will some bands always show up once you have lyme?

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springsjean
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Date Joined Mar 2009
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   Posted 12/26/2009 4:34 PM (GMT -7)   
Someone told me that once you have lyme you will never get a clear WB.  I am curious because I had 3 bands, then down to two and now b ack up to three.  Is this true or does the dr. retest to show status of lyme with banding?  Thanks and merry christmas to all at healing well that have truly made life easier with having a place to turn to!

CajunGrl
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   Posted 12/26/2009 4:42 PM (GMT -7)   
I think the bands will always show positive on Igg since it means a past infection. The funny thing about that is, you can have positive bands on only Igg and still be extremely sick. I'm assuming if the bands are still positive on Igg, but you are feeling better, then the doctor would consider it a past infection. Very confusing!
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

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springsjean
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   Posted 12/26/2009 5:27 PM (GMT -7)   
But all I have ever shown is IGG and feel horrible.  Also, why would dr. continue to retest?  So baffling. 

CajunGrl
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   Posted 12/26/2009 5:54 PM (GMT -7)   
Most of mine are on Igg too and I feel horrible. That's what I was saying in the above post. I'm not sure why he would keep testing unless he's unsure himself. In my opinion, it's a waste of money to test that many times. He should be treating you on a clinical diagnosis.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

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springsjean
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   Posted 12/27/2009 3:20 PM (GMT -7)   
thanks. I'm not sure he knows what he's doing. Really hard to keep confidence when it seems like they're always just experimenting. They're like weather forecasters - sometimes they are right and sometimes wrong, just an educated guess/

123t
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Date Joined Jan 2010
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   Posted 1/10/2010 10:57 PM (GMT -7)   
i was diagnosed with pd 6 yrs after getting bit by a tick...my lyme band shows 1 positive band...i live in a real small town where lymes a myth...so calling it pd..any suggestions on what i should do? thanks alot

CajunGrl
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   Posted 1/10/2010 11:17 PM (GMT -7)   
Hi 123t,

Welcome to the forum! If I were you, Id find a Lyme Literate Medical Doctor and get tested again through Igenex.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Razzle
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   Posted 1/11/2010 2:02 PM (GMT -7)   
If testing on WB reveals different number of bands or different bands positive each time, whether IgM or IgG, then the infection is still active. A past infection would not trigger the formation of new bands or change which bands are positive.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 1/11/2010 3:00 PM (GMT -7)   
REALLY?!  With no significance as to which bands they are?  That is really interesting.  My IGG in fact went from three to two back to three but with one different.  Very interesting.  Thanks so much.  I'm anxious to see what dr. says later this week and will let you know. 

cadplumber
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Date Joined Aug 2009
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   Posted 1/13/2010 8:22 AM (GMT -7)   
My WB came back positive on every band but one on IgM and positive on every band IgG. The diagnosis on the test results stated:

1) Indicates past infection

2) Indicates current infection (Reportable Disease)

For whatever it's worth.....

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 1/13/2010 8:42 AM (GMT -7)   
cadplumber, that every band positive on igg can not be a good news. I tested positive on 7 myself out of 10.

Also did you ask, what does "PAST" mean? how long in past, 2 yrs, 3 yrs, 10 yrs.

Razzle
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Date Joined Aug 2007
Total Posts : 4399
   Posted 1/13/2010 10:14 AM (GMT -7)   
In the context of Lyme, it is my understanding that seroconversion from IgM to IgG begins at about 4-8 weeks after initial infection. However, if the initial infection is not treated adequately, one will likely continue to make IgM antibodies to Lyme (if the immune system is functioning adequately) and therefor conceivably could lead to the generate new IgG antibodies after these IgM antibodies are sero-converted. This, along with the fact that Lyme continuously change their outer surface proteins (which means the immune system has to continually generate new antibodies to the bacteria), is why changing bands, whether IgM or IgG, is an indication of active infection no matter how long it has been present.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 1/13/2010 10:17 AM (GMT -7)   
Thank you so much for explanation. Going to run by dr. tomorrow. This should be good. He'll probably shrug his shoulders.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 1/15/2010 7:04 AM (GMT -7)   
Dr. said that labs still show positive even though only 3 bands but not positive enough to have insurance pay for IV. So we are trying zithromax.

ChuckG
Regular Member


Date Joined Dec 2009
Total Posts : 27
   Posted 1/17/2010 12:15 AM (GMT -7)   
J Clin Invest. 2004 April 15; 113(8): 1093–1101.
The emergence of Lyme disease

Allen C. Steere, Jenifer Coburn, and Lisa Glickstein said...

After antibiotic treatment, antibody titers fall slowly, but IgG and even IgM responses may persist for years (96), as may the IgG response to the VlsE peptide (97).


96. Kalish RA, et al. Persistence of immunoglobulin M or immunoglobulin G antibody responses to Borrelia burgdorferi 10-20 years after active Lyme disease. Clin. Infect. Dis. 2001;33:780–785.

"96. Kalish RA, et al." Et al. includes Steere. So they might not have been treated properly. smilewinkgrin

Post Edited (ChuckG) : 1/17/2010 12:28:17 AM (GMT-7)

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