I have a question regarding food and Lyme's

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3533
   Posted 11/16/2009 11:25 AM (GMT -7)   
I ate oatmeal for breakfast and 1/2 hour later after my last bite, I just became so tired where I couldn't even function. I laid on the couch for over two hours, I could careless if the phone rang or anything, it's terrible. What do you make of this?
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. Supplements: Probiotics, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Willowrose
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Date Joined Oct 2009
Total Posts : 699
   Posted 11/16/2009 11:35 AM (GMT -7)   
Oatmeal is pretty high in carbohydrates. You might want to try a breakfast that is less starchy. There are lots of people on this forum who could tell you medically what may have happened. I just know if I eat a lot of carbs, I end up feeling wrung out.

Rose
I have Lyme; it doesn't have me.


therearemiracles
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Date Joined Dec 2006
Total Posts : 3533
   Posted 11/16/2009 11:39 AM (GMT -7)   
Thank you , I ate 4 hours ago and I'm not hungry, just feel sick to my stomach. I didn't know if feeding carbs feed Lyme's bacteria, probably does. I don't know what to make of this. Thanks,
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Willowrose
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Date Joined Oct 2009
Total Posts : 699
   Posted 11/16/2009 11:53 AM (GMT -7)   
I'm no expert, but I've been told that carbs convert to sugar in our system, and bacteria love sugar. Even though oatmeal is whole grain and therefore doesn't metabolize quickly into bad sugar (the way refined foods do), as I understand it, it can still raise bloodsugar. Oatmeal is also metabolized as acidic, and I've also been told that bacteria and other harmful microorganisims thrive in such an environment. Are you taking antibiotics? Even with probiotic supplements, if you are on antibiotics and eating lots of carbs you can get fungus overgrowth. That could feel like a stomach ache. Wish I knew more, and hope you are feeling better soon.

Rose
I have Lyme; it doesn't have me.


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3533
   Posted 11/16/2009 11:59 AM (GMT -7)   
Thank you, I feel sick to my stomach yes and no a headache. I'm taking a nutracuticle for antibiotic, Allicin, very strong. I took Three Lac this morning as my probiotic. Wow, I just haven't felt this bad (sick to my stomach) in a long time. I had blueberries in my oatmeal too, this is sugar. I was trying to change up my diet, seeing I just eat mostly eggs in the morning b/c of high protein, I don't know what else to eat for breakfast, if I'm doing low, low carbs. I'm sipping on just hot water now at work. I just want to feel better. I literally could not get off the couch but just to use the bathroom. All my limbs just got so tired and I was just a lump on the couch. Weird. I slept good last night too. No more oatmeal for me!
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/16/2009 12:07 PM (GMT -7)   
therearemiracles,

I was going to start a Lyme-food thread myself. It sounds as if we have similar issues, so maybe my questions would help you. I've been eating eggs, too. I hate eggs and I've tested sensitive for them, so they're not a good food for me. I don't eat much meat and find vegetables for breakfast unappatizing. For awhile I ate goat yogurt, but recently cut out all dairy because I'm having sinus issues. I'm avoiding carbs because of the antibiotics and a terrible history of yeast overgrowth. That leaves me without much inspiration re breakfast foods. Lunch is usually a salad, and for dinner I manage to have some kind of fish or meat with vegetables. What can we eat for breakfast??? I started this whole Lyme journey in September as a thin person and I've been losing weight ever since. If I can't find something to eat that will put some calories in me without causing adverse effects I'm going to keep losing ground on my quest for health.

Also like you, I was eating a few blueberries in the morning because I'm trying to find antioxidants that I can tolerate. But I feel yeast lurking, so I've cut that out too. Green tea is okay sometimes, but it's really acidic and often I can't tolerate that. I can't swallow pills, so most supplements are out of the question. I really don't know where to turn.

It's great news that you are sleeping well, though. Take care,


Rose
I have Lyme; it doesn't have me.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 11/16/2009 7:04 PM (GMT -7)   
Nuts and seeds are good protein sources and can be used in place of regular flour to make a variety of "breakfast foods" - I've made egg-free cookies from pecan flour and thought they tasted pretty darn good.

Nut milk can also be used as a dairy substitute...make your own with a blender, some vegetable oil, some nuts/seeds, a little stevia or agave...lots of recipes online for this...

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


yogamom2
Regular Member


Date Joined Nov 2009
Total Posts : 99
   Posted 11/16/2009 7:41 PM (GMT -7)   
Hi,

I have been doing fresh fruit and nuts for breakfast, sometimes shakes. Breads made out of quinoa flour are great. Quinoa is a protein.

