Kelly1234, I am so sorry that you are experiencing so many of these things so long into treatment! It is not fair! I am also very discouraged about
it, as I'm sure you are too!
My abdomen problems are a new bunch of belly flab, bloating , constant gas and pain where I THINK my speen is. But I experience what may be similar to your other parts of the body. It comes and goes, but often my entire mouth aches and throbs. I believe I am losing gum tissue.
And feelings of a buzzing (not the right word, but can't think of one) all over my body. I don't know that it's really 'tingling', but if the feeling could make a sound, it would sound like the August cicadas, w/ a throb or pulse to it! Often, my whole body throbs and buzzes. As some on here say, it's like creeping, buzzing bugs just below my skin.
Yes, Kelly, it feels like aliens in my body!
Agreed, Kelly -- it feels like something eating away at us -- if it would just EAT THIS BELLY FLAB!! Before the tickbite, my belly was near flat -- not work out flat, but it was just fine. I quit drinking for 2 years (cause I couldn't stand it) and figured I lose a little more weight. But NOOOOOOO, my belly just gets bigger and bigger. Go figure THAT.
My feet still hurt very bad upon arising, but that quickly passes. but the pain on the bottom of my feet builds all day and I frequently limp to my car. Keep in mind that I waited tables for almost 20 yrs and my feet NEVER hurt.
maybe this is not the appropriate post, but I am beginning to seriously wonder about the heavy duty, long term abx. WHY would it take so long for strong abx to give us improvement? Are there any OTHER diseases like that? What about syphillis? I dont' think I've heard of YEARS of abx for syphillis. Is this because it's usually caught sooner?
Regardless, I really don't want to be on years of abx. I know that is not good. I might consider some pulsing, but I'm not sure that my innards are healthy enough to withstand years of abx. Kelly's and others stories really concern me.
I know this is what the LLMDs believe is the proper avenue, but on here, it often seems so hopeless and a failure.
PS: Several times I have started the apple cidar vinegar 'detox'. It seems to make my stomach feel worse. Ideas?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.
What don't these nasty bugs cause?
CD57= 60, so we're in pretty good shape.
Post Edited (+Lyme) : 10/14/2009 5:17:22 PM (GMT-6)