Good Luck it is all so confusing. I started with a MS Diagnosis very typical symptoms. Had an MRI lesions in my brain and spine. They tested me for lyme it took them about
4 months to admit to me they had done 2 tests and both were CDC Positive but they felt they were wrong.
They did a spinal tap came back posive for O bands and negative for lyme. I can not find a Dr in Oregon that will believe it could be lyme. I travel to Conneticut and got IV Rocephen for 90 days. Next MRI clear of all lesions my Nuero was shocked but still would not talk about Lyme or Antibiotics.
Went sympton free for 3 years had a healthy baby stayed on oral antibiotics this whole time. Stopped taking them when i was done breastfeeding thought I was all better and poof I lost feeling in both legs all the way op my torso. New MRI 13 new lesions in different spots and worse syptoms than before.
Nuero wouldn't consider starting antibiotics again so back to Conneticut. All I got was oral antibiotics this time and hoping there enough all symptoms have stopped, besides faigue and my legs don't work %100 percent but I was able to put away my cane.
I really hope Drs around here start accepting Chronic Lyme soon. I believe antibiotics keep all my symptoms away. The approved MS drugs have not helped me. but i am sick af every Dr I see thinking I am nuts for believing i have lyme. I have 8 CDC Positive Lyme tests after 5 years and still they don't believe me. Crazy World we live in!
Finding Peace In This Crazy World !
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007