Posted 10/14/2009 11:23 AM (GMT -6)
This is of interest to all Lyme patients and advocates. If you live in NJ, you can do something about it.
The State of New Jersey is placing Lyme disease in a group with disorders of unknown causes: chronic fatigue, fibromyalgia, Gulf War Illness, multiple chemical sensitivity. It wants to open a center characterizing these disorders and include Lyme disease as "neuroendocrine immune" (NEID) disorders. This is a serious danger to Lyme patient treatment as it mirrors what the IDSA and some governement agencies want to do, make chronic Lyme disease a collection of vague symptoms with no known cause, thus preventing treatment with antibiotics. The New Jersey Assembly already passed a unanimous resolution (AR 202) supporting the creation of this center. The NJ Senate has not yet voted on the Resolution (SR 133). The NJ Senate Resolution SR 133 that will be voted upon can be viewed here (pdf file): http://www.lymedise aseassociation. org/HR741/ SenateNEIDResolu tion.pdf A Letter sent last week to NJ Senators asking for removal of Lyme from resolution can be viewed here (pdf file): http://www.lymedise aseassociation. org/HR741/ NEIDfinal. pdf