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need some zs
Regular Member

Date Joined Nov 2006
Total Posts : 143
   Posted 2/16/2010 3:20 PM (GMT -7)   
I no longer feel hope for getting better. It's the worst feeling in the world. I'm so tired of never feeling good. For living hour-by-hour, just trying to get through and not enjoying anything. New symptoms every day. Trying so hard to eat well and take all of my supplements and live a normal life. I can't do it any more -- I've got no fight left. I just want to go to bed and never get up. If it wasn't for my kids, I probably would. Oh, and did I mention the guilt for plopping them in front of the TV/video games b/c I can't play with them? Someone please tell me this hopeless feeling is just another evil symptom of the disease and it will go away someday and I'll feel normal...

Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 2/16/2010 3:46 PM (GMT -7)   
Yes, it is a symptom -- and as you say, a very evil symptom. Wish they had hope in a bottle. Are you taking anything to help your serotonin levels; anti-depressants, Sam-E? That kind of thing can really give you the lift you need to cope and see the light at the end of the tunnel.

Are you getting any sleep these days?

You will get better and you will play with your kids. It's okay for them to entertain themselves for this time.

Hope you have a better day tomorrow.

Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 2/16/2010 3:54 PM (GMT -7)   
YEP..that just what it is...the ultimate mind twister and it gets very dark too some days.

Try not to feel guilty about the TV/video games thing. Even if you did have the energy to play with the kids
they love TV and video games. You know, my Mom was always tired and had a migraine after work and I never felt deprived. You Mom is you Mom and she doesn't really have to do anything with you because you Mom's love is so big
it encompasses the whole house. The whole house is you Mom's love ..including the TV and the video games.

Don't let this thing get you down...... Lay in bed for a while and turn on the TV. Be the master of the remote control and have the kids bring you in something to drink. They love doing that kind of stuff.
hep c , lyme
Dad has lyme

Veteran Member

Date Joined Jul 2005
Total Posts : 570
   Posted 2/16/2010 9:35 PM (GMT -7)   
Yes, it's a "normal" part of having this evil disease as you call it. Things can and will get better. Keep up the fight and don't give up.

What kind of a treatment protocol are you on and how long have you been on it?


Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 2/17/2010 5:47 AM (GMT -7)   
need some z's,

Don't let the guilt take over you. This disease knocks us off of our feet. If all you can do is put the kids in front of the TV, then that's all you can do. They will understand when they get older. I'm sure, right now, they don't even know what's going on. Focus on getting better. Worrying about these things will only make you feel bad. Keep taking your supplements....they take a while to get into your system and actually work. You will be okay.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Feb 2010
Total Posts : 34
   Posted 2/17/2010 8:55 AM (GMT -7)   
I feel exactly the same way. I just want to give up, I can't fight anymore... Want to sleep forever just lye in bed and be left alone by the outside world that I can't keep up with. That's the thing, I just can't keep up! Just getting enough food in me is hard enough, and then having to wash clothes, dishes, clean up, take supplements when they are meant to be taken... Take antibiotics, shower, go across the road to buy myself some food. Take are of my economy, pay bills... All these simple things that should be easy are so ridicolously hard and require so much of my energy leaving me exhausted when I'm done with the simplest of things... WHY does it all have to be so hard??!!??? I can't imagine how tough it must be to have kids ontop of this when you struggle to take care of yourself alone. Hopefully you have a good spouse to help out?
I feel so lost right now, I just want to sleep. I'm a student and I'm supposed to go to lectures every day, write essays, lab reports, do exams... How am I supposed to do all this when I'm already struggeling to feed myself enough when I'm really underweight at the moment and can't afford to lose even a kilo... I'm exhausted. I'm even to exhausted to cry about it. I can't take care of myself, if only someone else could take the steering wheel for a little bit. And everyone around me just thinks I'm lazy and don't care about getting things done. I feel like I'm wasting other peoples time and just being a waste of space at the moment. I need something positive in my life, NOW!!! I need to hear why i should keep fighting

Regular Member

Date Joined Jul 2009
Total Posts : 113
   Posted 2/17/2010 9:34 AM (GMT -7)   
You need to keep fighting because you might feel better tomorrow! I hope you feel better soon.

Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 2/17/2010 10:59 AM (GMT -7)   
It so true , Cupcakes, I don't have kids either and can only imagine how hard it is to be Mom with lyme. The days are really long . some more than others or some points of the day are more intense than others.

And then I keep wondering this gonna work? I used to have a button that said ."DON'T DIE WONDERING."

Have you ever been to the Magnolia Bakery on Bleeker St. in Manhattan, West Village ? BEST CUPCAKES!!

Even though we are off sugar if I hadn't moved out of the neighborhood I would be going over there right now for
one of those cupcakes.

I hope everybody feel better today.
hep c , lyme
Dad has lyme

Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 2/17/2010 9:02 PM (GMT -7)   
In the middle of winter, it is hard to remember the heat of a summer day at the beach, your toes wiggling through scorching hot sand.

Just so, your struggle just to live has made you forget the joy in the life you are living. You can't imagine jumping out of bed, excited to take on the events of the day. The stairs have turned into mountains of Himalayan proportion, ordinary household items weigh as much as they would on Jupiter. That's it, someone's turned up the gravity, dimmed all the colors, and sucked out all the fun.

Wretched, but temporary (sometimes temporary can be a long time!). Here's what has helped me through:

Simplify. Still do things, but find an easier way to do them.

Get help. Those people who think you are lazy -- ask them to give you a hand with something. When they really see that you are struggling, they will understand your situation better.

Focus on a long term goal -- something that gives you a reason live. (It doesn't have to save the World: My goal is to make my granddaughter's wedding dress -- she's two and a half! I said long term)
And a mid-range goal -- something that gives you a reason to get better quickly (I'm planning a charity bike ride next year.
And a short term goal -- something that gives you a reason to get up today. Make it suitable to your ability level right now. (At one point my goal was to do a load of laundry! Whoopee)

Don't dwell on what you cannot do or the fact that you can't do it as quickly as you want to. Celebrate what you do get done. It was heroic.

Help someone else. This will make you feel a sense of worth. It can just be a kind word at the right time, it doesn't have to be another thing to add to the things you need to do.

Some famous person said that the cure for depression is; "Hot baths and noble deeds." Don't forget to put Epsom Salts in that hot bath!

need some zs
Regular Member

Date Joined Nov 2006
Total Posts : 143
   Posted 2/18/2010 6:59 AM (GMT -7)   
Wow, that was so inspiring and just what I needed -- thank you!

Regular Member

Date Joined Jan 2010
Total Posts : 134
   Posted 2/18/2010 11:24 AM (GMT -7)   
Why do we fall? so that we can get up and start all over again. Think of all your present problems in life as small mountains in life. Mountains that you have to climb - so that you can see that breathtaking panoramic view when you reach at the top of the mountain.

I read this story of this lyme inflicted girl online, who came close to dying several times, but is doing well today. Read it, it is source of my inspiration right now. I was in awe so I even contacted her, and she only has help to offer. I encourage one and all to read it.

When I was diagnosed with lyme (not too long ago). I was crushed. I didn't know what the disease is or how to even spell the name. It was a mystery to my why my knees hurt so bad that i couldn't get my mind off it even for a second, let alone be able to walk. My situation was so darn terrible, being a foreigner, and financial struggles and no family present around, i couldn't understand what I was to do. And I cried, all my manhood melted in a mellow moment. But since that day it gave me all the strength to fight challenges in life, it makes life interesting, I've priortized things in life, started to enjoy small things more in life, fall in love easily, and above all else started to take care of myself. By doing that I do myself good, and I do people who love me a lot of good.

We all lymies have problems, diabetic people have it to, and so do people suffering from cancer etc etc. Its hard to put any sort of objectivity around the problems because to us ours is the biggest problem. But you must fight, right when you think you can't. Because when you win, I am sure this feeling of fight in you is all you'll remember out of the old bad days. And remember more than half the world live their normal lives without even getting this opportunity to fight. You have it, make it count, or else there will be no difference between you and the average.
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