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bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/21/2010 3:37 PM (GMT -7)   
I have a relative that was bit a few months ago and put on some pill antibiotic and after finishing it a couple months ater had nubm toung and right arm so went to hospitol. the put her on IV at home rocepherin for maybe 3 weeks .

Now she is fine. Is this because she was just bit this year?

Now my family thinks why can't I just do what she did? Why do I have to see the LLMD and why am I having such a problem.

I just discovered that over 30 yrs of sickness was really lyme. they aren't getting it? or am I not getting it?

Is the majority getting better like my cousin? what is this rocepherin? why isn't everyone taking it?
hep c , lyme
Dad has lyme


great expectations
Regular Member


Date Joined Feb 2010
Total Posts : 53
   Posted 2/21/2010 6:56 PM (GMT -7)   

Hi bucci,

Hope you are doing well today  tongue

There are several factors that make a difference in how quickly someone gets "over" lyme.  I say that in quotes b/c many say that once you have the bacteria it is may always be in your system.

Anyway...the sooner it is treated the faster someone will get well.

It also depends on the strain of lyme that you get...there are a whole bunch of different strains, some are way worse than others.  I contracted lyme in virginia and didn't get diagnosed for 5 years.  I think mine must be a pretty bad strain b/c it devastated my body in those 5 years.  Whereas, my little brother got lyme in texas and ws diagnosed at about 2 years after the bite...He was treated with abx for less than a year and his lyme symptoms are all gone!  He has resumed a normal life, but I am still struggling with adrenal failure and many lyme symptoms. 

So this is just my family experience with how different strains makes a big difference in lyme affects. 

Rocephin is just another antibiotic...Your cousin probably responded so well b/c she got diagnosed early and didn't get a bad strain of lyme.

30 years of lyme is going to take time to treat b/c it is all over your body.  Also if your replacement of steroids for the adrenals are not optimal then you could continue to feel like cr*p even when the lyme is actually getting better.

Your situation and your cousin's are totally different!  Just like mine and my little brothers' situations were different.   Don't let anyone tell you that you "Should" be better than you are or that you "Should" be like someone else...each persons' illness is unique and requires unique treatment!

Peace,

great expectations 


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/22/2010 1:21 AM (GMT -7)   
Thanks GE

How do you know the different strai? Is that the same as coinfections?

i have the bartonella and erechiles, plus EBV, parvo, cpneumonia
and the parasite diamobia fragiallis,
I hope I completely got rid of the strongyloides and the hook worm.

I am wondering if my cousin was even tested for any of this stuff. she feel better and is
only on cholesterol meds now.

They are in NY and the Igenex lab is not used in NY.. I wnder what labs they are using. There is a ton of lyme there.

Does anyone know about the stonybrook lyme lab there? is the testing on the up and up.

My Dad got lyme 35 yrs ago nd was treated with antibiotics for about 2 weeks and then they wouldn't trea anymore. It
ruined the rest of his life and he got disgusted with the doctors back then.
hep c , lyme
Dad has lyme


great expectations
Regular Member


Date Joined Feb 2010
Total Posts : 53
   Posted 2/22/2010 1:20 PM (GMT -7)   

Hi bucci,

Co-infections are different from the strains of lyme.  Strains of lyme just means different variations of the same bug.  Like the flu is the flu, but there are actually different types of flu...like the swine flu that just cropped up recently is a new strain of the same old flu.

I read that there are like 20 or more different strains of lyme disease.  They can't test and tell you which you have but it is obvious to me that some people must have a worse strain than others b/c of how sick they get with the lyme. 

I read that the strains of lyme in europe are usually worse than the ones in the U.S., but with all the travel everyone does these days it seems that you could have the eouropean lyme in the US now.

Sorry to hear you have so many co-infections.  I havelyme, bartonella, and cpneumonia. And the addison's disease that just makes treating everything so difficult.
 
Hope you have a great day
great expectations

Harleyrider
Regular Member


Date Joined Sep 2008
Total Posts : 283
   Posted 2/22/2010 2:04 PM (GMT -7)   
The Rocephin for me was the best thing I could have used as far as an antibiotic.
I was misdiagnosed for 5yrs before finding out it was lyme, and who knows I could have had it longer than that and
my immune system was very strong in the beginning. But when my test came back CDC positive I was givin 28days
of IV Rocephin. I was starting to feel better and they pulled the IV. After a couple of wks of not getting better I was
put on another 28 days of IV Rocephine, which it made my brain fog go away, any pain I had was gone, I could stand
up straight and walk at my normal fast pace, it was amazing how much I improved. But a month after that IV was
pulled I started getting symptoms again. So back on IV Rocephin again, this time was for 3 months. I felt great a month
into that IV treatment. And after the 3months was up I was very leary about getting the IV out. I was put on an oral abx
similar to the IV Rocephin for 7 months and was fine for about 2 months and symptoms started to come back slowly.

I got fed up with that doctor and went to a different doc and when he ran more test found that I had Babesia.
So now dealing with the co-infection for 6 months and seeing the LLMD March 8th to see what we need to do to fight this
lyme again. I SO HOPE HE PUTS ME ON IV ROCEPHIN, its the only med that takes the pain, fatigue, brain fog away.

Have a super day
 

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