Quick reply tonight as today has not been the kindest of days with Lyme.
I have had two picc lines. First one with Rocephin after multiple orals, second one with Primaxin coupled with doxy.
On most all orals except a few. Now on mino and malerone. Getting older and herxs are not easy to take. Used to be brave and go thru any and all symptoms but now get very bedridden and exhausted from them. (I am the sandwich generation as I take care of 88 year old parents and one surviving daughter getting married in 2010. We lost our youngest in a car accident at age 16 in 1994. Husband has had three open heart surgeries and survived! I can too.)
Diagnosed after 12 grueling years of debilitation with chief of immunoligy at Mt. Sinai hospital in NYCity.
Ended up with infectious disease specialist in Westchester county same week of March 1991.
Spinal tap in 1992 at Stonybrook Hospital that confirmed antibodies to LD.
Most improvement on Ketek. Dangerous drug however and do not advise as can cause serious liver failure and possible fatality. However, immense relief from CNS symptoms.
Acute liver failure after second picc in march 2000. In hospital for two weeks but improved 100% with regular liver meds and herbal milk thistle.
Strong advice: seek alternative therapy in conjunction to proper abx treatment. I travel to Buenos Aires Argentine with my husband approx 1x year. I receive hands on therapy such as accupressure and cranial sacral management. Superb feeling and would continue in this country but insurance does not cover.
Strongly recommend yoga, mild exercise and restraint from sugars and alcohol. Interferes with abx absorption. Follow diet protocols of Dr. J. Burrascano. Can be found on net. He is fabulous doc on Long Island. So much more to cover, but not now.
Read, read, read new book....Cure Unknown by Pamela Weintraub. A must...and my bible for history of lyme.
Signing off...tomorrow is another day. Good luck, best wishes for all our speedy recoveries and a cure for Lyme Disease.