Sorry, but I would NEVER NEVER suggest going to Dr. D. in Boston or his other address in Falmouth on the Cape!!!!! He see's you for 2 minutes total and says he cannot understand the brain scans too well, yet he will order one. He told me that "what you have now, can never ever get ANY worse than it is right now." Well, being on his favorite antibiotic -Tetracycline - for a year, my brain scan went from 2 areas affected in my brain, to almost all of my brain affected just 8 months later. And STILL he did not put me on IV antibiotics. His bedside manner is quite nice but as he said, this will be a turtle's pace." I was disappointed that I wasted a year there. I had to beg for IV antibiotics and he finally said ok. But he put me on it and then didn't prescribe the med that ordinarily goes with it (that prevents your gallbladder from collapsing). So my gallbladder did collapse and and weeks later, his secretary called and told me to remove the PICC line, go off the Tetracycline, see you in a month, and oh yeah, don't call back. Someone in my support group right now, see's him, and just got Bells Palsy and she is STILL waiting to hear back from him. It's been 2 months and no reply.
I now see Dr. J. (S.C.) and it is like night and day! I was tired of hearing from the patients in Dr. D's waiting room that they had been seeing him for 10 years and still not any better than the first day they saw him! Yikes! But Dr. J. (S.C.) is fantastic. Another person that might be closer is Dr. F. at Columbia's school in New York City. I don't know what his waiting list is, but he is a psychiatrist who started the Tick research there in 2005. He is highly intelligent and knows about brain scans and which areas of the brain need to be targeted to stop the inflammation in there. You can email me. I have never seen Dr. F. in NYC but read a LOT about him on the internet and my primary care doctor called and talked to him. They have a waiting list but not nearly as long as Dr. J's waiting list, which is about 6 months now. I saw Dr. J. last Thursday and he has an overwhelming 200 new patients each month - that's why the waiting list is so long for him.
Feel free to email me: KristianaS2003@yahoo.com