resolved! x
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