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PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/18/2009 2:27 PM (GMT -7)   
Anybody had any success - or not - with Lyrica to control nerve Pain?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/18/2009 4:01 PM (GMT -7)   
PSR,

Lyrica has some scary side effects. Make sure you research it before you start taking it. Most people here take gabapentin which is generic for Neurontin. It is used for nerve pain. If I'm not mistaken, I think Lyrica is used more for fibro symptoms.

I'm not trying to scare you. I just want to inform you about the side effects.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


HopeFloats
Regular Member


Date Joined Dec 2005
Total Posts : 123
   Posted 10/18/2009 4:27 PM (GMT -7)   
Any idea of what the max a day for neurontin is ?         HopeFloats

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 10/18/2009 5:02 PM (GMT -7)   
Hope,

This is what I found:

Adult Dosing

Gabapentin is started at low doses (100 mg qD to 100 mg TID) and increased by 100 - 300 mg every 1-3 days to effect (a typical schedule might include: Day 1: 300 qhs; Day 3: 300 mg BID; Day 5: 600 mg BID, Day 7: 600 mg TID). The usual effective total daily dose is 900-3600 mg, administered in three divided doses per day; higher doses may be needed. Titration should proceed more slowly in elderly patients.

www.mywhatever.com/cifwriter/library/eperc/fastfact/ff49.html
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35855
   Posted 10/18/2009 5:30 PM (GMT -7)   
I've tried Lyrica twice now - although I am one of those who have the pleasure of having not only TBI's, but Fibro as well (18 out of 18 tender points).

It didn't hardly make a difference whether I took it or not. We have decent ins., but the cost alone would have put a strain on us.

Before anyone starts this 'script - I would heavily suggest they also find out just how much it will cost them out-of-pocket.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/19/2009 7:23 AM (GMT -7)   
I tried Lyrica and hated it . For me the side effects are worse than Lyme symptoms. I had the same experience with Cymbalta.

I am on 1500 mg of Gabapentin (Neurontin) daily. 300 at each meal time and 600 before going to bed.

I had to get used to the dizziness and balance issues while I adjusted to the Gabapentin. They eventually went away.

For me Neurontin is a miracle drug. For me does it not only help with pain but it helps me think more clearly. Maybe that is because the pain is not an issue 90% of the time anymore.

PSR1
Regular Member


Date Joined Sep 2009
Total Posts : 67
   Posted 10/19/2009 7:37 AM (GMT -7)   
I switched to the Neurontin - just took the first dose. Will keep you posted.

pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 10/19/2009 11:10 AM (GMT -7)   
I am happy on Lyrica- I am using it for shoulder pain. I started with 25 mg and gradually increased ever 5-7 days. I am now taking 100 mg each night- daytime use caused too much dizziness and fatigue-
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 10/19/2009 1:42 PM (GMT -7)   
Lyrica worked wonders for me for about 6 months. Then, the baaaaad depression hit. After I stopped taking it, within 3-4 days, the depression lifted. I would try it, just keep close tabs on side effects. Neurontin didn't do anything for me.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 


pcpc
Regular Member


Date Joined Feb 2009
Total Posts : 214
   Posted 10/19/2009 4:25 PM (GMT -7)   
Jelainep- what dose were you on when you became depressed?
Grew up on Cape Cod with Lyme... (TB aged 12 so did 2 yrs antibiotics as a kid). Weak immune system lifelong-self diagnosed Lyme 2003. Treated successfully with Cowden herbs until rebit 2007. Babs, Bart and Lyme treatments- currently using IV Clindamycin/Azithromycin and oral Mepron, Bactrim and Flagy- pulsed therapy.


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 10/20/2009 8:12 AM (GMT -7)   
The Neuro that I saw wanted me to take it for the tingling in my hands and feet.  When I saw the Rheumy he also wanted me to take it for the tingling (I don't have pain or numbness, only the tingling).  I went to the pharmacy and asked him what he thought.  He advised me not to take it unless I was having severe pain as it is a serious drug with serious side effects.  I never took it.  These 2 doctors were handing it out like it was candy, it makes you wonder.  KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol stopped Zhang's after 6 months symptoms returned.  Started Buhner's protocol May 2009


veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 10/20/2009 12:13 PM (GMT -7)   
Lyrica and cymbalta caused me severe anxiety. I'm just glad I knew it was from the drugs so I could cut it off. It was horrible. The first day i thought it was just a bad day for anxiety. So i took a second pill again and experienced the same thing shortly after I took it and it lasted so long it was almost unbearable. I did not take it the third time and i did not develope the anxiety. So I believe it was the meds. Thats my story of using the wrong things for Lyme conditions.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 10/20/2009 12:43 PM (GMT -7)   
pcpc said...
Jelainep- what dose were you on when you became depressed?

I can't remember - lol!  But, I was taking 3 red ones 1 to 3 times a day.  I think the depression came as the Lyrica somehow built up in my system.... it wasn't an immediate reaction.  I was on it around 6+ months and then became very depressed.... then I saw the commercial and side-effects and decided to stop it for a while and the depression just lifted.  I didn't have any side-effects from discontinuing it abruptly.... only very wierd vivid dreams for about 2 weeks.

Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
10/01- Igenex and CDC LD positive Rx's: Wellbutrin 300, Paxil 60, Xanax 5, Acidophilus, Flagyl, Hydrocodone, Glutiathione injections, Vitamin B compound, Invanz IV, LD theme song: http://www.youtube.com/watch?v=MgHioCC3yCo&feature=related
 

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