So depressing - finally thought I had it figured out

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springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 2/8/2010 7:29 AM (GMT -7)   
Was feeling so much better, having figured out that a lot of my anxiety and rage was coming from sugar problem.  Went out on friday nite and felt the best and most normal I have felt in a long time only to be struck with rage and embarassing myself with the same crowd of people on sunday.  My mood swings are horrific, anxiety, tight jaw, shaking, pounding heart, red face, swollen bloodshot eye, I felt like I was going to have heart attack.  I can't figure out if from doing too much (had actually gotten on treadmill for first time in 3 years) or eating wrong or just having too much darn fun for a change.  Mind you, no alcohol, sweets, etc.   It is just so frustrating.  Guess I gotta regroup again and see where the hell I went wrong.  Hoping dr. will test for insulin resistance and reactive hypoglycemia which I understand can both cause such drastic mood swings.  I know can just be from lyme but if I could only figure out what to eat and when I think it would help.  Sorry for the rant.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 2/8/2010 9:00 AM (GMT -7)   
springsjean,

Have you been tested for co-infections? Bartonella can cause the symtoms you are describing. I had severe mood swings, a pounding heart, anxiety and shaking. I still have some symtoms since I couldn't finish treatment for Bart, but it has settled down a lot.

Is your blood pressure normal?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 2/8/2010 9:04 AM (GMT -7)   
I was tested thru igenex for co-infections but only erlichosis showed up. My blood pressure is usually low but during these episodes I think it must be sky high with the heart pounding, red face, etc.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 2/8/2010 9:09 AM (GMT -7)   
Talk to your doctor. Those test, unfortunately, are sometimes not accurate. You may need a clinical diagnosis.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


achievinggrace
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Date Joined Nov 2009
Total Posts : 3266
   Posted 2/8/2010 12:48 PM (GMT -7)   
I have ehrlichiosis and had terrible mood swings and rages. One branch of my family is still not speaking to me. It seems a shame to have to avoid social contact, but while you are getting treatment you might want to be a little gentle with yourself. Not everything can be cured or controlled by what you eat but everything is helped by eating a healthy diet.

Make sure you are rested going into an event (feel free to cancel if you are not feeling physically or mentally well). Try to avoid what sets you off (I had trouble with a lot of noise or flashing lights -- pretty much describes a sports bar, doesn't it). Have a buddy who can recognize when you are starting to feel uncomfortable and will remind you to bail out. My husband can see when I am "twitchy" and starts the exit wheels in motion. Explain simply, apologize and leave.

It won't always be like this.

springsjean
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Date Joined Mar 2009
Total Posts : 2154
   Posted 2/8/2010 1:39 PM (GMT -7)   
Thank you so much. Now that you told me, may ask dr. to retest for erlichosis cause titer was very high 320:1 and he seemed to think cured by two months of doxy. thanks for the tips. They are so welcome and appreciated.

Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 2/9/2010 12:55 PM (GMT -7)   
Yep...sounds familiar to me as well....gosh....oh and fainting over nothing. Or seeing black things run across the floor...or thinking everything was so darn funny and getting a really sick sense of humour. Insane.
I had bart too.
Look...everyone will catch lyme on way or the other. It is like traveling to Africa and not worring about maleria. It is all over the place. I was covered in tiny ticks every summer and mosquitos love me.
So, you are going to have to get your blood tested at igenex to see what is wrong. And most importantly you are going to have to learn how to pace yourself.
I know how hard it is to have one good day in 3 mos. and run out and try to do everything and then...wammo.
The same thing applies to getting the flu and then the minute you feel better you run out and have fun and then...back in bed with the flu again.
The immune system is in charge of your central nervous system. So if one is not running well....then the other will screw up too.
Our family all got lyme in 2004. It has been a long battle. But all is well now with my children. Feb 8 TH of 2009 is when I left Envita. And I am celebrating a year of perfect health.


yogamom2
Regular Member


Date Joined Nov 2009
Total Posts : 99
   Posted 2/9/2010 3:54 PM (GMT -7)   
springsjean,
You said you went out on Friday night cam I ask what you had to eat. Any sauce that might have had sugar in it or maybe a marinade. That has gotten me several times. I do not eat out without talking to the chef anymore.

Take care
My family and I have been enjoying my life without surgar dairy gluten and soy for many years.

Found out about it in spring of 2009 that I have been living with Lyme for over 8 years. My symptoms of Lyme have been Mini-Strokes/TIA's, Hashimoto's disease, swelling of my liver and kidneys. Anaphylactic reactions to raw apples, raw carrots, and Beef. Allergies to dairy, gluten, and Soy.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 2/9/2010 4:39 PM (GMT -7)   
I had chicken marsala but really didn't feel not well until sunday nite. I was thinking maybe the odoul's (I don't drink anymore) or the wheat bread sandwiches. I thought I was doing good, no alcohol, no dessert, healthy chicken and veggies. Didn't even have roll. But that was friiday and saturday I had carbs (tort chips, popcorn) and wheat toast with my eggs for dinner. I always thought gluten intolerance was just stomach problems, but I have read can cause anxiety too?. I'm just trying to see if other things involved and not all from lyme as I do feel better in some ways after 9 months of antiobiotics - less fatigue, less headaches. I figured I did most of the figuring out to get to this point I may as well still keep trying. Thanks for your help.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 2/9/2010 4:39 PM (GMT -7)   
I had chicken marsala but really didn't feel not well until sunday nite. I was thinking maybe the odoul's (I don't drink anymore) or the wheat bread sandwiches. I thought I was doing good, no alcohol, no dessert, healthy chicken and veggies. Didn't even have roll. But that was friiday and saturday I had carbs (tort chips, popcorn) and wheat toast with my eggs for dinner. I always thought gluten intolerance was just stomach problems, but I have read can cause anxiety too?. I'm just trying to see if other things involved and not all from lyme as I do feel better in some ways after 9 months of antiobiotics - less fatigue, less headaches. I figured I did most of the figuring out to get to this point I may as well still keep trying. Thanks for your help.

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/9/2010 5:13 PM (GMT -7)   
Don't wait for a test for reactive hypoglycemia, do it yourself. Actually, since the treatment is dietary changes, make the changes for a month and see if it helps.

You can do some online research to plan your diet. I've found it is best to eat every two hours from as soon as you get up until you go to bed. At the beginning of my treatment, I put a protein snack on my nightstand so I could eat something when I woke up in the middle of the night. You need to eat a bit of protein, fat, and a small amount of low glycemic carb at every meal. Obviously, you need to keep these more like snacks than meals or you will soon develop a weight problem.

Take the food you would eat in a day and divide it into 8 portions. If you are still a bit hungry when finished, remind yourself that you will be eating again in two hours. The goal is opposite what is usually advised, instead of only eating when you are hungry - you should never let yourself get hungry.

O'douls would get to me because it is liquid carbs. I have a really tough time with liquid carbs. They cause me to spike then rapidly drop and go nuts.

Other than when asleep, never go more than four hours without eating, less is better. You should notice a change within a week or so IF you follow the rules and keep your blood sugar steady.

If you do decide to take the glucose torture test, make sure your doc orders the four hour test, not the two hour test. And make sure you bring a good protein snack for after.
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