I think what I read by Ginger Saverly (sp?) was that she believes a better range for the CD57 would be 100 - 360, not 60 - 360. Also, Dr. B. states that patients that stop treatment with a CD57 below 150 are more likely to relapse. I think most LLMD would suggest treatment based on symptoms and not just your CD57 score. I know what you mean about being mad at what the doctor writes in your chart. My Neuro, the first doctor I saw about the tingling in my hands and feet wrote that I had numbness not tingling, eventhough I corrected her everytime she said numbness, I would say no I don't have numbness, only tingling. She also wrote that I had carpal tunnel in both wrist and tendinitis (I've never had carpel tunnel) and I didn't even have the tennis elbow at the time that came 7 years later after an injury. I think she wrote that to justify the PT that she ordered for me and performed in her office. I reported her to my insurance because she lied to me telling me that the tingling was from the bulging discs in my back, my GP told me that wouldn't cause the tingling on both sides and in my hands and feet and I should check into that. They supposedly investigated my complaint, but wouldn't tell me their findings! Go figure.
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day 5 months
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned. Started Buhner's protocol May 2009