Just wondering....

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Regular Member

Date Joined Oct 2009
Total Posts : 289
   Posted 10/31/2009 10:22 PM (GMT -7)   
okay so i know we all may deal with brain fog and short term memory problems......but does this mean that if we are not treated successfully that we might develop dementia or alzhimers?  Just wondering...I guess that possibility freaks me out just a tiny bit.  eyes    I mean with all the health concerns to think about you would think that would be the last on the list! I guess i think too much with what brain i have left! tongue

I refuse to stay sick! Period. 

Veteran Member

Date Joined Aug 2007
Total Posts : 4400
   Posted 11/1/2009 1:04 AM (GMT -7)   
Dr. MacDonald discovered Lyme spirochetes in 7 out of 10 brains from alzheimer's patients (stated in the movie, "Under Our Skin"). So yes, it is a possibility. Not a guarantee, but a possibility.
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.

Regular Member

Date Joined Sep 2008
Total Posts : 283
   Posted 11/1/2009 8:32 AM (GMT -7)   

With all of the brain fog and memory issues we have now kinda feels like we already have it....LOL

When I started IV Rocephine about a month into it was when my brain fog started to lift.
I have been off IV meds since Jan 09 and to me it seemed like the progress I was getting
came to a halt, even though right after I started orals for Lyme.

Stopped taking orals for Lyme in Aug 09 and in Oct 09 was tested for co-infections again
and after a positive test for Babesia I am now taking Zithromax and Mepron (YUK!!...smells and looks like
the bright yellow Rainblo bubble gum, boy they're good at fooling us.)

So with that said I have still yet to see anymore improvement with brain fog. And somedays the fog
is so bad I can't even organize my day....little things like laundry, dishes, store. So hard to even make
the list, I get so confused.

My son called me and needed a ride home from a friends and I had to get the GPS to help me find my way
I could not remember where is friend lived even after being there many times over the years.

Just have to keep treking on and do what we know and learn about this disease.

Regular Member

Date Joined Oct 2009
Total Posts : 289
   Posted 11/1/2009 12:37 PM (GMT -7)   
oh gee...guess we should be detoxing like crazy or something but i really hope that doesn't happen. Anyway harleyrider i think everyone forgets things but yes, we do have to keep "trekking on with this". Aren't those GPS things handy? we use one too. You know i'm not on ANY meds yet! I actually plan to try to do this with Dr. Jernigans or Cowdens protocol plus a whole lot of detoxing. There must be something we can do to keep those pesky things out of our brains and lower the toxins up there. i don't want to lose all my memory to this!
I refuse to stay sick! Period. 

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