What are you looking forward to doing when you are well?

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achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 12/17/2009 7:12 AM (GMT -7)   
Just thought we could share some dreams! I love to bake bread, but find handling the yeast not such a good idea with being on long term abx. When I get off them I'm going to bake up a storm! turn What will you do?

vicparis
Regular Member


Date Joined Jul 2009
Total Posts : 113
   Posted 12/17/2009 10:17 AM (GMT -7)   
Honestly? Not relapsing:)
 
Let's see - I'd like to not be so tired after work that I can actually do something besides fall asleep on the couch at 7:30 pm. I'd like to go on hikes and take walks on the beach. I'd like to not dress in layers so I can adjust my clothing because of hot or cold flashes. Not crave sugar from meds. Have money because I'm not spending it all on meds/LLND. I'd like to be able to remember my name 100% of the time.
 
I'm hoping everyone with Lyme and the co-infection start feeling well in 2010. I'm hoping guidelines change so others don't have to go through what we've all had to go through.
 
Victoria
 
 

mother natures child
Regular Member


Date Joined Oct 2009
Total Posts : 231
   Posted 12/17/2009 10:34 AM (GMT -7)   
I said if I get better I'd get a motor scooter and give these college kids some competition. OLD LADY COMMING THROUGH! Cant drive now due to wrong side of the road issues. I used to ride horses but cant no longer get up there. Never mind balance issues! Yep its my dream, and I'm sticking to it!
 I am a Zebra


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3520
   Posted 12/17/2009 1:01 PM (GMT -7)   
Me, I would love to run again outside without fear of pooping my pants or sharting in them. That's a sh*&- fart rolled into one. Not fun, but funny huh? I will take long walks with my boyfriend holding his hand, no anxiety or nervousness being without a toilet! I will continue to praise the LORD yesterday, today and tomorrow through the good and bad times he has brought me through! And yes, be thankful for no more doctor searching and doctor spending, just good maintenance.
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics, not much better. Supplements: Threelac, multi, iron,Allimed Allicin, Apple Cider Vinegar, very low yeast/sugar/wheat  No UC meds at this time.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 12/17/2009 1:54 PM (GMT -7)   
Just be able to enjoy a nite with family and/or friends or work without terrible anxiety!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 12/17/2009 3:01 PM (GMT -7)   
haha therearemiracles! That was funny!

I would like to not be in pain 24/7 and not wake up feeling like someone has beaten me up the whole night.

I'd like to be able to get out and do things for my family instead of my husband having to come home from work and do it all.

I'd like to go back to school like I was supposed to do before all of this started and get my nursing license. That seems so far away for me right now though.

I'd like to be happy and smile and laugh again and not focus on this disease for once.

I'd like to forget about 2009 altogether!

There's many more but that's all I can think of right now. I tell you though that I will never take life for granted again. I will enjoy the simple things that life has to offer.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 12/17/2009 6:43 PM (GMT -7)   
Hike, run, work out
Sleep consistantly
Eat real foods
Drink liquids
Breathe
Be able to clean house & do laundry again
Get a job and be able to keep it
Maybe go back to school
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 12/17/2009 9:46 PM (GMT -7)   
I'm looking forward to not paying attention to my health all of the time. Right now I am ensnared in a never ending cycle of prescription drugs, supplements, cleanses, appointments, and health activities that take up a great deal of time and much of my limited energy capacity. To be free of that, to wake up facing the day without so much maintenance would be wonderful. What would I do with all of that extra time? Mostly my list is like Razzle's. I am looking forward to doing the normal everyday things that most people do without much thinking about it. That would be lovely.

To exhibit gratitude for what I have, I've got to add that a few months ago all I dreamed of was being out of pain. Now, most of the time, though I have a ton of weird symptoms, I'm not hurting all over and for me that is huge. So, I post my want list above with a little trepidation because, really, I'm already where I once hoped to be. Now I just have to convince myself to quit waiting to get better before I start really living, and venture out a little right now.

Rose
I have Lyme; it doesn't have me.


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 12/18/2009 3:45 AM (GMT -7)   
I'd like to be able to PLAN things, and then actually SHOW UP. It could be a social get-together, like seeing a couple of my friends I haven't seen in a few years, or even something more basic like "I will clean the kitchen then have a bath tomorrow." Or like taking the yoga class my husband and I have been talking about for about two years now.

And I'd really like to be able to do 'things' (chores, bathing and grooming, exercising, housework, laundry, errands outside the home, etc.) on a CONSISTENT basis. Oh, and I'd love to be able to exercise regularly (hike, swim, gym) minus the post-exertion debilitating fatigue. And it would be a real bonus if I didn't have to ''time'' my outings so as not to overdo then be recliner-bound the next day.

Going back to work for a living? I stopped obsessing about that a couple of years ago. That wave hit the beach so very long ago.

And Rose put it so well ~ I'd love to quit waiting, the endless waiting to see if my former self will emerge. I have become very good at being present-moment focused, and I enjoy the beauty of the very simple things in life, but there's always that "when...if" that's there in the back of my mind.

Cara
*Oral Abx Combo Tx since Jan/08*
Lyme disease - clinical dx ’08; Babesiosis (Positive IgM/IgG) '08;
GERD '05; Essential Tremor ’02; Fibromyalgia ’00; Osteoarthritis; Depression; IBS; Interstitial Cystitis


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/18/2009 6:45 AM (GMT -7)   
Laughing
A small group of committed citizens can change the world-it's the only thing that ever has.-M. Meade


va/nj lyme patient
New Member


Date Joined Dec 2008
Total Posts : 12
   Posted 12/21/2009 4:55 PM (GMT -7)   
my first major goal as I begin improving is to drive again! 
 
i miss my independence, but know with my short term memory and processing issues, driving would be very shelfish right now.  BUT...when my mind comes back again....i will run all my errands, Lord willing, at any time and whenever I want. :)
 
one huge blessing that has come out of this disease is enjoying the little things in life more than ever before.  today, my friend took me to the craft store and we laughed and laughed as she shift through the pretty pieces of paper.
 
thanks for this thread!  it is an encouraging one. :)
Diagnosed with Lyme Disease (Oct '08) and Babesia in (Jan '09).
Oct '08: Oral Doxy
Nov '08: Oral Doxy & Ceftin
Dec '08: IV Rocephin
Jan '09: IV Azithromycin
Feb '09: IV Azithromycin & Mepron
 

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