lyme disease is taking over my body

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lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/13/2010 10:15 PM (GMT -7)   
thanks everyone so i went to the doctor today and he says that he will not give me any pain meds due to the sweeling in my brain and i asked him about bartonella and i even printed off the symptoms as well as babesia and he said to me " you should not question me i am the doctor and i know what i am doing he says i am well and i am over exagerrating about all this! he doesnt know anything apparently i am so confused now i dont know what to do there are no llmd in nc and no other doctor around will even treat me at all for lyme because they dont know what to do im so scared my heart is continuosly racing then in drops off and beats very slow im on a heart monitor 24 hours a day they made me wear it at home and im constanly sick im not on any kind of treatment anymore he says all i needed was 2 weeks which i had 4 years ago and am still battling from this and i had another 2 week treatment 2 weeks ago  my words are constanly slurred now my night sweats are worse and my doctor just does not want to help does anyone know of any llmd remotly close to nc i am a single mom of a 2 year old and still work money is very tight and i dont know if i have the strength to travel very far anymore i need help or i feel that i jus wont be able do anything anymore  my doctor is just letting me suffer now what can i do???shakehead
please help me
thank you
LYMEADE

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 2/14/2010 1:14 AM (GMT -7)   
Lymeade,

Your current doctor obviously does not know enough about lyme and the treatment of lyme. He is only going to make you worse by treating you for that short period of time. You are probably feeling so bad because you may be herxing. I get the slurred speach, etc too. You really need to see an LLMD. Try www.lymediseaseassociation.org to find an ILADS Lyme Literate Medical Doctor. Make sure you click on ILADS. You have to register to get the doctor's names, but it is worth it. Also go to www.ILADS.org and request a doctor with them too. they may know of a better doctor and you may have to travel.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 2/14/2010 6:34 AM (GMT -7)   
lymeade, you need to get away from that doctor asap. If you send me an email I'll send you a link where you can get LLMD referrals. Sorry for the suffering you've been going through. You're in my prayers.

Gary

Post Edited (GWB) : 2/14/2010 1:07:51 PM (GMT-7)


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/14/2010 10:27 AM (GMT -7)   
I know a VERY good LLMD in NC. What is your e-mail address and I will send you all the info.

lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/14/2010 1:29 PM (GMT -7)   
georgiagirl and gwb my email is prettygurl_heather@live.com and ive been trying to get away from the doctor but i dont have any other choice i live in such a small town no body else will even remotly try to treat me

Nicky D
Regular Member


Date Joined Jun 2009
Total Posts : 361
   Posted 2/14/2010 2:11 PM (GMT -7)   
Hi lymeade! I'm so sorry to hear that. I used to be from a small town- I know how it can be. Are there any other towns near you you could visit?

lymeade
New Member


Date Joined Feb 2010
Total Posts : 13
   Posted 2/14/2010 2:20 PM (GMT -7)   
nickyd im not sure i have google llmds near by and the only one i cand find is in atlanta ga and im not sure if my insurance wil let me go and where i live lyme is prety much not heard of so im not sure what to do the infectious disease doctor near by wont treat me so im at a loss and dont know what to do

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 2/14/2010 3:39 PM (GMT -7)   
lymeade,
I just e-mailed you my doctors info. Let me know if you need anything else.
GG

pepphell
Regular Member


Date Joined Jan 2010
Total Posts : 134
   Posted 2/16/2010 2:23 PM (GMT -7)   
Lymeade,
I know its a tough situation but don't let yourself feel negative about it. This is precisely the time you have to pull yourself and fight before things go south. Figure out a way, this is the best thing you'll yet to do yourself is find an llmd.

List down all your problems / challenges right now and then start working at them in order of priority and if i were you, visiting one good llmd is the first step. If you have a car, drive. If you don't ask friends to drive, if you don't have friend use public transportation etc. Lyme is only gonna take over if you dont fight it. Heck most of us are not even sure if we'll ever get cured but we are all fighting.

---
all of us are in gutter but some of us are looking at the stars - oscar wilde.
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