The reason I said what I did is because the tests are so inaccurate that there is no way to prove or confirm whether the Lyme is actually gone or not. And Lyme is so deceptive, so sneaky and good at hiding from the immune system and disguising itself as something that is supposed to be there, that even tissue samples tested for Lyme DNA can be falsely negative. Therefore, the only way to know one is doing well is by symptoms (or lack thereof).
Some believe there are 3 stages of Lyme (there are varying names & lengths of time) - Acute Lyme (within first 1-2 months), Acute Disseminated (within first 2-6 months), and Chronic Disseminated (after 6 months). I don't agree with this...in my opinion, there are 2 - Acute (within first 1-2 months) and Chronic (2+ months). Why the distinction between Acute & Chronic Disseminated makes no sense to me. Once the infection has been present long enough to go through multiple generations (Lyme reproduce once every 3-5 weeks), it has moved beyond the initial stage (i.e., moved from bloodstream into the tissues) and found good hiding places. It has begun making biofilm communities, and begun to set up colonies in various tissues. It has begun to hide from the immune system, mimic chemicals (hormones, etc.) in the body to gain access to the brain, and generally adapted itself to the body. This is all my personal opinion, based on much reading and what little I understand about
the human body.
nasalady, in light of all of your autoimmune diagnoses, I'd suggest the idea that maybe Lyme is the underlying common thread, and that maybe there is a chance that treating the Lyme (and any coinfections) will make your other conditions easier to manage, or even make them disappear altogether. I'm not promising this, but it is a possibility. I say this because I know it can happen, so I want to encourage you and give you hope - I too am hoping most if not all the crazy things wrong with my own body are due to Lyme/coinfections as well, and that once the Lyme/coinfections are under control, the other conditions will become less of an issue.
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds: Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.