Need Good Advice!!! Please

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Regular Member

Date Joined Mar 2008
Total Posts : 34
   Posted 4/12/2010 11:20 AM (GMT -7)   
Okay so I went to the dr last week. Hes dropping some of my meds. Dilantin which is taking for seizure, cognition. I take it for cognition. Hes thinking it may be doing the opposite thing on me. He cut the Armour from 120 for 90. Slowered the cortef, basically anything thats stimulating me or any organs hes slowing it down. Im attempting college but I can concentrate. Im always honest with the doctor, and he asked me if I have ever had a sleep study done, or take provigil or anything for ADD or ADHD. Hes getting me off some of these, and i believe hes putting me on either Provigil, Adderall or something of that nature. Now Im kinda having flares as I went into the dr, hes doing this very graudual... which is great, but has ANYONE had success with any of these drugs. Im skeptical to get on any more narcotics at this point in the game, however if they work Ive seen first hand that they can be life-savors and things like that. Any imput appreciated.

P.S I told him my body just feels wired and its not anxiety, more like a hormone thing or lyme thing.
Current Meds: Armour 90 mg, Atentol 25 MG, cortef 2.5, vitamin shots, xanax for WORKING WONDERS!, maintance abx, and i think thats it. Supplements of course. I dunno im kinda scared to be lowering meds, but if it can slow my body down YES! Im a up and down of complete nuero mess.
Basically just working through what my body needs to get me at my max feeling well. I was fine fer awhile. I wear down easy and then i feel like i have mono or something if i do it. Im wondering if my mind is getting into all the stages of sleep, cause im fairly active and just force myself to do something- I have no choice. Frusterated..... Thanks Alll

Deejay---- I will be emailing you soon if you see this.


Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 4/12/2010 6:35 PM (GMT -7)   
Hi BDub,

Have you had your thyroid levels checked again? Hyperthyroid can give you that wired feeling.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Forum Moderator

Date Joined May 2007
Total Posts : 35859
   Posted 4/13/2010 2:10 PM (GMT -7)   
I was on Provigil for 1 month a while back. It was wonderful for giving me a lot of energy, but I started doing some thinking on that & wondered how it was affecting my body, so I quit. It was also expensive, even with our insurance.

I wish you luck with it!
It's been said:LD patients can be as ill as people w/ congest. heart failure & in as much pain as post-op patients.

Veteran Member

Date Joined Jan 2009
Total Posts : 914
   Posted 4/13/2010 2:29 PM (GMT -7)   
I had such high hopes for Provigil but unfortunately it did not work well for me...made me feel wired but still too exhausted to do anything...if that makes any sense. I hope it works for you as well as it has for so many others I've read about! I take Adderall when I absolutley need to...once every week or so to get to appointments. I can't take it too often because I crash terribly after exerting myself physically or mentally. Good luck.

Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 4/14/2010 6:32 PM (GMT -7)   
i didn't find dilantin cleared the cobwebs as well as wellbutrin. wellbutrin also gives me energy. it is 150 a month but the manufacturer is going to send it to me for free because we "is poor."
just fill out the forms and you would be amazed at the drug co's programs the income level thought was very generous. And should i decide i need to go back on antibiotic (bad days may be coming more frequent and gosh I have had rage) If i want to i'll order them from mexico.
once i was hormone tested i had NO estrogen, ain't that somethin? Might want to keep eye on estrogen/progestrin level too i never thought of it
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