Onset Symptoms after H1N1 vaccine, now I learn I have had Lyme Disease for 10 years.

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kwicherbichen
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/13/2010 1:58 AM (GMT -7)   
Shortly after the shot I experienced numb hands, then face, then feet.  In the last two months I have had so many bizzare symptoms, lots mimicking MS.  But after doing some research and being my own advocate I remembered that I had a strange rash, circular, large, red, bullseye on the back of my calf.  That was 2000, and I have experienced lots of symptoms in the last 10 years but I always justified as being something else, stress etc...allergies maybe...it wasn't until I googled a tick bite picture that I realized I had it exactly.  Now all the itching, fatigue, brain fog, low blood pressure, etc, etc...makes sense.  I am in the beginning stages of this and have not got my first Lyme test result back yet.  I am certain it will be negative from all of the reading I have been doing.  And lucky me, I live in Canada, (British Columbia) where Lyme treatment sounds like quite a battle.  So I will need the help and support of this forum to guide me. 
 
Oh and to top this all off, I think I may have passed it onto my child who is 18 months.  She is displaying some weird neurological type things, like pulling at the skin on her arm and touching her fingers to her thumb and going owe, owe.  I guess the vaccine maybe made these symptoms come out?  any thoughts?

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/13/2010 4:10 AM (GMT -7)   
Hi kwicherbichen,

Welcome to the forum! We're so glad you found us. There are plenty of caring people here and lots of support. I'm not sure what happened with the H1N1 shot, but I'm sure anything is possible. Your immune system was probably struggling to fight off the little bit of the vaccine that was put in you or maybe it was something else in the vaccine that set off a reaction. Whatever it was, you need to find a good Lyme Literate Medical Doctor(LLMD) to help you.

What doctor are you seeing now and what lab did they use to test you for Lyme?

I'm really sorry that you are dealing with this. You should also have your child tested too. Younger children usually recover faster than us adults so catching it now, will help.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/13/2010 4:13 AM (GMT -7)   
Here's some more information for you to get you started on your Lyme Journey:


Welcome to the forum! We're so glad that you found us:)

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Ticker at:
ko_@bellsouth.net

If you'd like more doctor suggestions, you can email stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You will want to find an ILADS(International Lyme And Associated Diseases Society) doctor. The
ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/

Another good site that you can go to to help you find an LLMD is www.lymediseaseassociation.org They give you three tries a month to find a doctor.

For great info and links, please read the topic at the top of the first page of this forum titled, "New To Lyme?......Start Here!" It will help you get started learning about lyme.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


kwicherbichen
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/13/2010 12:30 PM (GMT -7)   
Hi, Thank you for the information and the support.  I am in Canada.  So I will try to see what I can do from up here first.  My diagnosis is so far clinical, as none of the tests have come back yet.  I know how I have been feeling, and I know that I had the bite and bullseye rash.  From the reading I have done so far, it seems if you had the rash it is Lyme.  So I wonder if you can have the rash and it not be?  But I also have sooo many symptoms too, especially since the vaccine.  At first I thought that the numbness all over and the muscle spasiticity, cold sensations, extreme fatigue and aching were a bad side effect from the shot.  But they are not going away, so a friend told me to check into Lyme - and that is when I remembered what I thought was a spider bite.  Now I realize it was from a tick.  I have family and friends that remember the rash completely, and how long it lasted.  Apparently I went to the doctor and he gave me some cream.  (thankfully some of my family's memories are not as foggy as mine)
 
  I do have my good days, but I can be having a good day and then be struck by a sudden onset of brain fog, numbness increased, etc...yuck.  Over the last 10 years...there are so many things that have happened and been happening that I could relate to sleep deprivation or stress etc, aging...I have always thought it was just how it is.  But never been sick enough to think that I had an actual disease.  It was only after I got numb and went to the hospital and the numbness and symptoms are not going away that I decided to get proactive.  I am scared, not knowing where this is all going to go and when and if I will ever be 100% normal.  I have lived with stuff for 10 years now, and gone to the doctor only to be told nothing.  So frequent urination, knee pain and insomnia were never treated.  I have suffered from varying degrees of fatigue, rage out of no where, way over exxagerrated of a reaction,vibration in my neck sometimes when I turn it,and phases of itching so badly that I thought I was allergic to something, so I would start eliminating things from my diet.  And many more...

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 1/13/2010 2:54 PM (GMT -7)   
I got diagonsed recently. i havne't even found a LLMD yet but from what i've read so far, it seems like ppl who educate themselves along side with meds, get better sooner than people who just rely on medications). and I've started the following right away (before even I know what kind of complications I have)

Banning all soda, (excessively sugary products, like candy, vitamin water, etc).
Going to plenty of water everyday
Exercise (even as little as streching) as and when daily as frequently as I can to keep things mobile.
Going on atleast 1 salad a day (lots of veggies, soy i love - going to check on other diet requirements)
Alcohol only on dates (limit to 1 drink or 2 if the girl is really pretty).
Going to switch to warm water bath, but as of now its cold in North east, and to help with itching I am doing really hot water bath, helps with the join pains for a brief time.

Next thing I intend to do is build a support system around me, for fighting this thing off. I live alone and have no immediate family here. Had I not been in america northeast I'd have less chances of acquiring this disease if I was in tropical country, but that is not important anymore.

I've been having bad days for last 2 months, i've just been hoping to get well miraculously, but that is not the case and its not going to happen. Current symptoms are: massive muscle twiches in legs, mild elbow shoulder ankle pain, massive knee inflammation, may even be damaged, but going to get Xray done for pelvic, lower back, and knees to find out more. I don't know what to tell doc, if there is any speedy recovery, or what to do to minimize complications.

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 1/13/2010 3:10 PM (GMT -7)   
Hi there!

As sorry as I am to hear that you've had this for 4 years, at least you know now. Can I ask where you are in Canada? I'm in Canada as well, and I have some information on the (very few) LLMDs in Canada. Also, the Canadian Lyme Disease Foundation (www.CanLyme.com) has a bunch of information and resources.

If you had the classic bulls eye rash, don't let anyone trick you into thinking its a spider bite. Spider bites are more necrotic, and don't have clearings in the middle.

kwicherbichen
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/14/2010 11:55 PM (GMT -7)   
Hi NickyD,
 
I am in BC, Nelson. I would love any information you may have for Canada LLMD's.  I have been in touch with one.  So maybe you would have heard of him.  I guess we can't mention the name on here.  I wonder how we could private msg that info.  I have been living on the Canlyme.com site, and just told my regular MD about it today.  I am having great co-operation so far, but my MD does not (and admits it) know anything about this Lyme Disease.  So I look forward to hearing from you.
 
thx

kwicherbichen
New Member


Date Joined Jan 2010
Total Posts : 10
   Posted 1/15/2010 10:13 AM (GMT -7)   
kendal122

Who are you talking to? and what are you talking about? you maybe replied to the wrong thread? Because I am not sure that your reply makes sense...sorry.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/16/2010 5:49 AM (GMT -7)   
kendal,

Hey hun. I think you maybe wanted to post in the teasel root thread?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

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