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New Member

Date Joined Feb 2010
Total Posts : 16
   Posted 2/13/2010 4:40 AM (GMT -7)   
Hi everyone
went to see a GP for the first time last wednesday armed with my info and gave all my symptoms including my bullseye rash confirmation from almost 3 years ago, explained I had not been ok from then on in, explained I had lived surounded by meadow, Deer, Squirrels and other wild life, so on and so on, now have to have blood tests for rumotoid atheritis, I got a bit annoyed at this point, Th GP said it would show if anything else was elevated ?? not sure what that means, can LD show up in these tests or can these test pick up something is wrong, can anyone please help me with this

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 2/14/2010 1:27 AM (GMT -7)   
Hi pidsea,

Welcome to the forum! I'm not too sure what he is talking about unless he means a SED rate, but not everyone with Lyme has an elevated SED rate. You need to take the Western blot to see if you indeed do have Lyme disease. Unfortunately, the test is not always accurate and LLMD's have to look into the test further....with your symptoms to make a clinical diagnosis.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

New Member

Date Joined Feb 2010
Total Posts : 16
   Posted 2/19/2010 2:45 AM (GMT -7)   
Hi Cajungrl
sorry its taken me so long to thank you for your reply, had a hectic week with half term school holidays.
Thank you for your helpful advice, I really need to get this western Blot test done but of course I am up against the Dr wanting to do other tests first for other things, do normal GPs offer the W blot test or is it only LLMDs have that facility ?.

I hope you are a good day

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 2/19/2010 4:17 AM (GMT -7)   
Any MD or Naturopath can order a Lyme WesternBlot, from any lab... But usually it is best to have it done through IGeneX and the results interpreted by an LLMD or LL Naturopath.
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

New Member

Date Joined Feb 2010
Total Posts : 9
   Posted 2/19/2010 6:17 PM (GMT -7)   
I'm currently in more or less the same situation as you, although my GP said that Lyme doesn't exist in the UK idea

If your an NHS patient the Westernblot test is avaiable through them but the protocol, if you can find a doctor willing to test you in the first place is for you to have the Alisa test first, then you would need to put pressure on them and hope that they give you the Westernblot which will be done through a lab in Scotland, alternatively its a case of going to see a private LLMD and getting them to do the test for you and sending it out to Igenex, from what I've learned so far the cost for this is around £600 for the test plus the consultation fee, if you go the second route from that point forward its all private, if you do actually get a result through the NHS then you'll probably get a 2 week course of antibiotics as standard then struggle to get more, I've got some details of LLMD'S and the NHS lab, if you need them give me a shout, Andy
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