New lyme vs cronic lyme

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/6/2010 9:58 AM (GMT -7)   
Let see if I can put this easily. When one of my little girls got lyme for the first time. The thing that made her better...asap, was 40 days of amoxy at around 1,200. She went from extremely ill to fine, with a scary herx in the middle. We are talking 105 fevers, cronic fatique, pain, mirgrains, depression...she was 5. She told me that she did not like her life anymore....I was like....oh god. But I finally got her into Dr. J.
It took months. But he finally got rid of the 105 fevers that she got every two weeks for years. Since the first time she got lyme she was 11 mos.
 
Okay....when I got lyme that summer of 03 and. Well 03 I was not treated. I just lost a baby for some odd reason at 3 and a half months. come to think of it. Alot of other women were losing babies that summer in the vineyard. All of us big gardeners.  But in 04 is knocked me off of my but.
I found the tick. He was the size of pepper. I went down. I couldn't sleep, cried all night. Had trouble walking was unable to open the frig. fever, pain like...I had rolled a car, and a screaming mirgrian. And a awful pain in my neck which went down to the right shoulder.
My Dr. put me on doxy that I took for almost 2 mos. It did not work. I didn't understand why not. So of course I ended up going to so many more Dr.s for all of the new symptoms that I started getting.
My mistake. I should have taken the amoxy that worked for my kids. But I am alergic to pennicilain. Plus the other wierd thing was that I never tested postive with lab cor or Quest. And here I was....walking around sick as a dog. All of a sudden my life changed big time. And her were all of these Dr.'s telling me...you don't have lyme.
Well lets just say this. This is a time to tell you Dr. to read up. And ask him what tuleremia is.....or bart. And let him know that Tuleremia is alive and well and spreading all over the North East of the USA. that co infection will kill a young man in about 2 weeks flat. I lost two of my yard men from it.
So if the doxy does not work, and you never got treated without having to get abx on line or holding up a store, then you are now cronic.
Cornic is tougher, because now the lyme and gone all over the body and taken root in every darn organ. And it puts the immune system into a frenzy along with the central nervous system...hence...the severe mood swings and depression and anxiety and suicide.
So, at this point of cronic lyme. You need to not only need to put a stop to the reproduction of the bacteria, but you also have to re build the immune system now. Because it has been ruined. And then all of the symptoms are like dominos...you get everything wrong with you.
The only good thing about lyme reproduction is that it is slow. Unlike Maleria that multiplies I think every sevral hours. Lyme is evey 28 days. So that makes it a slow killer.
It makes horse's and cattle and dogs go lame. And when a animal goes lame we put it out of its misery. But when  human goes lame, we put them on the sofa. And most of us with lyme are told that it is in our head.....wow...and are sent packing to a phycologist, who in turn drugs us silly to help us. Ahhhhhhh sounds like hell no?
Well it is. And for those out there who have someone with cronic lyme. It is only going to get worse, but not just for them, but for you. You are going to have to care for them for life. So....I strongely suggest getting them help now. And if that means selling off a car or getting a loan to pay for their treatment to get them fixed. You are going to be caring for them for a vry long time.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/8/2010 1:25 AM (GMT -7)   
>> But when human goes lame, we put them on the sofa.<<

How true that statement is!! That's where I am now.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 2/8/2010 6:21 AM (GMT -7)   
I'm there right along with ya CajunGrl....I think I need a new sofa soon this one is wearing out from to must sitting and lying down.
 


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/8/2010 6:29 AM (GMT -7)   
I just bought a new one but its micro fiber and it's already getting flat from me sitting on it so much, LOL.

What is going on with you? Is it pain keeping you down or neuroligical? Or maybe something else?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/8/2010 6:54 AM (GMT -7)   
Hey...you guys are making it to the sofa? Lol....I was having trouble getting out of my room. It was more comfortable in my bed and I could make it darker in my room and cooler.
I would take my kids to school and go right back to bed with my fever and screaming mirgrain and pain..and try to sleep, be cause of course we can't sleep at night. So exhausted we try to sleep in the day thinking that we will some how get rested to get something done....but that never comes...feeling rested.

