Thank for your advice! This whole thing is so frustrating. I went to college (I have my masters degree), I work, I did everything I was "supposed to do" to be successfull. I had a run of bad luck and now I'm uninsurable, and I am only 31 years old. I can work as a nanny now, but I don't think I could teach right now. I was mixing up words and it just took so much out of me. Can you get disability when you are working? I'm just one of those people that makes myself go to work, I didn't even miss a day with lyme meningitis. I wanted to cry every morning before I went, but I suck it up and go, then collapse when I get home and really do nothing for myself once I am home. That is my life, work and sleep. Now at least somedays, I get to rest while the kids are in school. Although I consider it a job (a hard job) I just do things that I would have to do even if I was not working, light tidying up, making food, washing clothes. Its not all that demanding (well except for the kids I mean!)
I am in underwriting now for a second insurance company, but they asked me even more details than the first one did, so I don't feel too good about the whole thing. I'm just so sickened that there is no alternative for me other than high risk insurance that is $960 a month premium. I don't care if they make everyone get insurance, the have to do something for sick people or self employed or those that need individual insurance. I don't understand how it seems like everyone else has options. Even illegal immigrants seem to have more rights than I do! If I had gotten myself pregnant and had a child out of wedlock, I would have insurance in CT. So all single mothers can have insurance, why can't I?
I think I will look into it and see what I can do. I already feel so beaten down, I hope I have the strength to fight and not get discouraged even more. It just feels like such an invisible disease (especially right now that I am feeling a little better) that no one will take me seriously. It was the same thing with my spinal problems, no one took me seriously for 7 years. These insurance companies can really make you feel like a worthless loser for having health problems.