very fatigued...

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blessings723
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Date Joined Oct 2009
Total Posts : 289
   Posted 12/25/2009 9:53 PM (GMT -7)   
ok just took the medicine that was prescribed for my blood pressure...waiting to see what that does b/c my blood pressue was just too low- i'm feeling so fatigued...can anyone relate to that? I'm having minor chest pains but when i called the doc on call he didn't think my symptoms sounded like heart attack.   I've just been so fatigued all day...i napped for at least an hour or two earlier but i'm still sooooo sleepy- even after my b12.  Is it normal to be this sleepy? is this the "chronic fatigue" that goes with lyme?  The only thing left to do is go in for a stress test on monday and if that doesn't show anything i will feel much better about my heart.
I refuse to stay sick! Period. 
 
 


Razzle
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Date Joined Aug 2007
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   Posted 12/26/2009 10:38 AM (GMT -7)   
I get heavy fatigue a lot. I think it goes along with Lyme. Have you had adrenals and thyroid checked? If either one or both is/are low, that can cause/contribute to fatigue.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


CajunGrl
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   Posted 12/26/2009 4:54 PM (GMT -7)   
Having low blood pressure can cause severe fatigue. I'm sure once your BP is back to normal, you will feel a lot better.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

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Co-Moderator Lyme Disease Forum


Deejavu
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Date Joined Aug 2005
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   Posted 12/26/2009 5:19 PM (GMT -7)   
Finding,
 
When the doctor took your blood pressure, do you remember the numbers?  Also, it's normally high blood pressure that causes heart problems, not low.
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


blessings723
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Date Joined Oct 2009
Total Posts : 289
   Posted 12/27/2009 12:48 AM (GMT -7)   
Thanks everyone- waiting for cortisol levels to come back to let me know about my adrenals- i did buy a supplement for that but didnt want to get into it till i knew- my blood pressure when i went in to cardiologist was very low- 90/56. ( ithink taking a xanax sent it down too far- it usually stayed around 110/60.) It has since moved up to 100/59 but i need it higher than that. Been drinking lots of water and adding a little salt per nurse's advice. Felt better after moving around a bit- but i did have to take a long mid day nap which is odd for me. I don't see how the fatigue could be setting in just now- i've been sick for months. Anyway, hopefullly you are right deejavu and i don't have any heart problems- i honestly don't know if i will make it through the stress test though- hopefully so, as for my thyroid i had a panel come back normal but someone mentioned needing an "ANA" for hashimotos? I've had an "ANA" check by my
rheumitiod doc- it was negative- no arthritis either.
I refuse to stay sick! Period. 
 
 


Deejavu
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Date Joined Aug 2005
Total Posts : 4297
   Posted 12/27/2009 6:56 AM (GMT -7)   
Hi finding,
 
90/60 is normal for me, always has been and if your "normal" is 110/60, it's really not a great difference. 
 
Have you fainted or suffered from any "severe" dizzy spells since you have been sick?
 
Anyway, try to put any energy you have into positive things instead of thinking the worse, okay?  The mind is a powerful tool! 
 
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 12/27/2009 6:57 AM (GMT -7)   
Have you also had your Virals checked as well? Fatigue was a MAJOR issue for me, even after 2+ years of agressive Lyme treatment.

I have been on anti virals since August and I see a marked improvement in my fatigue.

I can now make it up past 9PM, with waking at 6AM with no naps most days.

If I over do, I still get the fatigue...but a good nights sleep usually is the answer.
Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/27/2009 8:37 PM (GMT -7)   
Thanks everyone- today has been better as far as dizziness-i think my pressure improved a little- haven't checked yet- but i've been adding a little salt and drinking plenty water plus the florinef.  I am going for a stress test tomarrow at 1 and if that is clear i am not going to worry anymore about my heart.

Denise, when i first started getting sick i would get dizzy and feel faint at times- don't know why- any ideas on that would be great- i did realize that my body doesn't do well without any sugar- i remember years back one day i almost fainted b/c i had not eaten from 7pm the day before til 2 or 3pm the following day- my mom shoved a peppermint at me and the faint feeling went away. So i'm incorporating some fruit in my diet to see if this makes a difference as well- the nurse suggested i should eat more sugar- something i had been avoiding entirely. These last few days though i think were a combination of things- right before i would get the bad fatigue my head would feel very bloated- or like there was a brick on top of it- i still get that- then i would get dizzy and feel so overwhelmingly tired. I was still fatigued today but not to where i felt i would pass out.

As for anti virals- i cannot wait to get that all sorted out- I have EBV and cytomegavirus- i will be interested to see how this doctor thinks i should address everything- what first? parasites, lyme or viruses? I think having a parasite issue might be making my weight loss worse- 1bitten- i am glad your fatigue has improved that must be a good feeling! That is why mine is so concerning to me b/c so far i haven't been feeling quite so fatigued- now i do- my titers for EBV and Cyto were pretty high when they were last checked- and i know i really should be on something for that- what is the general approach anyway- do doctors typically treat viruses last or first?


I refuse to stay sick! Period. 
 
 


Deejavu
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Date Joined Aug 2005
Total Posts : 4297
   Posted 12/28/2009 5:40 AM (GMT -7)   
Hi finding,
 
If I went that many hours without eating, I would feel dizzy too!  Diet is really important, what does your daily diet consist of?  You may have your answers right there...
 
