yes, I've also read that Lyme is a CLINICAL diagnoses, yet ir does not stop doctors telling me to just relax and enjoy life..
From ILADS I have found a clinic in Germany (I am in Europe), they will do the tests. They have a LLMD at that clinic, too. But it is a whole different country, and where I live I know of no LLMD.
My MD told me I don't have Lyme because it did not stop after 2 weeks of a/b. And besides, LD does not cause severe joint pain... this in a country where 25% of ticks are borrelia infected. Our infectious disease guidelines rely solely on blood tests for dg. hopefully, that german lab can sort it out.
I keep fighting because .. I love to dance so much that I can't afford staying in bed :))))
Probably tick bite August 2007, while 8 months pregnant
Severe Knee arthritis started February 2008, Dx - Reactive Arthritis, which subsequently took over all large joints
Elisa IgM and IgG both Negative, Western Blot IgM - Negative
2nd diagnoses April 2009 - probably seronegative Lyme disease
treatments so far unsuccessul. (2 week ab twice), Currently no meds, but naturopathic supplements
I still hope :)