Hey rose, thank you so much for sharing that with me. I have had an ekg but i guess i still need to buck up and do the stress test- just afraid i might pass out- but i guess it's necessary.
the florinef is a steriod like cortef- i was only prescribed .1mg so yes, it's a small dosage. I dont want to be on it long term either though i've heard some people are. some lyme folks have been on it for years. anyway, i suppose if my heart checks out fine the exercise will be a great idea.
I did do a cortisol test- blood test- but it was at the wrong time of day according to my LLMD- it needs to be done in the am and should be a saliva test. i'm also interested in seeing what he thinks i should take to support my adrenals- i found something by enzymatic- adrenal stress end- but don't want to take it yet till i know.
i feel like much of this mess has been all on my own- we just don't have the money for me to be checked and checked, and not to mention if i say "lyme" half the time docs don't really want to work with me. i'm even questioning the results my nephrologist faxed me- seems like a quick way to get me out of his office- 1 test that doesn't show protein and he's done with me.
for all i know the low blood pressure could be a sign of heart trouble- which could explain the protein in the urine thing- there are just too many possibilites and i don't understand why i have to be going through this right now.
I seriously need a little assistance with getting the kids checked out and still taking care of myself. we haven't even started on my son and he's walking around holding his tummy all the time- god knows what that means or how his little organs are doing with everything.
i'm so tired...i feel worthless for letting all this happen to my little family- and this all too much to be posting here. I just wish God would intervene a little bit and send some help. i'm too young to do this alone. i'm too scared. i dont want my family to be another "statistic". i don't want this to have a sad ending.
okay, i'm going on and on again.
I refuse to stay sick! Period.