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Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 11/16/2009 7:34 AM (GMT -7)   

I am currently on minocycling, rifamprin and suprax along with some of jernigans herbs and others. In the last 4-6 weeks I've also done almost daily detox. I switched lyme doctors last week. I have had a crazy increase of symptoms, muscle twitching all over, neuropathy at times, vibratory, tingling sensations in my head, legs. The same sensation is in my stomach along with a slight burning feeling. My lyme doctor thinks I've really stirred the bartonella up. I've had treatment for about 12/13 months. Anyways, I am a mess as I can feel it in my mouth also and it has started to affect my speech. I can feel a strange tingling and like pins are being poked in my mouth. It is not painful. Again, my lyme doctor says that this is temporary.

I've posted in recent threads about this and am wondering if there is anyone sharing these symptoms and did they go away at some point. I've got my self thinking about ALS at this point. I've had crazy anxiety/worry. I keep being told that this is part of this disease and will go away and also recently started taking an herb Zen to help with this.

The crazy thing about this disease for me is that I've lost perspective. I don't know what is the disease and what is in my head.

Any input would be appreciated.


Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 11/16/2009 8:03 AM (GMT -7)   
Sorry I didn't see your other threads.

That muscle twitching, neuropathy, vibratory tingling sensations you describe is exactly what I've been experiencing this month. It peaked about two weeks ago and is gradually subsiding just as so many other symptoms have. Like you I was trying not to freak out. I kept wondering if I would have to stay like that -- I had a couple of days of tremors that couldn't be controlled. My husband was about to cart me off to a neurologist but I thought we should wait, that it was temporary.

I do hope your symptoms pass as quickly. It's all very well to say, "Don't worry," but that doesn't help much if anxiety/worry is one of your symptoms. Are you taking anything for that?

Ride it out -- you've got the disease on the run!

Veteran Member

Date Joined Oct 2009
Total Posts : 699
   Posted 11/16/2009 11:46 AM (GMT -7)   

It's easy to lose perspective; I feel that way too. I'd gotten accustomed to my many, many "usual" symptoms, and although they were painful and distressing, I'd been through bouts of them often enough that I knew they would eventually subside even before I had any idea I had Lyme, Bartonella, Babesia. My regular symptoms included pins and needles sporadically and everywhere, even in my mouth and tongue. My tongue often felt thick and my speech was affected. These symptoms come and go as I experience episodes of infection, and then they subside. As new things crop up, it's very disturbing. I have to keep reminding myself that these things, too, will be temporary. Difficult to believe when I am in the midst of it and wondering if maybe this symptom has nothing to do with Lyme, but if your LLMD thinks it's part of the disease, that's encouraging. And there's lots of documentation that Lyme & coinfections can cause these symptoms. I hope that you will be past it soon and that in the meantime you can find a way not to worry about it too much.

I have Lyme; it doesn't have me.

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