The cronic fatigue and pain and fever and vertigo keep me off of my feet. I was like trying to walk on high seas during the day time. And with the migriane the sun and the heat was too much. I live on the water and could not go to the beach for years. The heat was extreme for me, the sun was torture. It was fine for everyone else. But I felt like I was being broiled.
Lights...sounds, everything was so hard to handle.
The first thing that I was so happy about while being treated at Enivta was all of a sudden, waking up without a mirgrain! My god...this was the best thing in the world. I could open my eyes...and not feel so sick in the morning. And then...my fever went away too.
So I was not sweating through my sheets and clothes. I use to wake up in a wet bed every morning. With a ring around my body and drenched. It seems like a distant reality now.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 2/8/2010 7:27 AM (GMT -7)   
Mostly the pain and nausea, I get kids off to school maybe toss in a load of laundry that I am behind on.
Then head to the couch, and sit with the computer, my kitty and my dogs all around me.
Neuro problems, vertigo, pain all over (when I was on IV's the pain was gone, and I could actually walk
normal) now I have to hang on to the railing or wall and go slow. I only get migrains during that special
time of month most of us women hate.
I cant just get up from a sitting position and take off walking, I feel drunk and dizzy and almost fall over
at times. Can't count how many times I have ended up in my hubbys lap, I just laugh, give him a hug and
kiss and say, "Dang I need to put down the Alcohol" We both just have to laugh it off. There are times that
I get so mad about the lil things that I cant do I end up doing them anyway, sometime I pay for it. I really
need to start some sort of couch exercise "LOL"
As far as fever goes, it jumps all around from 95 to 101.
Just treating for Babesia with Zithro and Mepron. Seeing Lyme Doc in March and hopefully by then I will have
enough info on the Ozone therapy I can see what he thinks of this and if it could benefit me. He is a great LLMD
and is up with the new testing on co's and uses Igenex. But this Ozone therapy really has my attention.
All I seem to need is just a boost to get me over the hump and my own body can start fighting as it is supposed too.

Hope Appt goes well with you CajunGrl, Thanks for being here and for all you do to help this forum and its sufferers

Marie you are a godsend to those that need hope . . . So appreciative of the time you can share.. MMMM Florida sounds
so nice right now ... looking at the snow here in KS and its so cold I cant get warm.

Have a Great Day Everyone
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/8/2010 11:58 PM (GMT -7)   
I'm not making it to the sofa either....I frequently stay in my bedroom all day. Sometimes I manage to sit in the chair by the window and prop my feet up on the stool. I don't open the curtains because the light makes the nausea and vertigo worse.

I'm supposed to be going to work but haven't been there in weeks. :(

I'm going to try to go in to work tomorrow....wearing dark glasses. I won't fall over because I'm in a wheelchair, LOL! Otherwise I definitely would fall over, the vertigo has been really bad.

I do like to hear from people who have been through this and have made it to the other side....it does give me hope.
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 2/9/2010 1:06 PM (GMT -7)   
Harly,
Gosh you made me think of those days and gave me tears. Walking is like walking on hig seas....and having to hold on. And having to be funny about it to not cry all of the time and be weak. It is okay to get mad. That is the only thing that saved me. Getting pissed and fighting.
But keeping your sense of humour..is the most important thing in the world..and for sure, I know, lyme it not funny at all. But screw it....
Well....makes me think about your furry friends. My bed mate was my sick Toto. He had spent all of those summers in the vineyard with me. And he got sick too. He would be so out of it some days. He had all of the same problems that I did. He got to some days he could not walk. He had the teeth of a very old dog. He forgot he was house trained. He would just veg out and sleep with me all day.
And he hated the light outside and couldn't take the heat at all anymore.
And then some days he would be happy.
But he died in Dec. of 09.
I bring this up for one main reason. Your furry friends could also have it and you may be getting it over and over.
Have you had your property treated? Do your cats run around out side?
The clinic told me to put colidal silver in my dogs water bowls. I have done it to my birds as well to clear things up for them.
Harely if you need a quick fix for the pain and fatique try cymbalta. It gets rid of it.
The vertigo well.....that will go away when your immune system gets back in order. It is like dominos.
Do you have ozone treatment in your state?
Are you taking a ton of supp. and vit's?
This is more important than anything.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, November 24, 2017 4:17 AM (GMT -7)
There are a total of 2,897,373 posts in 318,009 threads.
View Active Threads


Who's Online
This forum has 157581 registered members. Please welcome our newest member, Beth Louise.
217 Guest(s), 0 Registered Member(s) are currently online.  Details



About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.