Sorry if this gets a little long...I can be wordy at times
In June '08 I had a very high fever, stiff neck, horrible headache, body aches. I swore I had meningitis. I never had a tick bite or bullseye rash. (We have deer in our backyard) My lyme # was 0.29=negative. I was put on amoxicillin for 10 days and headed to VA for vacation. (I am from MA)
about a week later, I developed Bells Palsy, went to the ER in VA and the MD gave me prednisone. I had told him my whole story about the fever, stiff neck, neg lyme test etc.
After I got home, 3 wks after my initial fever, I went back to the NP because the bells palsy didn't improve and my lyme was positive. IgG by WB neg, IgM by WB Pos, Abs Tot 2.30 (ref range 0-1.2) The NP put me on 11 more days of amoxicillin. I expressed my concern re: the lapse in time from the inital 10 day treatment and was reassured it would be OK. 24 hrs on the amox and my bells palsy improved significantly.
In Sept '09 I developed numbness in my leg. Not so bad that it affected my ability to walk but it was annoying, but not painful. It progressed to my arm, less numb and then to the other arm and then barely noticiable in my other leg. The whole thing lasted about a week. I never went to the NP.
In Oct '09, the numbness returned and I went to the NP and she tested me for a variety of things including another lyme. This time, IgG was neg, IgM was equivocal, abs tot 1.25 (sl elevated). I didn't know these numbers when she called my telling me that my blood work showed an old infection and my other labs were normal. Are these labs consistent with chronic/latent lyme infection?
I am having an MRI next week of my brain and spine and I have an appt with a neurologist the week after the MRI. My other symptoms...cold feeling in my legs, my brain feels like it's in a fog, I joke that I have adult ADD because I have difficulty concentrating, I have a terrible memory. I am 33 yrs old and my mind feels older.
I am afraid that I have MS, but I am wondering if this is all lyme related
What do you think?
BTW, I am a neonatal nurse...all this adult stuff is greek to me