I've mentioned in previous posts that I've been on treatment for 14 months, the latest is minocycline, rifamprin and pulsing in tindamax.
Anyways, I have noticed in the last few days certain symptoms that have become really prevalent. When I think back, I've probably had them for a while. As I am dealing with the ms/als symptoms, I am really concerned. These symptoms are as follows:
ringing in left ear (had this before in right ear, now is back in left)
tingling in my mouth/throat area, I've had from the beginning, lately it is almost like something is eating away at me in there - I feel like it has begun to affect my speech
I go to grab something, and I miss it
While lying in bed, I have involuntary limb movement.
A myriad of other symptoms - muscle twitching, tingling/vibrating down legs as well
I have been waiting for a prescription refill and therefore tapering off meds as I was running out. My doctor thinks I am having a herx. I don't know what to think and am beginning to think this is als.
I guess I am wondering if anyone else shares these symptoms.