Just need a ear, This is really tuff diease

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Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 3/9/2010 12:44 PM (GMT -7)   

Hello dear friends,

 Its been a long year. At this point I have no clue what day it is where I am at who and what I have done. This is freaking me out. Lymes is so new to me! I tested positive Babesiosis after living for over 20 years treating multiple sclerosis. It was a great shock and For a moment I thought Hey this is great no more posin shots to prevent ms from progressing. Im trying to understand lymes and its not been easy, Im doing all the vitamins and antibiotics I was freaked when my lymes doctor said and mailed me prescriptions for hormones, its just all so much. Im well no bullcrap afraid of meds as they always give me the worst side effects.  I use to have high blood pressure after starting treatment for lymes my eyes blurred and blood pressure went to low..Then I came out .25 for vitamin d? Its just so overwhelming… I was to afraid to start his hormone regimine, I feel so ashamed. I know you must be like what is she crying about she found out she dosent have ms?

Im so blown away why wont my nero help me or even admit yes this is possible? Will this lymes ever go away, I don’t think after 20 years it will? How is this fair to people they show the darn animal commercial protect your pets from lymes,,, but hey there is no way humans can suffer long term from this. Why is this even a issue?

 I feel lost and sad and confused, I cry for no reason and feel so defeated. I don’t believe in depression..i hate pity party people but Im sitting here in full on tears and just want to go home to the lord im done let me off this darn ride it sucks! I have a feeling this may be hormones and I need doctors help….But where the hell is the doctors??? My app. Is next month and I will have to drive 9 hrs, im sure you all  ready know its so hard to drive with vertigo. This will be my 3 visit and im taking someone this visit as I seem to space out when im there. Its all so much.

How is this possible, really I get doctors make mistakes that’s fine I do to, but to find the truth and ignore it well that is like watching someone die, or at least it feels like it….My mind isn’t right so please forgive me if I don’t make sense…I just want to figure this out hit the escape button anything. I cant give up as god gave me this truth and answer in my western blot test after 20 years…im so tierd…..i know you guys are to. Im just so angry at all this…. Not just for myself but for all of us…I wont be rid of lymes after 20 years, I wonder what the 15 years of shots and steroids have done to me, I have no tail yet?

Thanks for the ear friend….

This hurts, Im afraid, there is little relief, the fear is great, how the hell is this lymes kicking my ass and I was never afraid of my M.S. Im lost and need a hand. Why wont anyone help? I don’t want the pills, I cant trust them or the people. They all lie. The one man I found is far away and trying to help hundreds of people like us…..God please send some help for all of us….this is awful…..

Please pray for me friends as I will for you


GWB
Veteran Member


Date Joined Jul 2005
Total Posts : 570
   Posted 3/9/2010 1:22 PM (GMT -7)   
Kimmiepop,

So sorry for all the suffering you've gone through. I know how you feel. Last December I felt so bad that I was sure I would not be here much longer. I've been living with this disease for fifteen years and it's been pure hell. Fortunately, things have been getting better for me. You can read more about my healing journey here:

www.healingwell.com/community/default.aspx?f=30&m=1690780&p=1

Have you gotten the information you were needing for finding a LLMD in AR? If not, let me know and I will be glad to assist you.

It's a tough, evil disease to live with. But you can count on the people here at Healing Well to be there and offer you support and prayers. My wife, daisyrlb, who is also a member here, and I will be praying for you. If there's anything we can do for you just click my email icon and we'll be glad to do whatever we can to assist you.

One day at a time. His grace will get you though it.

Gary

lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 3/9/2010 2:50 PM (GMT -7)   
Kimmiepop,

I'm so sorry for everything you are going through.

When I first started out, my neurologist at the time insisted that because my Elisa test came back negative, I did not have Lyme. The problem with a lot of doctors is what they offer is advice and not the absolute truth. However when you are in their office they make you feel like everything they are saying is FACT. Most neuros don't see a lot of cases of lyme...they do see their fair share of MS. It's like the old saying.... if you're a hammer everything looks like a nail. I don't think doctors realize what their ignorance is doing to people in chronic pain.

My friend's mom lived with MS for 18 years...she tested positive for lyme twice in that time but her docs still insisted it was MS. She finally took control as you are doing and has seen improvement in the few months she's been receiving treatment.

