Question about Flagyl???

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Regular Member

Date Joined Aug 2008
Total Posts : 348
   Posted 2/1/2010 8:23 AM (GMT -7)   
Does everyone who has Lymes disease have to take Flagyl at some point?? or do some people get better without it. Only asking because some of the side effects that I am reading about this drug are very scary. The most scarcest for me was when I read if you ever had seizures and I had two in my life time but never took med's for it. Also the dizziness it says it causes. My doc is very aggressive in his treatments and said I should take it but I am very leery about this one. Any advice will be appreciated.

Nicky D
Regular Member

Date Joined Jun 2009
Total Posts : 361
   Posted 2/1/2010 5:24 PM (GMT -7)   
Hi ria,

I don't think it's very common for Flagyl to causes seizures. Some people have seizures from Lyme, and so when they herx from Flagyl, they get more seizures, but I think Flagyl causing seizures is very rare. I think it is an important drug, because it hits the cyst form of Lyme. You could always try it, and it you have an adverse reaction, stop it. It only causes seizures when you are on it- not after you stop.

Or if you want to start of slower, you could talk to your doctor about Grapefruitseed extract. It goes after the cyst form of Lyme as well,

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 2/1/2010 7:42 PM (GMT -7)   
I've taken flagyl (not for Lyme - was before I knew I had Lyme) and it did not cause seizures. I was on it for 6 months (for a parasitic infection), and only got dizzy once when I was out in the sun (could have been my poor nutritional status or other medications I was taking at the same time, also).

Take care,
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 2/2/2010 9:19 AM (GMT -7)   
I've been on Flagyl now for ten weeks. and it has helped me a great deal. I was slipping backwards into a lot of neurological symptoms: Eye flutter, catalepsy, twitching, tremors, face paralysis. crawling under the skin to mention a few, well, that's actually a lot! Now I am having some great days with less physical and mental symptoms and the neurological stuff only came back when I got the flu. A recent blood test showed my liver enzymes to be elevated, but my llmd is watching that. Flagyl is not the enemy Borrelia is!

Regular Member

Date Joined Aug 2008
Total Posts : 348
   Posted 2/2/2010 1:11 PM (GMT -7)   
So true Lyme and Co-Infections are the enemy that's for sure. Well I took my first pill last night, he told me to only take one a day and build up to 3 x a day. So I will wait and see how it goes.
Thanks all.
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