God bless you all -- your searching and your fighting is amazing. The grief that you suffer is amazing, as well. Here is a question and I wonder if it could be the answer to some aspects of Lyme:
This does not apply to the physical pains you are suffering, but I am talking about
the mental, emotional, and cognitive aspects:
Perhaps this should have been a different post, but I thought about
this while reading others' suffering above. Maybe this must be treated on its own, maybe treatment for Lyme does not address the damage done to our adrenals. And so maybe some of you are actually getting better from the lyme, but left w/ damage done by lyme?
Adrenal fatigue. I KNOW that I am suffering w/ this. Given my history, (30 yrs hypoglycemia, stress and emotional episodes, each manifesting worse than the one previous, etc etc) the lyme and how I feel now, it seems impossile that I wouldn't have it.
When I had an LLMD, he noted it in my blood work. When I look it up, I have almost every symptom and I relate to so many things, many of which can be attributed to depression, but many which differ from classic depression. A friend at the dog park loaned me her book by JW on Adrenal fatigue. (and yes, once I have survived the blackness that descends on me each day, sometimes, not all the time, I am able to pack up my dogs and take them out-- I have to)
According to the 'test' in this book, mine is severe. The list of symptoms describe me to a T. You know, I REALLY got it when he described difficulty in making decisions, even the simplest, like what to wear.
This sounds SO stupid and petty. But seriously, I suffer standing for as long at 15 min at a time, staring at my closet, unable to pick out something to wear. My mind feels blank, the decision seems impossible and insurmountable. This is one reason I pack the same foods to take to work each day -- so I do not have to think about
what I will eat.
What is disappointing tho, is the same ole, same ole. Most Drs don't believe in it, they do not know how to accurately test for it, and they do not treat it. This has been discussed here before. I hope to find some answers in this book, once I can get thru it -- I can only handle a couple of pages per day.
What I'm getting at, is adrenal fatigue seems to account for most of the symptoms I have now, except for the back and neck pain, which I've learned are progressively worsening scoliosis, and the occasional return of sore, throbbing mouth and muscles, which could be lyme, I don't know.
I had hoped it would resolve, as the lyme resolved, but evidently not. JW's book even states that if you also have low thyroid (which I do and most of you also probably do), the adrenal fatigue should be addressed first.
I am wondering if it is possible that many people who have received lyme treatment are still suffering from adrenal fatigue which has not been addressed. Adrenal fatigue describes almost everyone's symptoms here, from the depression, lack of motivation, anxieties, lethargy, feelings of hopelessness, thoughts of 'S', cognitive issues, etc etc etc.
Since Lyme causes adrenal fatigue, it would only make sense that these present as symptoms of lyme.
I may still have lyme, I don't know. I am still on LLMD waiting list, but I can't keep waiting to address the issues I'm having now which are ruining my entire persona and life. (thyroid and adrenals)
I know many of you are receiving treatment and/or are working on the Adrenal fatigue aspect. I would like to know if you if you are progressing any, or experiencing any improvement. And do you believe that I will necessarily need alternative medicine to get a diagnosis (even tho LLMD did) and any kind of treatment?
This would explain to me WHY my depression feels so different and so physical, and why it hits me out of the blue, often at the same time each day.
In some way, I hope this helps others to think about
this and this possibility. Because if you have adrenal fatigue, then abx and other lyme treatments may not help this. And so you may continue to feel hopeless. Has this been discussed by anyone?
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia, chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?