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New Member

Date Joined Jan 2010
Total Posts : 1
   Posted 1/9/2010 3:03 PM (GMT -7)   
Hi, I am trying to figure out what is going on with my body, and wondering if anyone has experienced similar symptoms. It all started after a bout of blood in my stool. I have had constant twitching, especially in my legs, 24X7 for the past 5 months since the blood. I am constantly dizzy and fatigued. There were two weeks when I had terrible brain fog and terrible memory loss and speech trouble, but has since cleared up. I did not have any bulls eye rash, but am getting little red raised dots over my body, with sort of a white center, as well as skin tags just appeared on my neck. My stools are looser than normal and have undigested food in them. My muscles cramp very easily. I have had terrible headaches. My hands tremor sometimes, and still have some troubles with speech( ie. mixing up words). Just recently I have spontaneous chest pain under both rib cages, that doesnt last long but is uncomfortable. these are a few i can think of. I have had numerous blood tests for pretty much everything, two brain ct scans, an abdominal ct scan, three chest x rays, 2 ekg's, and an abdominal xray. all came back clear. any help would be so much appreciated. i think it all stems from bowel issues, and i have a colonoscopy in a week. my lyme test came back negative. thanks so much!

Veteran Member

Date Joined May 2007
Total Posts : 517
   Posted 1/9/2010 8:23 PM (GMT -7)   
Hi bigz123,
Welcome to Healingwell. Sorry you have been dealing with so much. I had to answer your post, every single symptom you have I also experienced early in my Lyme infection. May I ask you what led you to considering Lyme or another co-infection as being a possible culprit? Have you had any itching? Difficulty swallowing?

In my situation I also have these small red dots on the back of my neck, and skin tags. I tested positive for Ehrlichiosis through IgeneX, and have a clinical DX for Lyme. I also feel I may possibly be infected with Bartonella. The GI symptoms have been the most difficult for me to deal with. They were present prior to starting any ABX, and have remained persistent. My LLMD recently retired, and I'm currently looking for a new Lyme Literate doctor.

I would suggest you find a LLMD, sadly not many doctors understand how to treat this disease. Here is some info. that may help.

Best wishes

Regular Member

Date Joined Sep 2009
Total Posts : 228
   Posted 1/9/2010 8:29 PM (GMT -7)   
I have the red patches all over my legs and arms. Nothing has made them lessen, they don't itch, but they sure are ugly. I have only shown positive for Lyme and Q fever. My Doc re tests me every 6 weeks for all infections. My LLMD has had patients come up negative 3 times then show a positive. He thinks it all has to do with what cycle each infection is in.
“You must be the change you wish to see in the world.” -Gandhi

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 1/9/2010 11:18 PM (GMT -7)   
Hi bigz,

Welcome to the forum! What lab did your doctor use to test you for Lyme? If you have your results, please post them here. These tests are not too accurate and sometimes a person is infected even with a negative test. I'd like to know which bands were positive on your test. Certain bands are Lyme specific.

Have you ever been tested for Bartonella? You do seem to have some of the symptoms. It can affect the brain pretty bad.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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