What Do You Do or Take To Get You Through The Day?

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CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/15/2009 5:32 PM (GMT -7)   
These are some things I do to get through the day:

Advocare Spark Energy Drink: I've been drinking this for years ever since I worked for a Chiropractor that believes in natural healing. It gets me going for the day.

Emu Oil or Sombra: I use these two for my muscles, inflammed ribs and my stiff neck. I sometimes use the Emu Oil on my painful, stiff fingers. It works great at reducing inflammation.

B-12 Injections- Perferably Methylcobalamin since Lymies sometimes have trouble converting cyanocobalamin and hydroxocobalamin into Methylcobalamin.

Batherapy: I add this to my bath. It relaxes the muscles and temporarily relieves pain.

I also stretch when I can and take supplements that help boost the immune system.

What do you do to get you through the day?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 10/15/2009 6:40:23 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/16/2009 12:28 AM (GMT -7)   
Anyone?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


RottenDog
Veteran Member


Date Joined Apr 2009
Total Posts : 1013
   Posted 10/16/2009 12:42 AM (GMT -7)   
i pray, and i play with my pups to keep my mind off the pain as much as i can.
   RD
 
still looking for answers.
 
Remember that advice is free, its your choice what you do with it.  :)


PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/16/2009 3:38 AM (GMT -7)   
I watch a lot of netflix movies: I ws always a big reader but now can barely concentrate on reading. I spend a lot of time on line, on facebook to keep up with my kids and friends. I have a bunch of pet birds and I play with them and talk to them. Days are very long.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/16/2009 3:50 AM (GMT -7)   
On a good day, there is more than plenty to do to catch up with stuff from bad days (the few housekeeping things I'm still able to do, paying bills, etc.). On a bad day, I sometimes have to stay in bed most of the day. Watching tv or reading or playing games on my computer helps take my mind off of how lousy I'm feeling. Sometimes I use a heating pad or electric warming blanket to distract me from pain. Participation on this forum also helps because it gets me thinking about other things besides my own stuff. Sometimes listening to music can be helpful also.

My supplement list:
Milk Thistle - for my liver
Acute ViroReliever (homeopathic) - for my immune system
Acidophilus - to prevent yeast overgrowth
IV Iron - for anemia/energy levels

Take care,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.


Thea_ls
Regular Member


Date Joined Jan 2009
Total Posts : 27
   Posted 10/16/2009 4:32 AM (GMT -7)   
Everyday I take:

UltraInflamx - 2x day
IgG 2000 - 2x day
Zithromax - 500mg 1x day
Flagyl - 250mg 3x day
Questran Lite - 1 packet
Vitamin D - 5000iu
Digestive Enzyme - 6 pills
Candida Clear - 4 pills
UltraFlora IB (probiotic) - 2 pills
Gluten Free Diet - all day :(

I also do Epsom/Peroxide soaks about 3-4x a week...I want to get a Sauna.

(I see Razzle uses electric blanket/heating pad...I can't use anything electric, it gives me a jittery feeling all over and heart palpitations.)

Post Edited (Thea_ls) : 10/16/2009 5:44:47 AM (GMT-6)


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 10/16/2009 10:34 AM (GMT -7)   
Many shots of whiskey, plants that we're not supposed to mention on this site, and 2 packs of cigarettes a day...

OK, I'm just kidding....

I think I've got one little iota of an atom in my brain that still believes I will eventually be cured, that we all will eventually be cured... I think that's all that keeps me going, and my husband.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 10/16/2009 11:48 AM (GMT -7)   
I MAKE myself get out of bed and do what ever I need to do. Know matter what. Moving usually makes me feel ,at least, a little better.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 10/16/2009 12:24 PM (GMT -7)   
Wellllll.... since you asked~

I used to do as stutterbug said, then I went Jelaines' method (Tee hee!!)

For me, it's a lot less organized - I do as much as I can any given day - sometimes all I can do is zone out watching tv movies. I've learned that I can read & retain very

little most days - so unless I'm having a really good brain day, I read only what I call 'nonsense books' - doesn't matter what they are about - I'll never remember it anyway!!

All I'm doing right now is detoxing - rough enough for me!!! But each day is very different for me. I do what ever little things I can think of that might help with the worst of my sx at that time - since they now change by the hour most days!!!