I am on a gluten, dairy and soy free diet. My family has been eating this way for over 6 years.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/16/2009 8:11 PM (GMT -7)   
Sounds good - thanks for the ideas. Can't do the fruit (too much sugar) but still maybe can conjure something up. I'll look online for some recipes. I have not been successful in using nut flours for baking because the end result crumbles when there's not gluten or eggs to hold it together.

Rose
I have Lyme; it doesn't have me.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 11/17/2009 10:01 AM (GMT -7)   
Just a tidbit to add;
I was very careful to stay on a high protein & very high fiber diet for several years. Then I started having some really strange little things start happening.

I really, truly started getting a 'buzz' from eating a high protein meal!!! Seriously!!! At first I couldn't believe it! I tried & tried to prove that it was from some other thing.

So, to make a long story shorter - I finally read somewhere that sometimes, Lymies can react this way!! & leave it to me to be one of those!!! Now I am careful to make sure my carbs outweigh my proteins.

Go figure!!!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/17/2009 11:46 AM (GMT -7)   
Traveler - are the carbs you are eating complex carbs? Do you take antibiotics? Every once in awhile I have 1/8-1/4 cup of brown rice, or a tablespoon of unsweetened granola, or a little bit of lentils, but other than that I'm not eating carbs beyond what is in the low-carb vegetables and in lemon juice that I put on my salad. In the past I've used the low carb diet to lose weight. Now I'm doing it to fend off yeast overgrowth. I'm desperate to find a safe way to add in more carbs or calories or whatever I need to keep myself going without encouraging yeast. In the Yeast Connection they recommend yogurt, but I tried that and that's when I got this awful sinus and ear problem. Since yogurt was the only new food I was eating, I eliminated it from my diet.

Also, you say you had a high fiber diet. What fiber did you eat that was low carbohydrate? I've looked at some of the commercially available fiber supplements, but the ones I've seen have artificial ingredients and/or sweetener. I can't do that. I have psyllium seed husk and I have a teaspoon of that a day on my salad, but that really isn't enough.

I'm never hungry. The thought of eating any of the things I can eat is not enticing at all. (And I've never gotten a buzz from protein - that's surprising!) Thanks for sharing your experience.

Rose
I have Lyme; it doesn't have me.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 11/17/2009 1:10 PM (GMT -7)   
Hi Willowrose!!
I have stayed away from simple carbs (as long as you don't count the times I just couldn't help myself!!) since I was a teen. And the whole 'get a buzz from protein' thingy - it took me about 8 -9 months to finally figure out what was causing it, because of course, protein being the culprit was a little hard to believe - even for me!!!

I am not on any abx, but when I was I didn't use that much yogurt, but instead I used Kefir. It has 10 different strains of the 'good' bacteria & it's consistency is about that of drinkable yogurt. I was on high doses of Mino at the time & was doing everything I could think of to protect my entire digestive system from the effects. I go on 2 month rounds of Doxy from time to time (when my doc & I believe that I may have been re-infected) and I always eat a little something before taking any abx (unless it says specifically not to) & get the Kefir going again!!! I'm about to the point where I feel that I can keep up with growing my own Kefir grains & I will be starting that fairly soon. Otherwise it's too expensive in the rural area I live in.

***Should anyone want a link to follow to a Kefir making site, please let me know****

Psyllium seed husks don't help me out at all. I have to use either Citrucel (actuve ingredient being Methylcellulose) or Benefiber (active ingredient being Wheat dextrin -although it's considered to be gluten-free). I also be sure to take my magnesium oxide. I have "significant" issues with IBS w/chronic "C".

As far as sugars go - I can only take in very, very small amounts of sugar, as that will set off all kinds of nasty sx (including some very serious cramping for days at a time) with my IBS. So although I understand all about artificial sweeteners, from time to time I do have to rely on them. Insisting on living in such a rural area, health food stores are not so abundant here - but whenever I can get to one, I make sure to get a bottle of powered Stevia for my sweetener.

I too am rarely 'truly' hungry. I think I posted about this somewhere else on here, and I said there that what I get most often, rather than a hungry feeling like most people get, I start to feel a bit of burning & then nausea when I need to eat. Hubby had to help me figure that one out!!!

Sharing our experiences can be the only way we can learn to avoid certain pitfalls - before being stuck in one!!!!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 11/17/2009 2:49 PM (GMT -7)   
I don't know what Kefir is; could you provide the link? Thanks for all of the information. I look forward to the day when I am not on antibiotics and only take them periodically. That's a long way down the road but it's nice to know some people get there. I am a big fan of Stevia. One of the only culinary luxuries I have is a glass of "lemonade" every day, sweetened with stevia. I appreciate you sharing your experience. I need to find a way out of this hole I've fallen into.
Rose
I have Lyme; it doesn't have me.

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