I apologize for my verbosity in advance....but maybe this will be helpful to someone?
I don't know when I came down with Lyme. My first strange illness occurred in 2004. I had "cryptogenic" hepatitis, meaning they tested me for every hepatitis virus from A to Z, all sorts of weird congenital liver diseases, and never did figure out why my liver enzymes were over 3500 at the peak (normal for AST/ALT is less than 40). My bilirubin was also through the roof....I turned as yellow as a Highlighter marker.
I eventually started to improve, but was scared for a while because the doctors were using the "T" word (as in "transplant"). I've since read that Lyme disease can mimic acute hepatitis....who knows? Maybe that was Lyme? Or it could have just been the beginning of my autoimmune hepatitis (AIH), but I think that was ruled out by blood work at the time...?
I slowly recovered from that episode but by 2006-2007 I was experiencing a number of odd symptoms, including pain in my back and difficulty walking. In 2008 I once again had liver issues and was dx with autoimmune hepatitis, then fibromyalgia, then rheumatoid arthritis, then celiac disease....all within about
6 months. I ended up in a wheelchair. In 2009 I was dx with lupus, then UN-diagnosed and told I had another as-yet-undefined autoimmune disease that's NOT lupus. (???) Well, that's another story....
I was just dx with Lyme about
a month ago. I tested positive on the Lyme ELISA, then I did a Western Blot through Igenex: negative by CDC standards but positive according to Igenex.
My theory is that sometime in the last 3 - 7 years I came down with Lyme disease and it managed to trigger many of my autoimmune diseases and my fibromyalgia. I know I had a few AI diseases before the Lyme hit, but the explosion of diagnoses over the past couple of years has been ridiculous....Lyme must be responsible for some of them.
In any case I
was the one who told my neurologist I wanted to be tested for Lyme disease. I insisted on it because a friend of mine in an online celiac forum kept pushing me to get tested. I'm so glad she did....I never would have known. And none of my doctors ever mentioned it as a possibility, even with all of my unexplained neurological symptoms!!
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfateautoimmunediseasesgfliving.blogspot.com