Do I really have it?

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New Member

Date Joined Oct 2009
Total Posts : 11
   Posted 11/2/2009 11:58 AM (GMT -7)   
Hi, I've been reading this forum for a few weeks and have gotten a lot of information, however this is my first post. After 8 years and I don't know how many docs and tests my newest doc ordered a lymes test. She isn't a lymes specialist but is working with one since I am now her 3rd patient in a year with lymes. Her nurse told me there is no doubt I have it because my panal from IGeneX showed a positive in 31 and 41 and an indeterminate in 39. For the last month I have been on doxcy, 300 mg a day, and Biaxin, 1000 mg a day. I have definatley been having my good and bad days. This weekend was horrible. Not so much with my joints, which I almost hate to say have been ok for the last few days but emotionaly I was a wreck all weekend. Does that go along with lymes or is it the fact that I'm just getting so fed up? And if these numbers do mean I have it, do I have to have more testing done for co-infections? Sorry for all the questions but my doc is only in 3 days a week and I'm so full of questions I feel as if I'm hounding them with all my calls. Plus the fact they are terrible at getting back to me. Any help would be appreciated. Thanks

Forum Moderator

Date Joined May 2007
Total Posts : 36052
   Posted 11/2/2009 1:36 PM (GMT -7)   
Hi 103sj!!
Welcome to the Healing well Lyme forum!!
It's really great that you have found a doc that at least wants to help!! I have the same situation with my doc.

From what I understand, just having bands 41 & 39 positive means that you do have Lyme disease.
As long as your doc will test for the co's, I heavily recommend that you get tested. Both you & your doc need to know what all you are dealing with in order to be able to eradicate all the tick-borne diseases you may be dealing with.

Also, the emotional side of Lyme can be difficult. There are just so many variables & symptoms that it can truly be overwhelming.

I wish I could be of more help with the meds, but I really have no clue.
Hope this helps a little =)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

New Member

Date Joined Oct 2009
Total Posts : 11
   Posted 11/2/2009 4:22 PM (GMT -7)   
Thanks. Do you know if local labs can check for co-infections or will it need to be sent back to IGeneX? I am so confused on who to trust with the testing.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 11/2/2009 6:39 PM (GMT -7)   
Hi 103,

Welcome to the forum! It's great that you've found a doctor willing to help you. I would definitely ask your doctor to check for co-infections. It is very important to treat co-infections. Some people don't get better unless co-infections are treated first.

I'm sure a local lab is fine to test for co-infections. Igenex would be better but you'd probably have to pay out of pocket for the test.

Emotional problems with Lyme is very common. Bartonella, a co-infection, also causes emotional problems so you can see how it is important to test.

Did you read the sticky yet at the top of the forum tittled, "New To Lyme?.....Start Here?" There is a post there that explains what each band means.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Veteran Member

Date Joined Oct 2009
Total Posts : 699
   Posted 11/3/2009 11:12 PM (GMT -7)   
Welcome, 103!

When I was tested for coinfections, my doctor said it was fine to be tested at a regular lab for bartonella but he recommended IgenX for the babesiosis test because they will do the FISH test as a follow-up if the preliminary test looks positive. The FISH test looks for babesiosis RNA in your body. I don't know if I was tested for the rest of them or whether that is the usual practice. Maybe someone else here knows that.

I have Lyme; it doesn't have me.

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