Posted 3/17/2010 10:18 PM (GMT -6)
JYW, I'm really sorry that you are doing so poorly. Feeling terrible all the time sucks big time. I was there long enough to know and it's no fun! Yes, Dr. C treated both my wife and me in the beginning. He did help my wife to get well on abx but wasn't able to help me. That was not really his fault as I simply could not handle abx. Abx tore up my stomach and did a real number on me.
My wife took abx for about 18 months, if I remember right, and got better from Dr C's treatment. True, he is not very aggressive in his treatment protocol. His philosophy is, if you treat to hard and have hard herxes you will give up on the treatments and end up getting worse later on. His protocol is controversial in a lot of lyme circles, but many people think he's the best thing since sliced bread. He is smart as you say and knows his business. I do know that if you ask him to ramp it up and go more aggressive with you he will do it, but he'll do it reluctantly and try to persuade you not to go that route. Others on the other lyme forum have said he will treat harder if you insist on it.
My wife eventually relapsed and later got her treatment from Dr. W in Texas. The reason for this is because Dr. C moved further east from us and it would have been a 9 hour drive to get there. We found another LLMD in north Texas who treats lyme disease. He and his wife both had the disease and that's what got him interested in treating lyme. He's still relatively new in the lyme business and can handle simple lyme cases, but, in my opinion, he doesn't have enough experience in treating people with late stage lyme such as myself. He tried to treat me but it failed. Again, I don't blame him, as I'm one of those kinds of people who simply don't respond well to abx.
As you already know from reading my Hansa Center thread, I finally got better going to the Hansa Center on the two week treatment protocol. I'm still taking herbal/botanical remedies and homeopathic remedies. I'm taking some supplements as well. I've gone back to see Dr. Jernigan once for a follow-up and some additional treatments and therapies. I really feel that had I not found out about this protocol I would not be sitting here writing this post to you right now.
It seems that you talked about this before, but I forgot, so please refresh my memory on this. Did you say you went to see Dr Jernigan before? Was he not able to help you? Have you considered trying natural remedies to see if maybe it will work for you like it did me? I was probably one of the most skeptical patients Dr. Jernigan's ever had, I'm sure. I questioned everything he did to me and put him on notice that I had a lot of doubt about his testing methods and treatments. I really didn't want to go there but Deejavu made a convincing case to me as to how it helped her and she encouraged me to give it a try.
My wife, of course, "nagged" me about it and told me I had nothing to lose because at the rate I was going I was going to die if I didn't do something soon. Back in December I was planning my funeral. Today I am feeling 50% better on most days and on many days as good as 75% better. In time I'm sure I will get even better, but I might never get to the 100% mark because of the fact that this disease did a lot of damage to my body before I ever got diagnosed. I've lost a lot of bone mass and I still have arthritis pain when I get up in the mornings. My abdominal pain is still bothersome but much less than before.
The best part of the treatment for me is that I finally have energy, my mind is clear and my emotions are stable. I have hope that I will get better and have a desire to live now which is something I had started to lose back in December. I don't take naps everyday like I used to and can finally do things I haven't been able to do in a long time. Like I said, I'm not 100%, but I have a lot of days when I really feel good and that's something I haven't had in many years. It's so nice to be able to feel good again.
Anyway, I don't mean to sound like a broken record, but if you haven't thought about trying natural treatments, I encourage you to give it some consideration. Even if you just get Dr. Jernigan's book, "Beating Lyme Disease", and follow his protocol, I encourage you to give it a try. It worked for Deejavu, it's working for me (and a lot of other people), it's very possible it could work for you too.
I'm really sorry for how you are feeling JYW. My heart really goes out to you and I wish there was something I could do to help you. It's a horrible feeling what you're going though--I know. I understand that you're worried, I was worried too, not so much for me, but for my family. I do hope you have a good support system through your family and friends. That's what got me through it, having family and friends who were there to support me. Also having people like Deejavu and people like you on this forum who understand what we're going though, it all helped me to get through it. You have friends here who care about you and who are rooting for you.
I'm praying for you and hoping things get better for you soon. If there's anything I can do for you, don't hesitate to send me an email and I will do whatever I can.