where are we all from again?!

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tick tattoo chick!
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Date Joined Apr 2005
Total Posts : 296
   Posted 3/30/2010 10:40 PM (GMT -7)   
hello! i've been on and off of this site for a few years now... and every time i come on, i like to say im sorry that i havent been on for so long... because i dont feel (too) sick anymore... and the symptoms that im left with, are just every day life for me now and i can deal with them for the most part.. haha..?
anyway, i used to come on here for hours every single day... looking for those stories that would make me think positive, and they really really helped! i promise, i am NOT saying that its a mind game... but it certainly helps to believe you will get better, and to think in a positive direction :)   ... that is why im sorry that i dont come on, but just know that theres people that seriously dont remember to come on anymore... because they dont " need " to come on anymore, ya dig?
that being said, i once went on a lyme disease "retreat"... i, like everyone else there, was mid-treatment, and at the time could not control my vertigo or anxiety for the life of me, so i left early... but it was so so so soooooo great to meet people that were going through what i was going through... chatting on forums is awesome, dont get me wrong - but to actually MEET someone = priceless!
luckily (or maybe not luckily, it depends on how you look at it), because i was so sick for so long and i have a few co infections to go with my lyme... i spotted two of my close girlfriends having symptoms and they both went to my LLMD and i was right, one went through treatment and is now fine, and the other one is going through treatment and having a very rough time... so LUCKILY i totally know what shes going through and i can be there for her... and i wish i had that when i was at my worst... so im more then happy to be there for her, and tell her how much lyme stinks, and the herx will soon be over, and that its normal for all of these abnormal things... ok, im rambling because im tired, but i wanted to make sure i did this before i went to bed -
im in rhode island, id love to meet other people from around here! im sure my friends would too. doesnt matter if you have it, had it, a family member or friend has/had it... no matter what it helps to meet people and vent about it, share stories about it, yada yada...
so - turnRHODE ISLAND.. im here! turnwe could even become facebook friends? i donno? lets do this!
everyone else, please respond with where you are, so you can get in touch with a friendly person in your area maybe?
feel better. never give up. surround yourself with friends, family and laughter... and if your friends and family think you are crazy (it happens, i know, it happened to me) it doesnt stop you from watching a funny movie, stand up comedian, listen to awesome music... make yourself feel happy. (or just do what i did, get a tick getting exploded by pill missiles tattooed to you, it helped! made me laugh then, im still laughing at it now!) take care! yeah
"never let the fear of striking out keep you from playing the game"
~a cinderella story~
lyme, babs, bart since 1999, diagnosed in 2005...
and.... "what a loooong strange trip its beeeeen!"
~the greatful dead
i want lyme disease crossed out of my life for good!!!

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Date Joined Oct 2006
Total Posts : 851
   Posted 3/31/2010 7:44 AM (GMT -7)   
Vancouver, BC, Canada!

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 3/31/2010 4:19 PM (GMT -7)   
Seattle WA, USA
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

Regular Member

Date Joined Mar 2010
Total Posts : 230
   Posted 3/31/2010 4:25 PM (GMT -7)   
Connecticut, USA
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 3/31/2010 4:36 PM (GMT -7)   
Northern Los Angeles County, California, USA
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


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Date Joined Jun 2007
Total Posts : 849
   Posted 3/31/2010 5:19 PM (GMT -7)   
Sunny Florida
Lyme Forum

Regular Member

Date Joined Jul 2007
Total Posts : 478
   Posted 3/31/2010 5:27 PM (GMT -7)   
McDonoughna, GA

Regular Member

Date Joined Jul 2007
Total Posts : 478
   Posted 3/31/2010 5:30 PM (GMT -7)   
HHHAAAAAA! Look at my Lyme brain!!! I am from McDonough, GA!-- Last week I kept forgetting my home phone number. I had to call my mom 2 times to tell me!! wow. Scary, actually.