Interesting what Thea said about the electric blankets - I've had trouble with electric blankets, heating pads (although I

still use this), microwaves, & most anything else of similar nature. I get t hat jittery feeling - plus a very distinctive buzzing

feeling all over, headaches --not very pleasant! I've noticed over the yrs that very few (actually I don't anyone) have talked

about experiencing these things with a direct connection to being around or using electric items.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/16/2009 12:58 PM (GMT -7)   
I feel pretty bad witha heating blanket or heating pad if I keep it on me too long. I don't get jittery...I just feel awful, like I'm toxic or something.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/16/2009 5:33 PM (GMT -7)   
Yankee and Phillies games

mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 10/16/2009 5:43 PM (GMT -7)   
Do those unmentionable plants really work ?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/16/2009 6:03 PM (GMT -7)   
What do you mean mother natures child?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 10/16/2009 6:14 PM (GMT -7)   
Just exploring options...

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/16/2009 6:16 PM (GMT -7)   
Nevermind, I know what you mean now, lol.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


skagey guy
New Member


Date Joined Sep 2009
Total Posts : 14
   Posted 10/16/2009 6:58 PM (GMT -7)   
sam-e and decaf green tea capsules along with Benzo sedatives for anxiety.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/16/2009 9:34 PM (GMT -7)   
I am on a quest for inner peace. My mind races and my thoughts are disjointed as I contemplate a future of battling the bugs, so I've got my work cut out for me carving tranquility out of such a mindset. To that end I sprinkle my day with happy vignettes. I'll do a chore with the knowledge that when I have finished I will make a pot of decaf green tea in an antique teapot and drink it from my grandmother's rose-covered teacup, so delicate and translucent that it hardly seems capable of fulfilling its destiny. I'll run an errand knowing that when I return I will light a candle and soak my feet in lavender and epsom salts while reading a favorite book. I will drudge through foothills of paperwork knowing that when I finish I will curl up in a comfy chair and write for awhile, or sketch as the winsome notes of relaxing piano music wend their way into my consciousness. For every necessary hurdle I overcome there is a rejuvenating reward awaiting me. These lavish stolen moments are the diamonds of my day.

Rose
I have Lyme; it doesn't have me.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/16/2009 10:18 PM (GMT -7)   
Rose,

You need to write that book! I enjoyed every second of your post. I actually feel a little relaxed now.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/16/2009 10:21 PM (GMT -7)   
Smiles...

Rose
I have Lyme; it doesn't have me.


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 10/17/2009 6:31 AM (GMT -7)   
mother natures child said...
Do those unmentionable plants really work ?
Let's just say that I am ABSOLUTELY convinced that some of the pain meds on the market (Oxycodone) have been the most dangerous/toxic/addictive meds that I have put into my body.  I'm not advocating anything here, just for me... I can't take the pain meds.  They mess me up so bad and I'm messed up enough as it is.  But, let me also say, that if the pain meds work for you and your body can tolerate them, then go for it... I WISH they worked for me.  rolleyes
Also, I absolutely cannot drink anymore (I'm a recovering alcoholic anyway).  I didn't drink for 12- 13 years until I was a couple of years into LD... and I would do ANYTHING to get out of pain.... so I drank... and the world did not explode.  It took the pain away.  I've tried this 3 or 4 times for about 3 to 4 weeks each time.... and it just doesn't work anymore.  My entire body aches and I feel very toxic.... and it's not a hangover... believe me I KNOW what a hangover feels like - haha!
And, my pain mngmt. dr. (although very knowledgeable and strict, etc.) just doesn't get Lyme disease pain.  To go from Lyrica to Oxycodone to Hydrocodone.... and then to be "B&*^%$#ED" at for taking the Hydro as prescribed on the friggin' bottle... is just beyond me.  I don't have the time or energy to make 3 trips a month to her office because she just won't write out an adequate script with a 3 month refill.  If I had that kind of energy, time and money, I wouldn't need her!

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 


Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 10/17/2009 7:18 AM (GMT -7)   
My days are starting to have some orderliness to them, now that I'm feeling better. I've returned to my part-time job (only 12 hours per week but that's all I was hired for anyway). I can now do some housework. I am back to doing shopping, but only small orders each time. I am setting up sellers' accounts on Amazon and Ebay to sell books and used clothing. That's very time consuming, so it's slow going.

Twice a week, I drive an hour to my LLMD for IV rocephin treatment. The rocephin takes about an hour to go in, so three to four hours are needed for the whole event.

I try to do stretching exercise every day and walk my dog for about a mile or so. I blog and do lyme research on the internet, although the research end is tapering off - my LLMD can do it for me :) Every evening (unless I feel too crappy) I sit in my portable infrared sauna and sweat for detoxing. I talk on the phone with my children often.

At bedtime, hubby, puppy and I settle in and he reads to me for awhile - hubby, that is. That started when my eyes were too bad to read for myself, but we both enjoy it. We've gone through a few books now and have good conversations. We pray and go to sleep.

But the whole day seems to be structured around eating and taking meds/supplements. That is bothersome, since some things must be taken alone, hours after eating, with food, yada, yada. You all know this drill.
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