New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/4/2009 8:34 PM (GMT -7)   
My doctor had me do an Igenex text and it came back positive. He says I have Lyme disease. I just got the news yesterday.
He says that 60% of his patients have Lyme disease. This seems like a very high ratio (but I know nothing about the disease).
 
I have a prescription for Antibiotics.
 
My Dr. is a General Practitioner. I intially went to see him for pain in my left foot.
I'm thinking about getting a second opinion from a rheumatologist.
 
Now to my questions.
 
How final is the Igenex test. If it comes back positive does that mean that I for sure have Lyme disease.
 
Is a rheumatologist who I should see for a second opinion?
 
Thanks in advance.
Humira injection - once every two weeks
Gluten-Free diet


Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 12/4/2009 8:56 PM (GMT -7)   
Hi Hobo,

It could be that you got lucky, and found a doctor that treats lyme (a lyme literate MD or LLMD), and that is why 60% of his patients have lyme. There is an associated for Lyme disease doctors called ILADs. If you email them, you can see if your doctor is a member. If he uses Igenex, I would suspect he is.

Getting a second opinion from a rheumatologist might not be very helpful- most of them know very little about Lyme disease, and mis-treat it. The truth is, Lyme disease can be very difficult to treat, and can become chronic (not if you catch it right away, though), and most of the doctors who aren't LLMDs don't treat for long enough, and tell their patients that any remaining symptoms are not Lyme, when really they are.

So, I'd start by asking your doctor questions. If he's a member of ILADs, you are extremely lucky, and in good hands!

Nicky

Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/4/2009 9:04 PM (GMT -7)   
Nicky,

Thanks for the quick reply.
The Dr. did say the he just attended a conference on Lyme disease. I checked the ILADs website and they had a conference a little over a month ago so that's probably what he attended.

I asked him if Lyme disease is contagious and said that it could be but the disease is still kind of a mystery.
He said that it could be possible to transmit the disease through blood transfer or sexual contact.
Does that sound right?
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/4/2009 9:17 PM (GMT -7)   
Hi Hobo,

Welcome to the forum!

Yes, from what I have read and researched, Lyme Disease can be passed to an unborn child and through sexual contact. It's better to be safe than sorry.

If you have a positive test, you have Lyme Disease. Most of us don't have enough antibodies show up in our blood so our test comes back negative. You are very lucky to have a positive test and get treated right away.

What antibiotics were you put on and what dosage?

Also, it is a good idea to get tested for co-infections as well. Please read the sticky at the top of the Lyme Forum titled, "New To Lyme?.....Start Here?" There is some valuable information in there plus a post explaining what co-infections are and what the symptoms are as well.

Here is a very informative site to get you educated about Lyme Disease:

www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/4/2009 9:26 PM (GMT -7)   
Cajungrl,

He has me on Oxymyacin & azithromycin.
Not sure of the dosage. I haven't filled the prescription yet. I was going to wait for a second opinion but maybe I shouldn't wait.

If it can be transmitted through sexual contact does that mean my wife could catch it from me?
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/4/2009 9:52 PM (GMT -7)   
Hobo,

It's not 100% proven yet that it can be transmitted sexually but it is possible since the bacteria do start out in the blood. If she starts having symptoms, I'd get her checked out too. The bacteria is better eradicated when caught early.

She should start taking supplements like Vitamin C and garlic to keep her immune system working. If the immune system is working right, she has a better chance of her own body taking care of the bacteria if she indeed gets it.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/4/2009 9:54 PM (GMT -7)   
Btw, I've never heard of oxymyacin but I will look it up to see what it is. It is probably a generic brand. Azithromycin is used to treat Lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/4/2009 10:03 PM (GMT -7)   
Okay, oxymycin is a tetracycline antibiotic. Is is used for Lyme Disease and many other bacteria.

Here is some very informative information about Oxcymycin:

Label warnings
Do not take iron preparations, milk or indigestion remedies at the same time of day as this medication.


Here is a very informative website:

www.netdoctor.co.uk/medicines/100001976.html
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 12/5/2009 7:26 AM (GMT -7)   
Start taking the antibiotics and you'll know soon enough if you have Lyme when you start to feel rotten! Something to look forward to!!
My husband was showing symptoms of Lyme and we were concerned that he had contracted it from me. He had a positive Lyme test from Igenex and was treated with a couple of different antibiotics. He never had the typical Herxheimer reaction of feeling worse as the bacteria died off, but gradually had his symptoms resolved. He also went to a rheumatologist for a second opinion, fearing rheumatoid arthritis and to a gastrointestinal specialist. They both tested him for some rather scary diseases which came back negative and otherwise offered no help.
Hope you start to feel better soon.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35859
   Posted 12/5/2009 10:38 PM (GMT -7)   
Just wanted to pop in & say HI Hobo!!
Welcome to our forum! I am sorry to hear that you have Lyme Disease as well. At least here, we help each other get through & understand as much as possible about Lyme & co-infections. Of course we DO have to cut up now & again! =)
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 12/6/2009 5:40 AM (GMT -7)   
Hi Hobo,
 
Just wanted to say welcome and that this is a great forum with wonderful people.  I am all better from lyme and I keep coming back to post as I enjoy helping others. 
 
Hang in there, it does get better!
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Daily Detoxing   ~  Pay It Forward!!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 3 years:
 
 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/6/2009 7:48 AM (GMT -7)   
Welcome to the Hotel California, "...you can check you any time you like, but you can never leave."
Never doubt that a small group of thoughtful, committed citizens can change the world... it's the only thing that ever has.-Margaret Meade

Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/6/2009 8:10 AM (GMT -7)   
Thanks for the welcome everybody.

I'm still considering a second opinion.
Has anybody here had the Igenex test come back positive but still not have Lyme disease?

