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bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 1/5/2010 5:30 PM (GMT -7)   
I was wondering if there is a list of old timers that we don't hear from now and hopefully got good treatment and
got well again. If we could contact and ask for the good news sharing. I would like to hear this kind of stuff and what
treatmetns. ? Is this not ok to do? or even possible?

Also, I am very sick but finally aware of what is really going on with this lyme scenario. I just found out from one of my friends that she had lyme years ago and lost all kinds of neurological function and her doctor told her that 70% of the kids in the school in that town were being treated for ADD and it is lyme.

This reminds me of the HIV thing back in the early 80's when no body would do a thing about it.

And the Gay community started having marches and parades and really got together and formed GMHC and all kinds of
support centers. It was huge. and now anyone with HIV is covered completely for treatment. with or without insurance.

We are all still like"in the closet" here. There is no dignity in being sick with no support. And it's not just the no support
it's the "who do you trust" " which doctors know what to do" finding a LYME Doc. and even they are becoming like Rock stars.
I just called a doctor in Seattle .."world renound lyme doc" his rate is $7.00 a minute and it is a 6 month wait.

And then you have the other doctors that are afraid to even be a lyme doctor. So what happens is it leaves the patients in very vulnerable situations.

This all has to come to the forefront now. This is the year. If lyme got half the press that Tiger got we'd all be cured already.

It is so challanging to have chronic illness but when you know it is being almost hidden or ignored and you realize how many other people have this and don't even know. KIDS.... I don't even have kids but this is not kosher. way not.

No one should loose their HOUSE to a disease or go bankrupt. MY GOD, MY GOD,

thanks for letting me rant, gang

ONLY is Love
Bucci
hep c , lyme
Dad has lyme


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 1/5/2010 5:37 PM (GMT -7)   
I don't remember where in PA you are, but I have a great Lyme Doc in Chester County if you need his info.
“You must be the change you wish to see in the world.” -Gandhi

http://lymeactually.blogspot.com/


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 1/5/2010 5:50 PM (GMT -7)   
far out. who is it? thanks
hep c , lyme
Dad has lyme


JennInPA
Regular Member


Date Joined Sep 2009
Total Posts : 228
   Posted 1/5/2010 6:40 PM (GMT -7)   
Dr. F in Kennet Square, if you need his info, please email me @ jenim24@aol.com

Jenn
“You must be the change you wish to see in the world.” -Gandhi

http://lymeactually.blogspot.com/

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