oops- problems interpreting what I see/ hear

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Nicky D
Regular Member

Date Joined Jun 2009
Total Posts : 361
   Posted 10/31/2009 7:31 PM (GMT -7)   
Recently, I've had problems which I think are due to my brain mis-interpreting sensory information. It's almost like audio or visual hallucinations, but not quite

For example, I'll be sitting at a desk with a pen in front of me, and 5 minute after I sit down, I'll jump because of the pen- like what I would do if the pen suddenly appeared there. I also interpret my floaters as spiders, or flies. And I don't just mean I see spots, and wonder what they are, but I see something I am 100% sure is a spider...except it isn't. And reflections really bother me- if I look at/move towards anything slightly reflective, it always throws me off- even though it didn't a couple of weeks ago.

Other examples would be banging a bag against my wall, and hearing someone speaking to me instead, or just not recognizing common noises. And I am always mis-hearing people when they talk to me. Or when I take my pills, it sometimes feels like they're stuck between my lip and my teeth, instead of on the back of my tongue. etc., etc.

Does anyone have any experience with something like this? It's very frustrating, because it means I've become very jumpy. I jump at almost every noise because I don't know what it is/ mis-hear it, and then my eyes make me jumpy too. (very appropriate for halloween, but not otherwise wink )


Post Edited (Nicky D) : 10/31/2009 8:37:36 PM (GMT-6)

Regular Member

Date Joined Oct 2009
Total Posts : 289
   Posted 10/31/2009 10:13 PM (GMT -7)   
hmmm, just a thought but maybe some of this is a side effect from something you are taking? I think jumping at noises is pretty common with lyme though- you're just more sensitive to sound in general. I startle much more easily now b/c of the lyme. People can walk up from out of view and i jump. As far as seeing things that arent there i would say that could be from a combo of drugs or any one in particular- i have made friends here who say they have seen some strange things on abx. :)

I refuse to stay sick! Period. 

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 10/31/2009 11:36 PM (GMT -7)   

I'm sorry you're going through this scary experience. I don't have an answer but I can tell you a few things I go through. They are not nearly as bad as what you go through though.

I startle VERY easily when I'm on treatment. Even a small noise makes me jump and gets my heart beating fast. I have to tell my husband to open my room door quietly when I'm sleeping because I nearly jump out of bed.

Sometimes I see things in my peripheral vision that looks like a mouse or something running by fast. That scares the you know what out of me! I actually get so scared, I jump and my heart races again.

I've also woken up and totally forgot my husband and daughters names. Boy did that scare me! I was fighting with my mind to try to remember and when I finally did remember, I felt like I would forget again.

I seriously think it's either the meds or the die off. Call your doctor as soon as you can and let them know. It may be the meds and you don't want to continue to go through this if you don't have too.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**


Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Sep 2009
Total Posts : 228
   Posted 11/1/2009 4:26 AM (GMT -7)   
I have the mouse thing too, I've never told anyone, because I was sure I had lost my mind! It def is better when I'm not on meds though.

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 11/1/2009 5:15 AM (GMT -7)   
I've had this off and on for a long time. I just attributed it to sleep loss (I have a loooong history of insomnia, and it has been really bad this year), but maybe it is the Lyme too... For me, it is twice as bad since I got prescription glasses because I see reflections in the lenses that can make me jump out of my skin when it is just a reflection of a piece of hair or something, LOL. I find wearing a visor hat very helpful for cutting down some on the sensitivity to light and some of these other sensitivities.

One thing that I have a really hard time with is getting a haircut. When the stylist is cutting hair near my right ear, I get a strong pain from my ear down my neck, side, and all the way down my right leg to my toes. Makes me want to cringe and jump out of the chair...it takes every ounce of mental will to stay still so the stylist doesn't chop my ear off or something, LOL.

I figure the nerves are really upset by this whole spirochete/coinfection thing...

Take care,
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.

Nicky D
Regular Member

Date Joined Jun 2009
Total Posts : 361
   Posted 11/1/2009 9:27 AM (GMT -7)   
CG and Jen- I've had the mouse/something running fast thing too! It is a weird one.

Razzle- I can imagine how tough it must be with glasses! I'd be a nervous wreck from all the jumping!

My poor Dr. I've got an appointment on Friday, and from his comments last appointment, I'm pretty sure he's expecting a lot of my bart symptoms to have improved. Instead, I'm going to be telling him about the new and wonderfully wacky things that are going wrong- not to mention all the old stuff that's gotten worse.

I'm hoping it's not the meds though, just because I want to stay on all my meds, so I can get rid of this as soon as possible -soon being a very relative term here... :)
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