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New Member

Date Joined Apr 2010
Total Posts : 19
   Posted 4/6/2010 9:28 AM (GMT -7)   

This forum would be better if it had sections-related only to Lyme for example a section for Symptoms where one only discusses symptoms and.or how they are feeling today, a section for treatment(s) discussion, Pregnancy and Breast feeding, children w/lyme and personal stories , etc.  Am I using this forum wrong, because it seems like similar information should be stored together so that one could easily navigate and it’s not?   thanks

Veteran Member

Date Joined Jun 2007
Total Posts : 849
   Posted 4/6/2010 10:37 AM (GMT -7)   

HW forums are not set up that way.

You can however use the search button at the top of the page to find out information that you are looking for.


Lyme Forum

New Member

Date Joined Apr 2010
Total Posts : 19
   Posted 4/7/2010 7:28 AM (GMT -7)   
thanks 1bittern2xshy,

There seems to be a ton of information here and there for Lyme though in my opinion it really isn't that easy to keep together and figure out what to do.  Maybe I need to print what I find relevent to me because looking at this stuff again makes me confused and anxious.  Bottom line I guess I really need to find a LLMD. 

i also read that lyme impacts the frontal lobe and makes it hard to get diagnosis because the victim has difficulty organizing and interpreting data, also disbelief and maybe denial for some reason play a role- combine that with doctors who don't have a clue and no wonder so many mis diagnosed or people with no diagnosis like me... for me since they ruled out everything they decided to call it CFS. =(  They also concluded I had active EBV and CMV which now it’s interesting to me again since seems like people here might be considering that common co infections to lyme.

Since I never had diagnosis I go back in fourth… I believe I had/have it then – no, that’s not what it is/was.   In as little as a day I change my mind.  Weird, hey (sigh)  Anyway I am glad to have found this site. Thanks!

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 4/7/2010 1:50 PM (GMT -7)   

Welcome to the forum! I am sorry you are having trouble finding things. I have neuro Lyme, so I know how difficult it can be. Let me know if you need help:)

As for the CFS diagnosis, you may still have it. Lyme causes CFS and Fibro in some of us. I have both.

Most of us that have Lyme, also have or once had Ebstein Barr, CMV, HHV6, Cytomegalovirus and a few others. Lyme Disease suppresses our immune system thus causing us to pick up these viruses that we wouldn't normally pick up with a healthy immune system.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

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