Could this be Lyme?

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New Member

Date Joined Oct 2009
Total Posts : 2
   Posted 10/19/2009 3:40 PM (GMT -7)   

My name is Alexandra and I am 34years old living in Arizona.
I was born and raised in Germany and moved to the US in 2001.
I have been having health problems since last summer (July). After my gallbladder was removed in November 2008 I thought all would get better, but it turned to the worse in February of this year.

Here is a list of symptoms I have been experiancing. I do not have any health insurance at this point and am trying to research as much as I can online. Please let me know if this could possibly be Lyme, orr anything you have ever heard of? 

November 2008 gallbladder was removed during/after a visit to the ER.

Im Februar 2009 – severe pain in my chest. Left side. Numbness in arms, hands, fingers. Severe headaches. Pain radiating from chest to my jaw through my left arm. Trouble breathing, coughing, severe tiredness.

After that the pain started to radiate and travel through the entire body. Most Bones- cartilages are/were hurting.

-Joint pain
-Pain in my bones (chest, ribs, hip, knees, ankles, toes, arms, hands, fingers, back, neck, skull (eye sockets), jaw etc.)
-Always tired
-Head aches (ca. 1-2 per week in the beginning)
-Trouble breathing (ca. 1 a week)
-Bruises, rashes,
-red broken blood vessels under the skin without hurting myself. Mostly in face (cheeks/ nose/ eyes) upper arms & chest
-Severe skin rashes after touching my sal***er equipment, tank, sal***er or jewelry.
-Fever blisters/ sores on my lips
-open sores inside the roof of my mouth
-Stomach pains and nausea (2-3mal per week)
- nausea and random mix of dihorrhea/constipation
- Fatigue and exhaustion
- Heart palpitations (sometimes can feel heart beating in chest when I sit or lay on a couch)
- Dizziness (1 time a week)
- Ringing or "buzz" in ears (1 time a week)
- Unexplained intestinal bleeding (for 1-2 days; not currently)

Arthritis and joint pain is the most common and constant symptom. This will occur in conjunction with other listed symptoms.
Some days I cannot walk, stand or sit for too long. The pain does subside with rest but does not go away.
This is really getting to me at this point. I used to be quite active and now I feel as if I am 100 years old some days. Some days are so bad that I cannot even open a can of food (use a can opener) for my children because my wrist joints hurt so much.

Arthritis Medicine und Anti Inflammatory do not help much. Ibuprofen etc.
Albuterol helps a bit with troubled breathing. Vicodin for pain. I take 1 Vicodin once or twice a week when going to the grocery store or any place that I need to walk or stand or sit longer than 20minutes.

September 28th 2009 – I had a seizure at 1am in bed. My first one. This was very scary.


A scaly rash appeared over my right eye Oct 12-13-14; Left eye swollen & red Oct 15-16-17-18 pain inside/around eye socket- trouble seeing out of my left eye. 

Please let me know all of your thoughts. Any advice would be greatly appreciated.

Thank you. Alex


Forum Moderator

Date Joined May 2007
Total Posts : 35855
   Posted 10/19/2009 4:13 PM (GMT -7)   
Hi Ilsgirl,
WElcome!!! I know that you will find people here very helpful, caring & understanding here!!
So sorry you are having all of these issues!!

The symptoms you listed do sound like you could have Lyme or another tick-borne infection.
Have you read the thread - "New to Lyme? Start here." ? It's packed full of some really, really good info!!!

You will want to be evaluated by a very knowledgable doctor, so it would be best if you could see a LLMD (Lyme Literate Medical Doctor). He or She will most likely

do not only blood tests, but a clinical evaluation, as a lot of people with Lyme don't get positive blood tests for a while & some never do.

LLMD's understand this. Heck! Even the CDC says that a clinical eveal. should be done!!

There are many different treaments for Lyme & other TBI's (Tick-Borne Infections). Some docs use soley antibiotics, some use soley herbal/natural/homeopathic treatments, and quite a few use a combo of both.

These treatments are better explained in the post "New to Lyme?".

The absolute best thing you can can do is read, read, read!!! There is a whole lot of info out there (& right here, of course!!) on Lyme & other TBI's. You will need to be

knowledgable about as much as possible, including what kind of a treatment you would feel most comfortable with.

I hope I have been able to shed at least a little light for you!!
Good luck & may you find peace as well as healing on your journey.

smilewinkgrin ~Trav.
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

Forum Moderator

Date Joined Mar 2009
Total Posts : 2154
   Posted 10/19/2009 4:22 PM (GMT -7)   
Yes it absolutely sounds like it could be lyme.  It took me 3+ long years of searching, seeking and telling my story over and over again to get someone to listen to me about the daily things I was experiencing.  I started with heavy feeling in legs, infection in mouth, severe anxiety and led to numerous, numerous symptoms, a lot of which you have including stabbing heart pains (two trips to ER), joint pains, inflamed eyes, incredible fatigue, jaw tightness and pain in face, stiff neck, severe daily headaches. I can't even describe how many different symptoms I had on a daily basis.  Every dr. either refused to believe me or told me it was menopause or "just anxiety."  Luckily I finally found a dr. who listened and searched.  I have never had a positive lyme test but have been under treatment for 7 months now.  You obviously know something is not right so keep pushing until you get an answer. 
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