My Dr. says that the test is positive and he gave me a copy of the results but I'm not sure how to read it.
Humira injection - once every two weeks
Gluten-Free diet


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 12/6/2009 9:11 AM (GMT -7)   
Hobo -- Did your Dr give you a Western Blot? Like, does it show IgG and IgM? I believe there is a test interpretation in the Newbie section. I think that if you can post what your test says here, we can tell you what the bands mean. We are not LLMDs (we are smarter, ha ha....), so do not rely on us for diagnosis. But, depending on what your results say, I think we can give you a pretty firm opinion, based on what we know about the Western Blot.

If it was an Elisa, then, from what I have heard and read, yes, it can have false positive results. But most Drs do not rely on this test anymore because of its unreliability.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


1bitten2xshy
Veteran Member


Date Joined Jun 2007
Total Posts : 849
   Posted 12/6/2009 2:54 PM (GMT -7)   
Hobo-

Welcome to the "group".

If possible, please post your Igenex test results, and we might be able to help you better.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/6/2009 4:57 PM (GMT -7)   
Not sure what a Western Blot is.

All I know is that this test was run by Igenex and my Dr. looked at them and said that I have Lyme disease. He has prescribed antibiotics and wants to see me in two weeks.

If I have Lyme disease then I definitely want to get treated but I don't want to start a treatment if I don't have it.
I have Ulcerative Colitis and got off of Prednisone back in August. Pain in my foot started a short time after that. I am a regular at the Healing Well Ulcerative Colitis forum and members there said that it is common to get joint pain after getting off of prednisone.


Here is a link to my test results. I don't know what I'm looking at but if anyone can shed some light on this it would be greatly appreciated.
www.communityofficesupply.com/images/Lyme.pdf
Humira injection - once every two weeks
Gluten-Free diet

Post Edited (Hobo) : 12/6/2009 5:01:25 PM (GMT-7)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/6/2009 7:39 PM (GMT -7)   
Hobo,

The test you took is a Western Blot. It is very rare to get a false positive with a Western Blot. Like I said above, most people don't make enough antibodies for the test to pick up, so a lot of our tests come back negative, when indeed it is positive.

You are Igenex positive. You are not CDC positive but that means nothing. You have Lyme specific bands. 39 and 83-93 is Lyme specific, meaning, you have Lyme Bacteria in your body.

I don't remember but did you post your symptoms?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/6/2009 7:49 PM (GMT -7)   
CajunGrl,

Thanks for the reply.

The reason I originally went to the Dr. was because of a pain in my left foot. Sometimes it's so bad that I can barely walk but it's only after I've been lying down.
First thing in the morning it hurts but after I walk around for a while the pain goes away.

During my checkup the Dr. commented on how cold my hands were. I told him I recently began having what seemed like creaky joints. Almost like door hinges that needed to be lubricated.
That's when he decided to run the test.

I've started doing some research on other symptoms and I notice that I've become very lethargic. My weekends used to be spent going out & doing things but for the last couple of months I spend the weekends on the couch. I seem to tired to do anything.
Can't seem to get enough sleep also. The last couple of Saturdays I think I slept about 14 hours.
A few Saturdays ago I actually slept 20 hours!

If I understand you correctly it looks pretty definite that I have Lyme disease.
If that's the case I'm getting my prescription filled tomorrow and will start taking the antibiotics.

One other thing. I am currently taking Humira for my Ulcerative Colitis which is an autoimmune disease. Could this give a false positive on my test?

Thank you very much for your help.
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/6/2009 7:54 PM (GMT -7)   
Hobo,

One more thing. You mentioned your hands being cold. Have you had your thyroid checked yet?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/6/2009 7:56 PM (GMT -7)   
I don't know if the doc checked my thyroid yet or not. I'll ask him when I visit him in 10 days.
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/6/2009 8:11 PM (GMT -7)   
I'm not sure about Humira giving a false positive. Prednisone suppresses your Immune system and can cause the Lyme bacteria to come out and multiply. This is probably what happened in your case.

Lyme Disease can cause your body temperature to fluctuate but it is best to have your thyroid checked to be sure it's not that.

It cannot hurt you to start the antibiotics. If you start feeling worse while on antibiotics, then you will know for sure that it is Lyme Disease.

If you feel like you need a second opinion, go ahead and do that but from all of our experiences with doctors, we were all told we had everything from fibromyalgia, chronic fatigue syndrome, ALS, Parkinsons, Lupus, MS, etc. It took me five years to finally get the right diagnoses and I started out like you, with just a few symptoms.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/6/2009 8:14 PM (GMT -7)   
What should I look for when you say I'll start feeling worse on the antibiotics?
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/6/2009 8:25 PM (GMT -7)   
Whatever symptoms you have now, will get worse. If you have pain in your joints, the pain gets worse. This happens because of the die off of bacteria. It is actually good to feel this way because it's a confirmation. You may also feel like you have the flu as well.

I know this all seems overwhelming but it is so very important to treat this bacteria early.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/7/2009 7:24 PM (GMT -7)   
OK, started the antibiotics today.
I'll post updates as things progress.
Humira injection - once every two weeks
Gluten-Free diet


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/7/2009 7:40 PM (GMT -7)   
Yes, please keep us updated.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, December 14, 2017 4:02 PM (GMT -7)
There are a total of 2,905,538 posts in 318,871 threads.
View Active Threads


Who's Online
This forum has 158222 registered members. Please welcome our newest member, tlee4077.
364 Guest(s), 14 Registered Member(s) are currently online.  Details
tmjpain, lynbrez, clo2014, Break60, 81GyGuy, LymeSick 🌟, ArtAngel, garyi, Szabo246, Aurora2013, Glc100, pedidiva, halbert, Tena believes