I was also exposed to EBV and my doctors told me that most everyone has.   As far as parasites, everyone has parasites, even the most healthiest people..  Parasites come from the air we breathe, the foods we eat, water we drink, they just can not be avoided, lyme or no lyme.   That's why it's good to do a parasite cleanse once a month or so such as humaworm or whatever parasite cleanse one prefers, plus coffee enema's, and daily detoxing.
 
Hope you feel better,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


Sunshine20090909
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 12/28/2009 7:30 PM (GMT -7)   
My blood pressure will rise when I add potassium Iodide.  It was about 78/52 at my lowest point.  When I feel very weak and tired I do the Pot Iodide and it cleans my blood pretty quickly, allowing my pressure to come back up to normal - ish.

Post Edited (Sunshine20090909) : 12/29/2009 7:47:45 AM (GMT-7)


blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/28/2009 7:41 PM (GMT -7)   
when it was that low did your limbs fall asleep? just curious b/c when i hit 90/56 my limbs started going tingly and then numb on me.
I refuse to stay sick! Period. 
 
 


Sunshine20090909
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 12/29/2009 7:51 AM (GMT -7)   
I don't remember the specifics of that day. I remember I was able to go to a pharmacy but I felt like I was in a cloud. Very week and feeling like I could die was all I can remember.

That was before I had a real doctor to treat me and I think before I had rif.

I learned that if I had potassium iodide before I went to a doctor's appointment my pressure was normal looking. If not, it was low.


Pot Iodide is not Pot Iodine

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/29/2009 5:17 PM (GMT -7)   
sunshine do you just get that from a health food store? My nephrologist noticed today that when i go from sitting to standing my blood pressure drops from 110/ over whaterver to 100/59 did anyone ever notice this with you? Someone had me read wild condors story and i think it's a neuro thing- do you get head pressure when it is low?

Willowrose i seem to remember you saying you were on the blood pressure med too- did this help? did anyone ever mention your blood pressure dropping upon standing?
I refuse to stay sick! Period. 
 
 


phillypina
Regular Member


Date Joined Oct 2006
Total Posts : 308
   Posted 12/29/2009 6:03 PM (GMT -7)   

finding721,

Extreme fatigue was my main symptom for 3 weeks before I was treated.  I have to agree with Deejavu. Once you research alternative treatments you will discover a lot of truth in positive thinking and detox. 

As far as my journey with lyme I also believe in quality nutrition and supplementation when necessary.  At my worst with lyme I crossed paths with a chiropractor and a nutritionist.  He did tests and prescribed supplementation and in  3 months I healed. Even my MD asked me what I was doing cause I was healing so quickly. I found out I was severely low in Pantothenic acid, Vit D, Iron, Magnesium, etc.

Stay hopeful and be strong.

phillypina


 


Sunshine20090909
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 12/29/2009 9:03 PM (GMT -7)   
Here is a link for the best money savings -

http://shop.ebay.com/?_from=R40&_trksid=p3907.m38.l1313&_nkw=potassium+iodide&_sacat=See-All-Categories

I only use ACS grade Potassium Iodide which is KI. You can mix this with purified water and dilute the crystals until there are only a little bit left on the bottom, that is when you have a saturated solution. Very easy, just shake the bottle until disolved and add more to leave a little undisolved.

It is corrosive, so you must mix it with water/juice or something. Start with a little and slowly work your way up. I learned that some start iwth 3 drops 3 x per day and go to 40 or more. I never went near that and haver had some very good reactions.

You can tell a difference with 3 drops 3x per day within a couple days. You start by not being so tired and little by little you are able to get back to moving around again.

If you don't want to mix the white crystals with water you can order tablets that are marketed for radiation disasters.
Life Extension has them.

14 tab;ets cost about $6, here you get about a thousand times more for $12 plus shipping.

A local pharmacy can give you one of those darkened plastic bottles for storage and mixing to protect the mixture from light and other debris.

If it gets too much light you may have to add more crystals.

It is about as toxic as table salt, so you don't have to worry about over doing it by taking it frequently.

Hope this helps you. You really should do your own research to learn about this before you use it. I think a very small percentage of people are allergic to it.

I have never had symptoms of high blood pressure before so I don't know about the other things you asked about, sorry.

The only pressure I get in my head is from the infection. I can tell when it is active, as this cuases throbbing which is unrelated to my blood pressure and is releaved from abx. treatment and avoiding certain things, like sunlight.

Pot Iodide is an abx, antifungal, and antiparasitic, as it cleans your blood. It goes to your thyroid and your blood is pumped through your thyroid every 6-7 minutes. This added chemical allows your thyroid to clean your blood.

This will also thin your blood, as the bacteria makes your blood thick. Kind of like oil in your car, when it gets dirty it get's thick and guncky and is bad for your engine.

When your blood is full of bacteria it gets thick and guncky and is bad for your heart. That, is why I think so many with these zoonotic diseases end up with endocarditis.

Feel good soon!

spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 1/6/2010 9:37 PM (GMT -7)   
I have had bouts of postural hypotension due to Lyme disease. My LLMD said it can be caused by dysfunction of the autonomic nervous system due to Lyme disease.
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