There are a lot of questions with this disease and the best thing I can recommend is to join a support group. This forum is wonderful and the people extremely helpful. I'm not sure where you are in Arizona, but you might try:

http://www.lymenet.org/SupportGroups/UnitedStates/Arkansas/FairfieldBay.shtml

Do you have a lyme support group in your area?

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/9/2010 6:39 PM (GMT -7)   
So sorry to hear about your situation. Please don't be discouraged, there are many kind people out here that can help you get up to speed on lyme and inform you on treatment strategies that are helpful. I am also new to lyme disease and have been scouring the web to help me better understand this illness. Keep the faith... We will pray that you get some relief from your symptoms.

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 3/9/2010 6:47 PM (GMT -7)   
Kimmie,

I am so sory you are feeling so terrible. I can tell you that I am a VERY strong minded person and can take pain but this disease has brought me to my knees. I used to cry all the time too. The pain was unbearable and I felt like I didn't want to wake up anymore. The best thing that happened to me was this group of people. It helps to talk to others that understand. It also helps me to stay busy even if I'm just on the computer all day. It keeps my mind off of everything. Sometimes, I play games online to just get my mind off of it.

I also want to say that we are here for you! We have been where you are many, many times. Don't give up! It gets better. I spent an entired year suffering and I am finally feeling a little better. I'm not 100%, but I've been able to function. Keep coming back here and vent all of your frustrations. It helps, trust me.

I too have been having this for over 20 years and it can get better. I just want you to know that.

Have you been checked for Bartonella and all the other co-infections?
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Kimmiepop
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 3/10/2010 9:32 AM (GMT -7)   
My dear friends,
   Its a new day and just like you all said this will pass it has. I fell to my knees in prayer and he of course answerd me. Im ok, I know its just all so much to take in and understand. im going this morning to get my blood checked blood pressure is to low. im taking some vitamin d to help.
 no i havent found a doctor closer to me in arkansas. I tried a couple numbers no luck. From what I gather Im seeing the best guy there is out there but he has recently moved and the journey is so long.
 
Well, I have a face full of tears from you guys....Im touched and grateful for your words and prayers for me, seems god answerd them, i thank you!!
Maybe I found the truth and the lord knows i can take this and he is going to use me to help someone eles? I suppose there is no point in that thinking, but i can hope.
 God Bless you all thanks for your ear and so much more
god bless

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4306
   Posted 3/11/2010 4:29 AM (GMT -7)   
Hi Kimmie,
 
Tested positive for lyme must have been a huge shock for you after believing you had MS all these years.   You can get better!  I had lyme for  over 10 years before getting better and a friend of mine was misdiagnosed of having Fibro for over 30 years and she is totally better from chronic lyme (we both used alternative medicine).
 
The steroids doesn't help but please don't get discouraged!  If you start taking detox baths every day you will get those steroids out of your body as well as foot detox baths, etc.   You can learn about detoxing in the sticky thread on top of this forum called "New to Lyme ~ Start Here!"
 
Please read as much as you can as knowledge is power.  There are wonderful books out there.
 
Any questions, please ask.  We are here for you!
 
Hugs,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being in remission for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/11/2010 7:07 AM (GMT -7)   
I remember hearing Rudy Guiliani talk about his cancer diagnosis. He said it was the best day of his life. The cancer was there and he didn't know it. But now he did and now he could fight it. Lyme has been there for you for a long time. Nothing has changed. Except now you can actually fight it! Your diagnosis empowered you to be able to get better for the first time in years. Two and a half years ago I could barely walk. I don't think anyone could tell I am sick anymore. And there is so much you can do beside what your doctor can do for you. First, Lyme like most disease in general loves sugar and carbs. Change your diet and you help your body stop feeding diseases. You can strengthen your immune system by strengthening your lymphatic system. Your lymphatic system can be stimulated by gently bouncing (not jumping) on a mini trampoline called a rebounder each day. Here is a link to just one of many pages about the benefits of rebounders. Sports Authority has them online.

www.healingdaily.com/exercise/rebounding-for-detoxification-and-health.htm

((((((((((((((((((((hugs))))))))))))))))))))))))
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