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Regular Member

Date Joined Oct 2009
Total Posts : 30
   Posted 1/16/2010 9:50 PM (GMT -7)   
So I've occasionally been stuttering over the past month, maybe 1-2x week. While I know this is listed on the possible effects of Lyme, as is a zillion other things, have any of you stuttered.. It's been mighty embarrassing but the few times I've done I don't think it was noticed by anyone else.. This is a brand new thing for me. I have NEVER stuttered in my 34 years, ever. Don't know what to think about this..

New to Lyme.. think I got it in Sept or Oct - had a bullseye - "diagnosed" in November because of a positive western blot - but had a negative ELISA. Dr. suggested I did not have Lyme because of the negative Elisa. - sidenote on the Elisa test - original dr. did western blot first and gave me 1 month of doxy.. after the doxy, he was not convinced I had Lyme and did the ELISA, which was neg.. (after the anitbiotics)..

anyway.. this is fairly new.. would I be experiencing cognitive problems already?? That is kind of fast??

Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 1/16/2010 10:54 PM (GMT -7)   
i am struttering a lit bit, i think i am drooling and not getting any sleep and twitching a lot with join pains, first time on doxy, don't know how long iv'e had this lyme.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted Yesterday 7:48 AM (GMT -7)   

Yes, I stutter sometimes and kind of stumble on my words. Sometimes, I put two words together but this didn't start with me until last year and I've been infected for quite some time. I read that it only takes a few weeks to affect the brain so it is possible. What dosage of Doxy were you on a day?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Forum Moderator

Date Joined May 2007
Total Posts : 35990
   Posted Yesterday 9:29 AM (GMT -7)   
Hi Lovebug,
I went through a period of such stuttering, that I began to refuse to speak - except in the most important of times - like @ drs or the grocery store, or speaking to hubby. It was horrible!

As for me, my stuttering was directly linked to a TBI brain infection. Now, I do have to say that I have had TBI's since BEFORE you were born & they were not recognized until just about 10 years ago.

It took a full year on high dose Minocycline for me to be able to pull out of that, but I have no clue if that is 'typical' or not for Lymies.

A goofy thing I started (& still do) is to make sure I 'exercise' my brain with things other than reading or discussing 'all things Lyme'. It did seem to help a little - although I can't be sure if it actually physically helped or I just felt better because I was doing SOMETHING(!!!).So I set out to do very easy crosswords, "loop-a-words", recreational reading - as long as I didn't try to do more than my brain could handle.

Know that you are far from being the only one with these issues!!!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

Martha's Vineyard
Veteran Member

Date Joined Jul 2008
Total Posts : 1119
   Posted 2/4/2010 12:19 PM (GMT -7)   
You just got lyme this fall? Can you get your Dr. to give you amoxcillain? Like 1,200 of it daily?
Doxy did not work for me. Amoxy did wonders for my 11 month old daughter. It was several months before I got her the right dosage. And I had to fight hard to get it for her....10 Dr.s later...and some fired. lol
Can you get your hands on it somehow?
They have kids chewable in 400 mg. You are still in a good time zone to knock this thing out.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.

Martha's Vineyard
Veteran Member

Date Joined Jul 2008
Total Posts : 1119
   Posted 2/4/2010 12:23 PM (GMT -7)   
Who knows what strain you got of lyme, there are 300. And who knows if this is the first time that you have gotten it.
And yes that fact that you are studdering is not good. But it will be one of many symptoms that will happen. But it can all go away too.
I got to where I could not talk well at all. It was very embaressing. I couldn't remember words.
But the good caught it early! Tell him that the doxy makes you puke. And that you cannot keep it down. Get amoxy. And send your bllod work to to find out what co infections that you may or may not have...asap.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.

Veteran Member

Date Joined Oct 2006
Total Posts : 851
   Posted 2/4/2010 6:13 PM (GMT -7)   
Hey lovebug,

I have suffered from speech problems for a number of years. It's periodic rather than constant. Pain and fatigue seem to aggravate it.

I have experienced stammering speech, blanking out mid-sentence, saying the wrong noun, coming out with a sound rather than a word, like "mmmaaaaa," slurring of speech...Indeed, I sometimes sound like I am mentally challenged.

My ego has taken major hits over the years due to Lyme disease. Pre-illness, I used to get compliments about my "eloquent speech." I've become tired of saying "I used to..." this-and-that...

For the speech problems, I've found that if I become less nervous of sounding like an idiot, it makes to easier to cope with. If I have a speech-stumble, I sometimes stop and just say, "My mouth is broken today" or "What was I trying to say?"

Apparently, the brain is the last to return with treatment. Still waiting...

Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 2/4/2010 6:15 PM (GMT -7)   
I am not stuttering anymore. I am told I am very articulate in the meetings. Thank god for small mercies.
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