LLMD don't accept insurance - WHY?

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Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 1/14/2010 10:03 AM (GMT -7)   
Does anyone know any llmd who accept insurance (cigna) in and around ny/nj area. pls write to me pepphell at gmail dot com
I've used the doctor referral program of ilads, and unsucceful so far in finding a doc who would take my insurance. without insurance i'd get killed anyways, a couple of consultation fees would be running in excess of thousands. 
this is turnign out to be nightmare already.

Veteran Member

Date Joined Jun 2007
Total Posts : 849
   Posted 1/14/2010 11:47 AM (GMT -7)   
Many LLMD's treat long term with abx...they are trying to "fly under the radar" so to speak as not to attract attention to themselves.  By taking insurance, they do fall under scrutiny.

Very very few true LLMD's will take insurance. Really stinks. However, at least insurance for the most part will cover the abx's.

Co-Moderator Lyme Disease Forum
Life is not about waiting for the storms to pass...it's about learning how to dance in the rain

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 1/14/2010 12:57 PM (GMT -7)   
I am on my 4th llmd. I have been to 3 that took my ins. the only thing I wish someone told me in t he beginning is that IF you have the money to pay go to the best money can buy. Try not to fart around with some docs that are not the best. It just adds to the time you will be sick.

A lot of the docs who do take ins, are not as aggressive as the non insurance taking docs.

but a lot of us cant afford it so 'I understand.

good luck,
Chronic Lyme Disease

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Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 1/14/2010 8:33 PM (GMT -7)   
i checked, my insurance allows to me get care outside of network (and makes me pay 35% from my pocket), and i found this doctor, who needless to say is expensive, but is also one of the best for lyme disease. so i made an appointment... how much do you anticipate total treatment cost

35% of doctors consulation over the course of recovery, let's say 20k, so thats 7k for doc fees. and another 20k for abx i am guessing. so thats another 7k. .. i guess ill borrow for health.
my symptoms are deterioting real fast.

itching like crayz now, calfs, lower back, sides of belly, ears, knees shoulders, thighs. i need to find a support grp for lyme so i can talk, so far i haven't been able to talk to anyone. friends ... are going to be fewer now, and just dont feel like telling to family, cuz they have their own stress and this will break their heart.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 1/15/2010 12:05 AM (GMT -7)   

Does your insurance cover antibiotics? If so, you'd only have to pay out of pocket for your doctor. Blood tests and any other tests should be covered.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**


Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Jun 2009
Total Posts : 285
   Posted 1/15/2010 12:06 AM (GMT -7)   
Hard to believe, hard to take that this disease which ranks very high among the most debilitating is not covered nor taken seriously by insurance companies. It's not like it's rare either.
Alcoholics and drug addicts are treated much better even to the point of organ transfer. I have no problem with that, but am sickened by the ignorance shown to Lyme patients.

There was a time when women were mutilated by breast cancer surgery and the insurance companies refused to pay for reconstruction......no more. It's a
federal law, totally out of the insurance companies hands, that the must pay to make a woman whole again.

This must happen with Lyme victims and soon. So how do we go about it. There is no doubt that women banded together and changed the law about breast reconstruction.

Cajun is there any 'group' or petition fighting this where we can get involved? There is strength in numbers.

The greatness of a nation is judged by the way it treats its animals.
Mahatma Gandhi 

Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 1/15/2010 10:36 AM (GMT -7)   
yeah its a shame, that even in US, even after paying premium dollars for health insurance, quality care continues to be denied by insurance companies.

I won't lie, but I am the kind of person who never gave a thought to these issues, and never really sympathized/helped/or derided or complained about people suffering all over the world with lyme or some other chronic disease. My attitude was that of plain indifference. But now, if and when I do get well, i'll make sure to fight for a cause (whether it be lyme or not, not sure, but most likely). turnthecorner is great support and i admire the courage and good intentions of thousands of people who fight for us. There is one group for people in nyc I found, and I intend to attend on 25th jan (god willingly) if i am able to (hopefully we can participate in peaceful activism).


I also found some other good resources that is worth reading (to fight it, and to keep at it, and to keep fighting), encourage you'll to read:

Another resource (but mostly doctor related)
http://www.lymeresourcemedical.com/ <-- this doc is a GOD when it come to treating lyme, but you bet he is beyond my pocket expensive.
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