Well, after being in remission for 2 1/2 yrs and being bummed out about this relapse, I honestly feel that I have the upper hand in this disease so far...knock on wood...I know very well how crappy this disease is after 22 years experience.
I caught the relapse quickly, got right to Dr C, and got my picc line back in and back on the meds all within 1 week.
I feel like a million bucks again on Vanco. I feel just like I did before my last treatment ended. I have had two herxes at night but take my pain meds and wake up the next day feeling fine. I am going to stay the course for 4 weeks and go from there but hope to be back to my normal self before long.
There is hope!!!
Infected in 1988. DX w/Lyme, HGE, Bartonella 2007. Successfully treated 2007-2008 w/Vanco, Flagyl, and many other things....etc, herniated L5/S1, Relapse 3/2010-Currently on Vanco/Flagyl for 2-4 weeks with this first relapse, Hydromporphone/Percocet for pain, Soma, Clonazepam