Waiting In Fl
Regular Member

Date Joined Mar 2008
Total Posts : 178
   Posted 3/31/2010 5:58 PM (GMT -7)   
Tampa, Florida
Bull's Eye Rash 9/07 (DX as cellulitis),Menningitis  10/07, Smptpms:headaches, extreme fatigue, insomnia,P DX "Depressed & busy mom" , Rheumotologist 2/08 Lyme test equivocal, LLMD seen4/08   Igenex Positive, Additional DX Ebstein Barr, Chronic Fatigue S, Adrenal Gland Deficiency,2 Rounds of Rochepin May 2008 &Summer 2008   December 2008

Regular Member

Date Joined Jul 2007
Total Posts : 296
   Posted 3/31/2010 6:14 PM (GMT -7)   
New Jersey

Veteran Member

Date Joined Oct 2007
Total Posts : 1172
   Posted 3/31/2010 7:02 PM (GMT -7)   

Regular Member

Date Joined Aug 2009
Total Posts : 89
   Posted 4/1/2010 6:13 AM (GMT -7)   
Northern Nevadaturn

Regular Member

Date Joined Sep 2008
Total Posts : 283
   Posted 4/1/2010 6:23 AM (GMT -7)   
Ottawa, Kansas USA

Veteran Member

Date Joined Dec 2006
Total Posts : 3533
   Posted 4/1/2010 7:12 AM (GMT -7)   
Very mild left sided (could have fooled me with the "mild")  UC.Just found out 4 years into it I might have Lyme's Disease, going to a LLMD in December. Confirmed Lymes on 12/8/09 before my new antibiotic protocal from my LLMD, I  Started and stopped LDN ON 1/25/09 to mid May no improvements. Tried Asacol, Pentesa, Colozol, Sulfasulsadine and Lialda, they made me worse. A range of antibiotics (for 10 days here and there), not much better. Supplements: No UC meds at this time. Started Doxy and Cedfinir too rough on stomach, stopped those.Started Bicillin injection 1/12/10, once a week of injections.On Zithromax and Flagyl as well, about 2 year protocol to rid myself of bacteria Babesia, Chylmadia Phenomia and Borresliosis. Taking Oxy Aloe Flush and liquid vitamins, curcumin and CO Q10

Regular Member

Date Joined Oct 2009
Total Posts : 70
   Posted 4/1/2010 7:39 AM (GMT -7)   
appleton wisconsin

Veteran Member

Date Joined May 2007
Total Posts : 517
   Posted 4/1/2010 9:51 AM (GMT -7)   
Kenosha Wisconsin
infected since 2005

Regular Member

Date Joined Aug 2008
Total Posts : 268
   Posted 4/1/2010 10:25 AM (GMT -7)   
Providence, Rhode Island. Yes, Rhode Island where the horrible floods are. that is why I am home from school today. School is in Warwick, RI where the worst is being experienced.
Asperger's Syndrome
Rectal prolapse surgery Dec. 2006
total colectomy with ileo-rectal anamastosis: Aug 7, 2008
Numerous food intolerance (gluten,lactose,msg,etc)
Persistent/chronic Lyme Disease: March 2010(org dx in Sept 2009, but meds unsuccessful)

Forum Moderator

Date Joined Mar 2009
Total Posts : 2154
   Posted 4/1/2010 5:11 PM (GMT -7)   
Central beautiful coastal New Jersey

Regular Member

Date Joined Jan 2010
Total Posts : 57
   Posted 4/1/2010 6:43 PM (GMT -7)   
Maryland. Thanks for the inspiring post. I really wish more people would check in when they start to feel better. There was a post here recently asking if anyone starts to feel better...I think a lot of people do, but they are too busy enjoying a healthy life!

Forum Moderator

Date Joined Mar 2009
Total Posts : 2154
   Posted 4/1/2010 7:47 PM (GMT -7)   
Tick tatoo chick, do you mind if I ask what treatments you have been through?

Regular Member

Date Joined Jan 2008
Total Posts : 63
   Posted 4/2/2010 8:09 AM (GMT -7)   
Tacoma, WA. Bitten in Brainerd, MN

Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 4/2/2010 6:09 PM (GMT -7)   
Arizona but bit on Long Island possibly Fire Island NY and also upstate NY
hep c , lyme
Dad has lyme

Veteran Member

Date Joined Aug 2007
Total Posts : 887
   Posted 4/14/2010 10:33 AM (GMT -7)   
Northwest Indiana
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Dr. Zhang's protocol stopped after 6 months symptoms returned.  Started Buhner's protocol May 2009

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 4/14/2010 11:23 AM (GMT -7)   
Bayside, New York

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 4/14/2010 12:05 PM (GMT -7)   
I can relate to shutterbug I too can not remember numbers, and call someone to get the number. I can not remember period Every book and movie is new except for old ones like gone with the wind, which I am (gone that is)
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