Having a BAD week!!

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Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 10/17/2009 10:53 AM (GMT -7)   
Just because a Dr. says remission and a spouse hears that, they think COOL your all better now.
 
Makes me EXTREMELY MAD!! So mad that I think I could just snap into a lyme rage.
 
Heart is pounding so hard I can feel it all over my body, shaking inside, pain in feet, arms, legs, back, neck.
Head is spinning, cant concentrate, wanna just yell, scream, cry.
 
 
This song expresses how I felt this week.
 
 
WARNING ! ! CAUTION! !
 
DO NOT open THIS CLIP . . . .if you do not like cussing/bad words
 


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 10/17/2009 11:25 AM (GMT -7)   
Hear is a song that helps me deal with how I need to keep going with this UGLY FIGHT against LYME.

Must better song and NO CUSS WORDS! ! YEA!!

Enjoy
http://www.youtube.com/watch?v=ZFK4HD7KAjk
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/17/2009 10:05 PM (GMT 0)   
Harley,

I completely HEAR YOU!! I feel the same exact way sometimes and I'm not in remission. They will never know how we feel. My husband is a great man and always there for me but sometimes I want him to feel what I feel for just ONE day! Sometimes I feel like he just got "used" to everything. But, with Lyme, there is nothing to get used to because it's always different. So, I hear you loud and clear and if that song helps your rage then do what you have to do. I have rage problems too so I know where you are coming from.

Did your doctor say you were in remission and you still have symptoms?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/17/2009 3:22 PM (GMT -7)   
Harley,

I can empathize. Although my husband is wonderful and has never doubted me or questioned my symptoms, no one else in my family really understands. They think Lyme and coinfections are a nuisance. They don't understand the pain, or the risks, or the uphill battle just to get a little break. They see me on a good day and think I am recovered. They see me on a bad day and think I'm in a funk. I don't blame them; how can they know? Part of the problem is that most of us don't look sick, and we've learned how to push through the pain to accomplish things. Part of it, of course, is the controversy about Lyme and the publicity the anti-chronic-Lyme camp puts out. Part of it is a lack of information. (I took my dogs to the vet last week and discovered he had no idea that the area in which I live is riddled with lyme-bearing ticks.) I dislike having an illness of any kind, but I have to say that Lyme brings with it challenges all its own. I find I'm always explaining myself.

Rose
I have Lyme; it doesn't have me.


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 10/18/2009 2:40 PM (GMT -7)   
Thanks all for listening to my crazy thoughts..

My husband and kids are great also. After having my crazy week I did have a talk
with him and explained to him what Dr. Bur says about Lyme remission
and where the number on a CD57 should be for considering remission.

I have learned now how important it is to take someone to your appts. (someone who has a clear mind)

My husband explained what the doctor meant by saying remission.

He says seeing my number on CD57 is 85 then I am getting better with the Lyme
However we need to hold off on the IV Rocephin for a bit and treat me for Babesia.

And then go after the Lyme once again.....

Geez its so hard understanding all this...Have learned also that ALL doctors treat differently.

Thanks for all the comments so glad to know I have you all here for me on these crazy days...

Feeling much better, calm, cool, and collected.

YEA! ! ! CHIEFS WON THE GAME! ! so hard to believe.....LOL! !
 


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2009 3:52 PM (GMT -7)   
Harley,

I'm new to all of this and wonder - what is a CD57? And how is 85 significant?

Rose
I have Lyme; it doesn't have me.

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